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the operation
Warren has had his operation 11-4-2013. He has an ileal neo bladder,he is in ICU,doing well. The Dr. could not do nerve sparing as he nicked the bowel, as he removed the bladder. Now, he is facing another surgery, some time after healing to have a prosthetic device placed. What a mess. I as his wife, I am not handling this , all that well. It has been a painfully hard road to travel with him and this aweful CANCER that has caused this. But with God’s wisdom,strength,guidance, patience.endurance we will arrive victoriously to the purpose God has for our married life together. Please continue prayer for his healing, and the return of my sanity. I will update our progress as we travel along, as I feel the wives also NEED to have someone that they can cling to on their terrible journey’s thru this horrible diagnosis. I will gladly come along side those who are in need of comfort, since I have had no one, since this is ” Not about Me”. Sincerely, Donna McQuiggan
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22 Replies
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How is your hubby now, Donna? Mine is home and getting home health and PT. I know it is long road, but we keep pushing. If you need some kind of support that hopefully I can give, let me know. This all new stuff to me, but I am learning. I hope Bobby can go back to work………..but whether he can or cannot, I am here to help him anyway I can. Keep the Faith and let God take the wheels………..that is what I have basically done.
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I do hope your friend continues to get better. I think as long as we keep Bobby from getting infection, the better he will be……….so far so good! The home health nurse come twice a week and the PT comes three times a week. Thanks for being a support!
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Finally home! That is such a good thing. I remember the feeling of walking in the front door after the surgery, I was 100% better as soon as I sat down on the couch.
My friend was just released from the hospital YESTERDAY!
He was in the hospital for 40 days! This was in addition to the 27 day stay in the hospital for the RC! He is feeling so much better at home and is constantly wanting to know why I didn’t have these troubles. I don’t know what to say. The luck of the draw, I guess.But let’s talk about you……. I am so glad to see that Bob is home. Hopefully this is a permanent thing. I know the PT can be rough. At times I thought they were trying to re Injure Me! The harder I worked…..the more they pushed. But now, years later, I can say that PT gave me my freedom back.
Thanks for the update and Keep your chin up….. Because it will get better.
George
Light a man a fire and he is warm for an evening.
Light a man ON fire and he’s warm forever.08/08/08…RC neo bladder
09/09/09…New Hip
=
New Man! [/size]
We went through rehab which was an awful experience with the nurses and the PT’s! We are home now with home health and a PT that we have used in the past with my Mom. Bobby is getting better, but it is still going to take time. How is your friend that had infection problems? I hope you and him, too, are doing well. We just take it one day at a time now!
I am very thankful for your input. I have been on my wits end with the stomach cramps and the occasional disorientation. His kidneys are beginning to function normally, but the cramps are really bad. He thought he was in Briton this morning and now he is normal! Thanks again!
I too had a bout with kidney failure due to cisplatin issues and was on dialysis for a period along with colitis, dehydration and fever. My wife relayed later that I also exhibited a substantial amount of confusion during that time and resolved (I think, lol) with the recovery of kidney function, infection and reduced fever. Hang in there, its gets better from my experience. All the best.
Jim
Diagnosed 11/2010
Partial cystectomy 1/11
R/C w/ neobladder 8/12
5 rounds cisplatin/gem 11/12-2/13
We are still waiting for Bobby to be sent to rehab so he can get his strength up to start walking again. He is eating well by himself without help from me to feed him. He can sit on the side of the bed with help getting there, but still cant stand or walk. Everyday is a little bit better. He still gets confused about where he is or why he is there and I was wondering if this is normal. The nurses and docs say it is normal with the type of “trauma” he went through with the infection and kidneys shutting down and the high fever so I guess I just have to be patient!
Around here….
We do a LOT of praying.
And sometimes those prayers are answered. And Sometimes they go unanswered. Sometimes God has plans of his own and we don’t find out until later.
George
Glad to hear the good news. I was Prayin for you.
Thank you God
Light a man a fire and he is warm for an evening.
Light a man ON fire and he’s warm forever.08/08/08…RC neo bladder
09/09/09…New Hip
=
New Man! [/size]
Bobby is doing so much better now…………..they have about got all the toxins out of his blood system now and he will be going to rehab this week we hope!
So if any of you have the same problems as Bobby did, remember to pray and have faith that your loved one will get better! ;)
Thank you for your prayers. I will keep you all posted! :)
That is a “good news” update! Wishing you and Bobby continued improvement every day.
