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Ta High Grade new and confused
He did resection of tumor. Apparently scraped muscle because it was mentioned in the path report. It seemed clearly invasive by pathologist. It is NOT in situ. Urologist says we don’t proceed with treatments, just cytoscope every 3 months and see if it returns. I ask about BCG he says its to soon to consider anything else, just says this will be manageable.
I am now on ketosis diet that he recommended to me and has the heath coach in his office. She is one of those holistic, product sales type that calls bacon as healthy meat.
I asked about second opinion and he said it was a total waist of time. He said he would decide if that is important.
Help. My gut says there is something off. Any ideas?
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6 Replies
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From what I’ve learned, you should definitely be treated with BCG with high grade / NMI by AT LEAST the second TURB. That is just what I’ve learned.
Mine is apparently LG, and I have to kinda decide myself whether BCG is worth it, along with the uro’s guidance. Good luck. There is plenty of hope and grace out there for us. God bless.
Heavy Wine Hematuria: 7/28/2017
Original DX: LG/NMIBC 1.7×1.5x2cm
1st TURB on 9/12/17
1st Pathology Results on 9/25/17
1st Scope Recheck on 1/12/18
2nd TURB on 1/23/18
2nd Pathology on February 2/13/18 (TBD)
How does one find one that has a main focus in bladder cancer?
Thanks for responding,
As I said to Cynthia I am the one confusing people. Oh gosh, red face.
Ok it is a noninvasive Ta High Grade papillary irothelial carcinoma. What is the normal protacal for 3.5cm Ta High Grade after the first tumor resection?
You are right I meant to say non-invasive not invasve sorry I am spreading the confusion
My Father always said “If it doesn’t feel right, pay attention”. As far as invasive goes ta high grade is not invasive it is considered non muscle invasive. It sounds like you have confusion about your diagnosis. A second opinion is usually done in two different ways. They doctor wants one or the patient wants one. Your doctor is probably 100% ok but a second opinion is always wise when dealing with cancer. It doesn’t mean you are changing doctors it just means you are being careful. Where you go for your second opinion is important let us know what state you are in and we should have some thoughts. If possible seeing some one that has a main focus in bladder cancer is highly advisable. Please let us know how things move along for you and if you need us we are here.
Cynthia Kinsella
T2 g3 CIS 8/04
Clinical Trial
Chemotherapy & Radiation 10/04-12/04
Chemotherapy 3/05-5/05
BCG 9/05-1-06
RC w/umbilical Indiana pouch 5/06
Left Nephrectomy 1/09
President American Bladder Cancer Society
From your description of the path report and your urologist’s response to it, it would appear that your cancer is low grade and non-invasive. The usual protocol for dealing with such a diagnosis is to have cystoscopy every three months for about two years, every six months until 5 years have passed, and annually forever UNLESS it returns.
So your urologist’s plan is pretty standard.The path report mentioned the presence of muscle, since that indicates first that the urologist got a pretty good sample during the TURB and that there apparently was no sign of cancer in the muscle, which is good. Sometimes when no muscle is present in the biopsy samples it is necessary to do a second TURB to make sure.
As for the diet, that is for you to decide. IMHO, since it took years for whatever changes caused the cells in your bladder lining to become unstable and turn cancerous, it is a bit of a stretch to assume that diet will have any effect now. That is just MY biased opinion, and not a medical one!! Good nutrition is certainly good for everyone, if that is what is being recommended. If the recommendations include pricey supplements, I would run the other way.
As for a second opinion, that also is for YOU to decide. If your doctor decides that HE wants a second opinion on something that he might have questions about, then he can get one. IF on the other hand, you feel uncomfortable with what you are being told or unsure of the treatment options being presented, you can get a second opinion any time you want. Also, if you are not comfortable with a doctor for any reason, you should be free to find a different one. Not every doctor is right for every patient. You will be dealing with your urologist for years so you want one you have confidence in and you answers your concerns.
Even with all the “ifs” listed above, if I am summarized your path report correctly, you have about as good a diagnosis of bladder cancer as you can get.
Sara Anne
Diagnosis 2-08 Small papillary TCC; CIS
BCG; BCG maintenance
Vice-President, American Bladder Cancer Society
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