Home Forums All Categories Muscle Invasive Bladder Cancer The waiting game………………..

  • The waiting game………………..

    Posted by on September 23, 2009 at 3:01 pm

    Well – made the appointment!
    It would appear that there have been ‘significant’ changes on my CT scan.
    The first being ‘something’ in my armpit. This could be scar tissue from the surgery last year or….more worryingly, another tumour.
    The second being ‘patches’ on my left hip bone which have spread considerably since my last scan. Hmm – I did not even know they were there at the last scan!!!I did have a lot of hip discomfort around November and into December of last year but by the time I decided to mention it to anyone it had gone. The report did state that due to the position of these patches I will be at significant risk of a hip fracture so no more pole dancing for me!!!!However the report also said that the patches were ‘not wholly indicative of mets’.
    The upshot is that I will be discussed at the multidisciplinary meeting tomorrow and a plan will be arranged. Hopefully it will include a bone biopsy which, although will be painful, will at least tell us if the bone patches are malignant or not.
    So – once again we are playing the waiting game. keep hugging!!!
    Betsy Mae:(

    Mona replied 15 years, 4 months ago 10 Members · 12 Replies
  • 12 Replies
  • mona's avatar

    mona

    Member
    September 24, 2009 at 5:00 pm

    So sorry you’re playing the waiting game and hoping the scan is done soon and shows the patches are benign. Thinking of you,
    Mona

  • flamenco's avatar

    flamenco

    Member
    September 24, 2009 at 3:34 pm

    I really hope they get your bone scan under way as soon as possible, it is the waiting that is the worst, and that this is just a false alarm. Lots of big positive energy vibes on their way to you!
    Diane

  • gkline's avatar

    gkline

    Member
    September 24, 2009 at 3:04 pm

    BIG HUG from me! I know the waiting is always the hardest part. I keep thinking the worst and HOPE for the best! Please know we are with you and praying for you!

    Wishing you the best.
    George


    Light a man a fire and he is warm for an evening.
    Light a man ON fire and he’s warm forever.

    08/08/08…RC neo bladder
    09/09/09…New Hip
    =
    New Man! [/size]

  • 's avatar

    Guest
    September 24, 2009 at 10:37 am

    Hi!
    Just heard that I’m scheduled for a bone scan as soon as possible. The Team have also discussed the armpit findings and feel that it is probably changes following surgery that have been picked up.
    Am feeling a bit more positive now.
    Many thanks for all of your support – much appreciated as ever!
    Honey has perked up too which is a good sign!
    Betsy Mae;)

  • flamenco's avatar

    flamenco

    Member
    September 24, 2009 at 8:00 am

    I·m in here with the continuous hug, and sending positive vibes too.
    Diane

  • julie's avatar

    julie

    Member
    September 24, 2009 at 12:42 am

    (((((((((Big Hug))))))))) from me. I don’t know how easy it is to get a bone scan and a PET scan authorized but I think they would provide better information and a lot less painful than a bone biopsy. I think it’s worth asking about. PET scan would pick up soft tissue cancer and the bone scan would of course pick up if the bone changes are. If you are not having pain in that area I would think that to be a good sign.
    I do wish tests could give immediate definitive answers. Waiting is hard on a person. Julie


    Volunteer Coordinator
    ABLSC
  • 's avatar

    Guest
    September 23, 2009 at 8:55 pm

    Don’t know how it works over there but i hope the multidiciplinary team also includes a second opinion on pathology. Scar tissue shows up very differently than a tumor on a CT scan with contrast. And why were the patches not mentioned in the prior scan?
    I’m only saying this as i’ve had some bad readings myself but have the ability here in the US to have someone else read them….or lots of people read them.
    I do hope all is well but stay on top of them and ask the questions……..and i do send hugs………Pat

  • mmc's avatar

    mmc

    Member
    September 23, 2009 at 4:56 pm

    {{{{{{{{{{Hug}}}}}}}}}}
    Me too!

    Mike


    Age 54
    10/31/06 dx CIS (TisG3) non-invasive (at 47)
    9/19/08 TURB/TUIP dx Invasive T2G3
    10/8/08 RC neobladder(at 49)
    2/15/13 T4G3N3M1 distant metastases(at 53)
    9/2013 finished chemo -cancer free again
    1/2014 ct scan results….distant mets
    2/2014 ct result…spread to liver, kidneys, and lymph system

    My opinions are my own and do not reflect the opinion of ABLCS or anyone else. I am not a doctor nor do I play one on TV.
  • InTransition's avatar

    InTransition

    Member
    September 23, 2009 at 4:32 pm

    Perfect… one long continuous hug from me, too.


    Diagnosed Stage 3 March 09.
    RC August 09 at MD Anderson, TX
    Ileal Conduit (Bag Lady)
    Age 52
  • webs's avatar

    webs

    Member
    September 23, 2009 at 3:58 pm

    {{{{{{{{{{Hug}}}}}}}}}} I am hugging you and not letting go.

    Char

  • leigh's avatar

    leigh

    Member
    September 23, 2009 at 3:45 pm

    I will not let go of my hug of support and best wishes.

    Thinking of you and sending positive vibes.

    Leigh


    Leigh, 39
    Dx July 2007
    TURBT July 2007
    RC/Neobladder ,Studer Pouch, September 2007
    Erasmus Centrum Rotterdam
    TNM Classification: pT4 N2 Mo
    4 cycles aduvant chemo Gemzar & Cisplatinum
  • cynthia's avatar

    cynthia

    Administrator
    September 23, 2009 at 3:16 pm

    Know that we will be waiting with you with our fingers crossed. You are in my heart.


    Cynthia Kinsella
    T2 g3 CIS 8/04
    Clinical Trial
    Chemotherapy & Radiation 10/04-12/04
    Chemotherapy 3/05-5/05
    BCG 9/05-1-06
    RC w/umbilical Indiana pouch 5/06
    Left Nephrectomy 1/09
    President American Bladder Cancer Society

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