Keep you both in my prayers and thoughts
Nancy
Nancy S
Ta CIS
dx Ta 11/06
dx Ta CIS 10/07
I have to tell you all that Bobby is doing so much better today, 1/24/2014. All his stats are excellent and his fever is gone! Praise the Lord and thanks for all the prayers. His infection is almost gone, but he is still having dialysis to continue getting rid of all the toxins. I have noticed today that he is a little disoriented and has asked me “why is he at this hospital and what happened?” I told him where he was and asked him “why did he think he was in this hospital and he said I guess I had a car wreck” I told him why he was there and about the operation and he said “Oh yeah”. I guess this is normal since they give him xanax for his anxiety. Let me know if anyone else has had any of these feelings and thanks again for the prayers!
Wow! I am so sorry to hear this! I was ALWAYS afraid of infection in the Hospital and I know that hospitals are the worst places for infection because EVERY kind of Germ is living there. But I have not heard of a Blood yeast infection. This is kinda new for me to hear.
I guess we have to start looking for clean hospitals or a clean protocol.
I know this is very hard for you to experience, and this infection is taking a toll on you both. I certainly hope they have it coming under control. WOW! i’m still reeling. The RC operation is a BIG Time operation indeed and there are so many variables here. There is always a chance for something to go wrong. I have a good friend who had the RC in Sept and was back in the hospital 2 times for infection and just had a second surgery to repair some scar tissue that was gumming up the works. He is very open and needs a place to vent. So he calls me and I listen to him. He is always saying “how come you didn’t have this complication?” I don’t know what to say other than, “I had other things that went wrong. So we are all different”
Please keep us informed and we will listen to your story. If anything comes to mind…… say it! We may have some ideas as you go through this.
Good Luck
George
Light a man a fire and he is warm for an evening.
Light a man ON fire and he’s warm forever.08/08/08…RC neo bladder
09/09/09…New Hip
=
New Man! [/size]
[quote=”bgj” post=45765]Bobby never got around to emailing you or calling you. He had his bladder and prostate removed 1/8/2014. He was up walking 1/9 and doing so well, and on 1/10 he spiked a fever of 103 and they tested everything to find out what was causing the fever or what the infection was. Finally 1/13 they found out it was a yeast infection in the blood stream! On 1/19 he had to be put on a breathing machine because he was in A fib because his heart rate was from 142-180 (racing) and his oxygen was dropping., his kidneys were failing and they ordered dialysis( 2 1/2 hours) which helped a lot. on 1/20 they did dialysis for 3 hours. on 1/21 they didn’t do any dialysis and his fever was 101, but came down to 98. Today is 1/22 and Bobby is still in the hospital! He will have dialysis again this evening and not again until Friday 1/24. Do you know anyone else who has had this horrible experience? I am going crazy worrying about him and not knowing what is going to happen next or if he will live or die! We have been married 39 years and I cannot see living without him. I need to know if I am looking at years of taking care of him which I can do or living without him! Thanks, Linda[/quote]
linda, I am thinking of you at this time – so hope he comes through this ok & you 2 can get on with your lives.
My hubby, also has to consider RC & woudl like to talk to someone whose been through it as well. It has all come as a bit of a shock to us.
God Bless
Maree
Bobby never got around to emailing you or calling you. He had his bladder and prostate removed 1/8/2014. He was up walking 1/9 and doing so well, and on 1/10 he spiked a fever of 103 and they tested everything to find out what was causing the fever or what the infection was. Finally 1/13 they found out it was a yeast infection in the blood stream! On 1/19 he had to be put on a breathing machine because he was in A fib because his heart rate was from 142-180 (racing) and his oxygen was dropping., his kidneys were failing and they ordered dialysis( 2 1/2 hours) which helped a lot. on 1/20 they did dialysis for 3 hours. on 1/21 they didn’t do any dialysis and his fever was 101, but came down to 98. Today is 1/22 and Bobby is still in the hospital! He will have dialysis again this evening and not again until Friday 1/24. Do you know anyone else who has had this horrible experience? I am going crazy worrying about him and not knowing what is going to happen next or if he will live or die! We have been married 39 years and I cannot see living without him. I need to know if I am looking at years of taking care of him which I can do or living without him! Thanks, Linda
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