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Six Years Cancer Free :)
Had my first one year cystoscope July 29th, everything looked good, but I was waiting until the tests came back to say anything. The cytology was good, but it took 16 days before the FISH test came back….negative, so today I am one happy camper:)
Nancy
Nancy S
Ta CIS
dx Ta 11/06
dx Ta CIS 10/0718 Replies-
Nancy–
Haven’t been on the site for quite a while, so just caught up with your great news. Glad all is well, and all clear.
Ann
Small TA Grade 1, May-06; recur (2 tiny), same, June-08; TURBTs both times. BCG begun July-08, dosage to 1/3rd May-10, completed treatment December-11. All clear since 2008.
This is such wonderful news, Nancy! It is so good to know that BC can and does remain all clear!
Nancy
Two Weeks Late! That is my life now!
But 2 weeks is too long to wait to sayWooooooooooo Hoooooooooooo!! :cheer: :cheer: :cheer: :cheer: :cheer: :cheer: :cheer: :cheer: :cheer: :cheer: :cheer: :cheer: :cheer:
Happy faces all around. Good for you!
George
Light a man a fire and he is warm for an evening.
Light a man ON fire and he’s warm forever.08/08/08…RC neo bladder
09/09/09…New Hip
=
New Man! [/size]
Nix,
FWIW, my uro had me do 6 weeks on, 6 off, then 6 more and that was it. He reasoning was that BCG can cause serious problems as a cumulative protocol. He also studied under Dr. Lamm in San Antonio when he was there so he did deviate. Also, his reasoning is mine was caught early (small papillary tumor) so the lesson here is everyone is different.
Congrats again on 6 years!
DX 5/6/2008 TAG3 papillary tumor .5 CM in size. 2 TURBS followed by 6 instillations of BCG weekly with a second round of 6 after a 6 week wait.
Wow Joey, that is the first time I ever heard of that! Are you on any extra BCG?
Nancy S
Ta CIS
dx Ta 11/06
dx Ta CIS 10/07
Nancy I believe thar Dr. Lamn does additional BCG like every other year to keep the immune system on alert.
Joey
Thanks for the good wishes, Joey.It is funny you should ask that question. I never thought of that, until it was asked earlier in this thread if I was on any medication. At one time, my Uro actually said “no more BCG ever”, but since my bladder finally healed, I don’t think that would be a problem.
I have never read anything in the Protocol of continuing BCG after x number of years. But to be honest, after that question was asked about being on any medication, I thought maybe that would be a good idea. But thinking it through, why not wait, in case it is needed in the future?Nancy
Nancy S
Ta CIS
dx Ta 11/06
dx Ta CIS 10/07
Nancy excellent news. Has your URO ever discussed additional BCG in future years. My URO has advised that the 30 I received is it unless it would come back and then we could consider again.
Enjoy the great news.
Joey
Thanks for the info and I wish you continued good fortune!
CONGRATULATIONS! That is awesome news & a real encouragement for others!
Celebrate – you deserve it.
DH (Dear Hubby)…
Diagnosed: March 2013
TURBT (non-invasive, aggressive), CIS: April 2013
BCG began: May 2013
Completed initial BCG: July 2013
No, I am not on anything since my 24th BCG 2010. At that time my bladder was in bad shape. My Uro , then, did a lot of biopsies , and then with 19 BCG @ full strength, whew! It took two years for my bladder to heal. Changed Uro’s, doctor carefully treated my angry bladder and finally had relief.
24 BCG washes
24 months of healing from BCG and biopsies
6 years cancer free………..PRICELESS :)I am hoping to follow your great results!
Nancy S
Ta CIS
dx Ta 11/06
dx Ta CIS 10/07
Great News ! I hope your year 7 checkup is as good as mine FINALLY turned out to be after a “false Positive ” scare! Once again congratulations?
PS Are you still getting BCG or on any other protocol?
Yosarian
Nancy
I feel your Joy!
Thank you on behalf of all the others out there who are scared after hearing the word cancer and wondering if life does go on.
You have given them the hope that they need to fight!
HIP! HIP! HOOOOORAYYYY!
George
Light a man a fire and he is warm for an evening.
Light a man ON fire and he’s warm forever.08/08/08…RC neo bladder
09/09/09…New Hip
=
New Man! [/size]
Great news Nancy!! Hope you found time to celebrate that. I am really happy for you,
Diane
Woo Hoo, Nancy!!! Glad to hear your great news!!!
Anita
Anita
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