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    Under investigation

    Posted by MebeAspie on December 17, 2020 at 4:34 pm

    Start of Discussion
    0 of 0 replies June 2018
    Now

    Hi all, am 66 year old woman being investigated for cancer. I had a lot of gross hematuria including passing big blood clots and came up negative for UTI twice but I had been taking a natural antibiotic prior to that testing (oil of oregano). Was given nitrofur mac and took full course and everything cleared up. The cytology report taken before nitrofur mac came back as “Atypical urothelial cells present, favor a neoplastic process” and subsequent FISH test came out as: “25 of 25 cells analyzed using UroVysion assay had aneuploidy in at least 2 of the chromosomes (3, 7, 17) and 0 cells had a homozygous deletion of the 9p21 locus. ” The CT scan showed a thickening of bladder wall and 2 large cysts on kidney, subsequent ultrasound came back with normal bladder (not showing thickening) and 1 of the 2 cysts is septated. Doctor said will discuss cysts at cystoscope exam.

    Had anyone had results like this and it turned out not to be cancer with 25 of 25 cells positive for aneuploidy? Just trying to make sense out of all this.

    sara.anne replied 4 years, 3 months ago 2 Members · 1 Reply
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  • sara.anne's avatar

    sara.anne

    Member
    December 17, 2020 at 5:04 pm

    It is possible that you might not have bladder cancer even with the positive urine cytology tests, but this is something that needs to be investigated further and that is what your urologist is doing. The abnormal cells that showed up could be due to all the other factors, such as cysts on the kidneys. They could also be from bladder cancer.

    You really will not know until your urologist does further exams, probably a TURB (a biopsy of the bladder) which is usually done as outpatient surgery under light general anesthesia. You will know a lot more after you discuss this with your doctor.

    No one can give you any idea of what is going on at this point. It is natural to be nervous! Be sure to write down all the questions you have for your doctor before your next meeting. It is so easy to forget what to ask!

    Best of luck to you

    Sara Anne

    Diagnosis 2-08 Small papillary TCC; CIS
    BCG; BCG maintenance
    Vice-President, American Bladder Cancer Society
    Forum Moderator

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