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Should I be Scared?
I had a TURBT done on Dec 23rd and they scheduled me for a radicl Cystectomy and a neo-bladder. The surgery is to be done this coming Monday the 27th. After the TURBT I experienced some token bleeding for about 2 weeks. Since then I saw no blood until today. Every trip to the bathroom today is showing bright red blood, not a lot but some showing each time. I talked to the hospital and they told me that as long as I don’t have a temp to just hang in there. I’m concerned and wonder if anyone here has experienced the same thing?
Thanks for this site, I’ve learned a bunch from all here.
John :unsure:
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8 Replies
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Also I seem to remember advice in other threads that it is good to chew gum as soon as you are able/allowed as it tends to stimulate the bowels as they begin to awaken.
Those of you more in the know, is that still good info???
Best wishes… CatherineTURBT 1/21/10 at age 55
Dx: T2aN0M0 Primary Bladder Adenocarcinoma
Partial Cystectomy 2/25/10
Vanderbilt Medical Center
Nashville, TN
Well then John, you my friend are set!
So funny you brought up Subic. I stayed there for some weekends when I was working in Manila. I was running a software company over there for a couple of years. Did a lot of diving in Subic Bay. Great diving for both wildlife and WWII wrecks.
I learnt Australia whilst living in Sydney in late 90s/early 2000s. :)
So on day two when you are feeling like a train hit you and laying in the bed looking at the ceiling thinking “No way am I going to get up and walk!”, you just think of those Aussies and of us and laugh a bit (not too much because that will hurt) and then get your butt out of bed and walk anyway! :)
Mike
Age 54
10/31/06 dx CIS (TisG3) non-invasive (at 47)
9/19/08 TURB/TUIP dx Invasive T2G3
10/8/08 RC neobladder(at 49)
2/15/13 T4G3N3M1 distant metastases(at 53)
9/2013 finished chemo -cancer free again
1/2014 ct scan results….distant mets
2/2014 ct result…spread to liver, kidneys, and lymph system
My opinions are my own and do not reflect the opinion of ABLCS or anyone else. I am not a doctor nor do I play one on TV.
Mike, my Doc has done a couple hundred of these and teaches it at the Universiry of Buffalo med school so I have faith in him. Now for the Aussie language. I was hoisting a few with them celebrating the Marine Corps birthday at Subic Bay in the Phillipines in 1960. One of them kept saying “I’m really getting pissed”. I kept asking why he was getting upset until we figured out that Aussie pissed = American drunk, lol. Ill keep you guys posted on everything from a laptop once I feel up to it.
John
John,
I had open surgery. I asked my surgeon about it and he recommended open. If your surgeon has done tons of these with the robot then by all means do it that way. If not, do it the way your surgeon is most comfortable. A little longer recovery time is better than a surgery that doesn’t go as well.
Keep in mind that my surgery was three years ago. My surgeon felt the jury was still out on the da Vinci robot for this particular surgery. Some hospitals put pressure on doctors to use it because it is a huge investment. At the same time, it is the latest technology and is less intrusive/invasive/traumatic on the body. The real key is how much experience does your particular surgeon have with using it.
Don’t wait until you are “thru all this” to be posting. We want to know how you are recovering, if you are walking like we told you, etc. Get somebody to login and keep us informed on your recovery. We will all be cheering for you. I was going to say rooting for you but I know all the Australians would start giggling to themselves as they have a different meaning for the word. :) (Those crazy Aussies!) :D
Mike
Age 54
10/31/06 dx CIS (TisG3) non-invasive (at 47)
9/19/08 TURB/TUIP dx Invasive T2G3
10/8/08 RC neobladder(at 49)
2/15/13 T4G3N3M1 distant metastases(at 53)
9/2013 finished chemo -cancer free again
1/2014 ct scan results….distant mets
2/2014 ct result…spread to liver, kidneys, and lymph system
My opinions are my own and do not reflect the opinion of ABLCS or anyone else. I am not a doctor nor do I play one on TV.
This is mainly a question for Mike. I’m having my surgery performed robot assisted. They say that the incisions are greatly reduced and the recovery time is reduced by 50%. I was wondering if your surgery was done in that manner? I’m down to less than 48 hours to be free from this beast but the questions just keep popping up. Again, what a wonderful site this is and thanks to all that contribute. Once I get thru all this I promise to keep coming back and hopefully add to the site.
John
John
I had the bleeding thing come back which is how we knew it had come back.
For me it was happening randomly for the month prior to my surgery.If you had any doubts about getting the bladder removed, this current bout with bleeding should help you realize that getting rid of the cranky thing is the right thing to do.
Good luck next week. You will be in our thoughts. When you think of us, get up and walk! :)
Mike
Age 54
10/31/06 dx CIS (TisG3) non-invasive (at 47)
9/19/08 TURB/TUIP dx Invasive T2G3
10/8/08 RC neobladder(at 49)
2/15/13 T4G3N3M1 distant metastases(at 53)
9/2013 finished chemo -cancer free again
1/2014 ct scan results….distant mets
2/2014 ct result…spread to liver, kidneys, and lymph system
My opinions are my own and do not reflect the opinion of ABLCS or anyone else. I am not a doctor nor do I play one on TV.
John… just wanted to add my good wishes on to what George said. We have all been scared witless at times throughout our journeys with BC, and I believe we would have to be superhuman for what we deal with not to scare us when BC shows its ugly side.
There is strength in numbers and you’ve got many supportive people here that care about you going into your surgery on Monday.
My very best wishes for saying goodbye to that nasty old bladder and moving on to cancer-free days!
Best wishes… CatherineTURBT 1/21/10 at age 55
Dx: T2aN0M0 Primary Bladder Adenocarcinoma
Partial Cystectomy 2/25/10
Vanderbilt Medical Center
Nashville, TN
John
I had bleeding after my TURB procedures and it was always present. I don’t know how much is going on there, but a small amount is probably not serious.You have only got 4 days until you are cancer free and we are all hoping for the best.
Good luck on Monday.George
Light a man a fire and he is warm for an evening.
Light a man ON fire and he’s warm forever.08/08/08…RC neo bladder
09/09/09…New Hip
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