• Flatscatter's avatar

    Flatscatter

    Member
    June 21, 2017 at 9:05 pm

    I completely understand…

    Had TURBT May 30, hemorrhaged May 31 and didn’t get home until June 4th

    From the moment the cath came out on the 2nd I’ve had that same urgency. It’s almost comical if it wasn’t so aggravating. All I have to do is turn the water on in the sink and BOOM! I gotta go RIGHT NOW!

    I start BCG July 17. My URO did just give me tabs for a 2 week trial of Myrbetriq to control the urgency issue. I’m only 2 days into it and was warned it may take 4-5 days to take full effect. I’m definitely already getting SOME relief but still room for improvement

    Best wishes for you and yours

  • Hannah01's avatar

    Hannah01

    Member
    June 16, 2017 at 10:09 am

    Have you discussed this issue with your Uro, or call the nurse…i would be an infection causing it. Hope things will change positively for you

  • jack-r's avatar

    jack-r

    Member
    June 6, 2017 at 11:29 pm

    Hope12,

    I have the same urgency issue following BCG administration. The need-to-go can hit every 5 to 10 minutes, and output is small – 5 to 20 ml. My doctors tell me, “It can happen – the inflammation is what we want the BCG to do”. It is no fun being tethered to the bathroom – adult diapers and a urinal may offer some mobility. Pyridium can help with urgency and urinary pain if OK with the doctor. Additional liquid intake can help with the pain and burning, but check with the doctor about timing a liquid increase after BCG treatments.

    Always always – bring every concern, issue, problem or fear to your doctor or care team. If they don’t hear from you, they can’t help. Make sure that your requests for help get answered – there is no need for the road to beating BC needs to be any harder than necessary.

    Best,
    Jack


    6/2015 HG Papillary & CIS
    3 Years and 30 BCG/BCG+Inf
    Tis CIS comes back.
    BC clear as of 5/17 !
    RCC found in my one & only kidney 10/17
    Begin Chemo; Cisplatin and Gemzar
    8/18 begin Chemo# 3
    Begin year 4 with cis
    2/19 Chemo #4
    9/19 NED again :)
    1/2020 CIS is back
    Tried Keytruda, stopped by side effects
    Workin on a new plan for 2021
  • sara.anne's avatar

    sara.anne

    Member
    June 6, 2017 at 11:09 pm

    I assume that he has discussed this with his urologist? What did he have to offer?

    CIS often acts as if it were a really bad urinary tract infection, including urgency. BCG can do the same. His urologist may have something to offer to help this.

    Sara Anne


    Diagnosis 2-08 Small papillary TCC; CIS
    BCG; BCG maintenance
    Vice-President, American Bladder Cancer Society
    Forum Moderator

Sign In to reply.