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  • SC new Dx needs advice

    Posted by Cynthia on May 11, 2010 at 2:32 pm

    Received from a lady that needs quick information.

    My husband has a recent diagnosis of bladder cancer. The pathology report from the first biopsy shows 3 tissue samples. All 3 are high grade Two are invasive with “probable” into muscle wall. The 2nd doctor we went to see is in Charlotte, NC. He recommended a cystectomy. He did not feel it would be helpful to do another biospsy and delay the surgery for any length of time. Do we need to have another biopsy? Do we need to do this with some urgency?


    Cynthia Kinsella
    T2 g3 CIS 8/04
    Clinical Trial
    Chemotherapy & Radiation 10/04-12/04
    Chemotherapy 3/05-5/05
    BCG 9/05-1-06
    RC w/umbilical Indiana pouch 5/06
    Left Nephrectomy 1/09
    President American Bladder Cancer Society
    GKLINE replied 14 years, 9 months ago 5 Members · 4 Replies
  • 4 Replies
  • gkline's avatar

    gkline

    Member
    May 11, 2010 at 8:08 pm

    I’ve said this before. Follow Pat’s advice and see the Dr. she advises you to.
    I believe your origional Dr. is correct about the Cystectomy but you must have a 2nd opinion from a cancer center that knows about bladder cancer to be sure

    george


    Light a man a fire and he is warm for an evening.
    Light a man ON fire and he’s warm forever.

    08/08/08…RC neo bladder
    09/09/09…New Hip
    =
    New Man! [/size]

  • 's avatar

    Guest
    May 11, 2010 at 6:24 pm

    Did you take the slides with you for the second opinion? Thats a must do. Top man in N.C. is in Chapel Hill…DR. Raj Pruthi
    http://www.med.unc.edu/urology/faculty/pruthi
    pat

  • wsilberstein's avatar

    wsilberstein

    Member
    May 11, 2010 at 5:16 pm

    You’ll certainly want a second opinion and treatment at a major cancer center. Your second opinion should include a review of the slides by their pathologist; however, if the biopsy shows muscle invasion, cystectomy is the treatment of choice and an additional biopsy wouldn’t change that.


    -Warren
    TaG3 + CIS 12/2000. TURB + Mitomycin C (No BCG)
    Urethral stricture, urethroplasty 10/2009
    CIS 11/2010 treated with BCG. CIS 5/2012 treated with BCG/interferon
    T1G3 1/2013. Radical Cystectomy 3/5/2013, No invasive cancer. CIS in right ureter.
    Incontinent. AUS implant 2/2014. AUS explant 5/2014
    Pediatrician
  • cljjlk's avatar

    cljjlk

    Member
    May 11, 2010 at 4:17 pm

    I really feel inadequate to give advice for this post, but I will state what I would do if I was in their shoes knowing what I know now. Before I allowed anyone to remove one of my organs, I would want at least a second opinion. In addition, if I was being told that the tumors were invasive and also high grade, I would be contacting the nearest cancer center that deals with bladder cancer immediately. Patricia will be able to provide a center that is close and most likely a physician’s name. Bottom line, I would be getting a second opinion and biopsy (if necessary) ASAP. I wish them the best and hopefully they will come back here for our support.


    dx – Aug 2005
    Five reoccurences (last 12/09 Ta high grade)
    BCG Started 10/09 (2 6wk treatment)
    BCG Maintenance started 4/10

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