Home Forums All Categories Newly Diagnosed, New To The Forum turb yesterday — now what – a few questions

  • turb yesterday — now what – a few questions

    Posted by robm on July 1, 2008 at 9:48 pm

    hey you nice people — had my turbt yesterday spent night in hosp. here are the basics —
    waited 5 hours (i nearly went nuts) before hitting the or room — afterword dr rushed by husband and said “boy that was a large tumor” — spent the night because he was flushing the bladder w/something (saline?) anyway discharged this afternoon w/usuall compliment of stuff (bladder bag etc.) and told to make a appt for thurs to discuss pathology — my first question is aren’t body scans required for this and what tests are?? — also what does “no mitomycin” mean on my patient info/record sheet?

    i have had way too many drugs — feeling real fuzzy/tired — thanks for all your help — later rob

    robm replied 16 years, 7 months ago 6 Members · 11 Replies
  • 11 Replies
  • robm's avatar

    robm

    Member
    July 3, 2008 at 12:39 am

    thanks rosemary — i haven’t quite figured out how to use this site so i’m trying quick reply to see what happens — i will try to ask dr about the mitomycin although there was quite a bit of bleeding — more info tommorrow
    rob

  • MrTaste's avatar

    MrTaste

    Member
    July 2, 2008 at 10:40 pm

    waiting for the pathology is the worst… nothing more unsettling than not knowing, but what has been said before here is correct.. the pathology will give you the answers you need… i wish you the best possible outcome, and hang in there! m

  • robm's avatar

    robm

    Member
    July 2, 2008 at 5:22 pm

    hey flamenco – thanks for your response — will keep my fingers crossed – until thursday then — later rob

  • rosemary's avatar

    rosemary

    Member
    July 2, 2008 at 6:09 am

    I’ve bumped up an old thread called “Local Uro Cautions Mitomycin C”. This was my thread from last year and it addresses the subject of the perforated bladder. In the last analysis, I am glad that I got my two doses under the wire before the Clinic stopped using the Mitomycin.

    Please let us know about the Pathology Reports, Rob..

    Ro


    Rosemary
    Age – 55
    T1 G3 – Tumor free 2 yrs 3 months
    Dx January 2006
  • tommyt's avatar

    tommyt

    Member
    July 2, 2008 at 4:10 am

    I agree with Pat on the Mitomycin. I discussed the use of it with my URO and why he did not advocate it’s use. He had just returned from a Southwest URO conference where there was some disagreement when and when not it might be used. If there was any bleeding or any chance of perforation during a TURB,even microscopic, it could be toxic. While he did state that many URO’s were using Mito, he felt confident in BCG solely. Just my two cents.:S

  • rosemary's avatar

    rosemary

    Member
    July 2, 2008 at 3:46 am

    I had residual tumor, too…


    Rosemary
    Age – 55
    T1 G3 – Tumor free 2 yrs 3 months
    Dx January 2006
  • 's avatar

    Guest
    July 2, 2008 at 3:38 am

    I do know if there is any bleeding they will not instill Mitomycin and personally in my case I was excluded as my first TURB was not completely re-sectioned and i had a higher stage and grade tumor.
    pat

  • rosemary's avatar

    rosemary

    Member
    July 2, 2008 at 2:58 am

    Rob,

    If you do find out why the Doc nixed the Mitomycin, I would be interested to know it.

    I got the Mitomycin immediately after surgery and before the path. At that time we thought my BLC was the lowest stage and grade.

    Wrong!!

    Ro


    Rosemary
    Age – 55
    T1 G3 – Tumor free 2 yrs 3 months
    Dx January 2006
  • 's avatar

    Guest
    July 2, 2008 at 1:51 am

    Hey,
    well you need to wait for the report on the turb, it will tell you everything you need to know and how to proceed. After my husbands first turb I spoke with the surgeon he said I will refer you to the Cleveland Clinic for removal and any treatments if needed, he did know that much by what he saw, stage 3 T-2 diagnosis came 3 days later, he also spent the night, after both turbs, he had another one at the Cleveland Clinic, same result, then suregery, and now he is great!!!!Ginger Beane

  • flamenco's avatar

    flamenco

    Member
    July 1, 2008 at 10:40 pm

    Hi Robm,
    I·m not the expert on this, am sure there are many more on this website who can advise you better, but from what I understand so far is that “no mytamycin” means from the inicial results of your turb, you don·t have what is considered a high risk tumour, so they haven·t given you chemo direct into the bladder following removal of the tumour. Basically thats fairly good news so far.I know its really worrying waiting for test results, but try to just relax a bit for the next few days, and post us when you have more info on your results,
    Regards Flamenco

  • rosemary's avatar

    rosemary

    Member
    July 1, 2008 at 10:36 pm

    Hey Rob,

    No Mitomycin means that your Doc did not order this chemo bladder wash for after your TURB. I wonder why not?

    The next step will be to learn what the Pathology Report reveals. Once you know the Stage/Grade of your tumor then the Doc will know how to proceed and whether other tests are in order.

    If it makes you feel any better, my Uro described my tumor as a “whopper”.
    However, my Uro did give me the Mitomycin.

    Take care. Waiting for the Pathology is tough. I worked Sudoku puzzles and made bran muffins. You seem to have a good attitude.

    We’re here…
    Ro


    Rosemary
    Age – 55
    T1 G3 – Tumor free 2 yrs 3 months
    Dx January 2006

Sign In to reply.