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scared, concerned for my dad….
Hello all, Any advice/input is greatly appreciated. Last time I wrote my Father (age 55) had his second bladder scraping at Cleveland Clinic in Weston, Florida. The Dr. said the cancer appears to be in the muscle and for him to proceed with an Oncology appt. to start chemo prior to having the bladder removed.
After meeting with the Oncologist at Cleveland, my Father felt the Oncologist there was very wishy/washy and said quote “let me confer with Miami University, they are experts at this” When my Father heard that, he decided to go for a second opinion with a top notch Dr. at Univ. of Miami. The Dr. at Miami reviewed all his scans / slides and said to meet with his Oncologist and proceed with chemo prior to having the bladder removed.
The chemo would be an 8 week session, prior to starting the chemo my father contracted an infection (most likely from the 2nd scraping at Cleveland clinic, in which he was treated with antibiotics) also he was experiencing pain in his buttocks. The scan following the scraping showed a lymph node on his leg affected.
I have to vent and say prior to switching to Miami, my Father told Cleveland of the buttocks pain and they said he probably hurt himself…they didnt bother to investigate!!! I am baffled at this! 2nd, when calling Cleveland about the infection, they kept brushing him off, not returning phone calls. So sad, to think a top notch facility would service their patients in such a manner!
In the meantime, the new Oncologist told my Father to have more testing/scans since 2 months had passed since his last scraping and she was concerned with the pain in his buttocks. Each week it was more scans, more tests…..the chemo started the week of Christmas, more time going by with the bad bladder still in.
He went today to have another scan and they told him it would be another bone scan 3D- on the pelvic area. When he glanced at the paperwork it said possible MST bone. We go this Thursday to meet with the Oncologist to receive all the results from all the scans, he will be receiving his 3rd dose of chemo Thursday also. I am so worried and so concerned, it seems like this cancer is getting worse and the Doctors dont even seemed concerned,they Oncologist doesnt return calls and we have been waiting 3 weeks for results! All this time is going by and now and the cancer may have traveled. His original bone scan 3 months ago was clear. I am really scared, can someone please enlighten me that may have some information. My deepest gratitude.
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