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Re:New Diagnosis Stage 1 grade 2-3 TCC – Scared Silly
Hi there, this is the first time I have posted on this wonderful site.(I have been lurking as I felt rather shy to join in, oh well here goes.) I am from Israel. I have been following Al’s posts and I feel that he will cope.
In the beginning it is a shock, but we mustn’t give up.
We must look at bladder cancer as a setback and definitely not as a defeat.My husband was diagnosed over two and a half years ago with BC.Complete bladder and prostate removal, after chemo. Unfortunately after 20 months,it is now metastatic BC as earlier this year, following PET CT, a few cells were found in his stomach and one or two lymph nodes also.
Hubby takes this in his stride and is a fighter. He doesn’t tell anyone what has happened to him,(not even his close family) Throughout the treatments he continued to play tennis and swimming. Unbelievable isn’t it..
Hubby is coping beautifully with his stoma, chemo and radiation treatments. (he completed 25 radiation treatments end of September).Mid December he will do another CT and I am sure all will be fine. He is putting on weight again and his bloods are really great. We take each day as it comes and we plod on really enjoying our grandchildren and life in general. I am 68 and hubby is 71.
We even managed a two week holiday in the UK between Chemo and Radiation treatments.My heart goes out to Allan as I’m sure he is scared, but once he has got over the first hurdle he will realize that he will pull through with flying colours.
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10 Replies
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Danielle…I know exactly how you feel about this board. 5 years ago I was scared to death and then I found this group. No one knows us like we know each other. It was such a comfort to know there was someone who had gone before you and had words of encouragement and hope for the future. Everyone is so kind and caring. We are very lucky to have found each other.
Blessings….Jean -
//About those cream buns…sound fabulous.//
Hi Anita, I can assure you, they are very good for stress comforting ;) (and in addition cushioning the ‘derriere’):)
Thanks Anita for your few words. I hope to post here often and keep you all informed of hubby’s progress. We don’t get out as much as we use to do, probably because we are both exhausted at the end of the day. (Small grandchildren to take care of)I spend more time on my PC now, usually searching for information about BC.
I am really glad I took those first steps to join you lovely people at ABCS. You have no idea what a blessing this group is,thank you.
Bless, Danielle
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Danielle,
About those cream buns…sound fabulous.
Anita (Doug’s wife)
Anita
Forum Moderator
Caregiver
//Welcome to our site! You are a wonderful poster and we welcome you to ANY discussion here. You have a Great experience to share with others.//
Thank you George, flattery will get you everywhere… ;)
Danielle
Danielle
The Caregiver is the one with the Heaviest Burden of all. But… You already know that, don’t you? As a patient, I was in control of my life. My wife had the tough job of answering al the questions and keeping up appearances. She also did the most worrying for both of us.
Your husband has the right attitude. But I found, It eased my wife’s burden a little when I told my friends about the cancer. They were able to stop gossiping and realize I was Not going to die. It might work for you too. Sometimes the rumors are worse than the facts.
Welcome to our site! You are a wonderful poster and we welcome you to ANY discussion here. You have a Great experience to share with others.
You now know that we don’t bite. Maybe others will follow your lead and come into the discussion. Every point of view is welcome.
George
Light a man a fire and he is warm for an evening.
Light a man ON fire and he’s warm forever.08/08/08…RC neo bladder
09/09/09…New Hip
=
New Man! [/size]
I couldn’t believe it myself sometimes.Hubby’s tennis mates keep asking me if he is OK and I keep up the charade for hubby’s sake. Its his way of dealing with BC and quite honestly, who am I to take that away from him.
He told his tennis mates he had prostate problems, not a word about the bladder.
Hubby’s oncologist is so pleased with his positive outlook and he really is an example to anyone who feels they can’t cope.
Of course he has his down days, but that is shown only to me and its hard sometimes that I can’t share it with my girlfriends.My three children know of course, but I don’t need to burden them too much, they have their own families to care about.During his recent chemo,hubby’s hemoglobin level dropped dangerously low and he had to have two blood infusions at our local hospital. We bumped into some friends there and he tried to avoid speaking with them, but in the end they caught up with us and I said it was me who was under the weather….(people are sometimes tactless and ask many personal questions.)
Anyway, to those other carers out there, my heart goes out to you too. Its not an easy task and sometimes we are inclined to neglect our own health issues…(I was dragged over the coals last night by my GP, who said my cholesterol levels are through the ceiling.)Back to my non-fat diet and no more cream buns..
Anyway the important thing is we must keep a positive outlook 24/7. Worrying about the future is not going to let us enjoy the present.
Danielle….Welcome. You have come to the right place. The help and encouragement from all these wonderful warriors is such a comfort. You sound like a wonderful team with a great attitude.
Blessings…..Jean
Danielle,
It is QUITE impressive that your husband was able to swim and play tennis throughout his treatments. Sounds like you both are fighting this and continuing to enjoy life and your family. :)
Anita
Forum Moderator
Caregiver
You had posted under another posting but I wanted to give you your own post so we could welcome you two. You both sound like you are handling a difficult situation as well as anyone could. This is a great place to be helped and help other on their journey. I am sorry you have to be with us but welcome to our community.
Cynthia Kinsella
T2 g3 CIS 8/04
Clinical Trial
Chemotherapy & Radiation 10/04-12/04
Chemotherapy 3/05-5/05
BCG 9/05-1-06
RC w/umbilical Indiana pouch 5/06
Left Nephrectomy 1/09
President American Bladder Cancer Society
Welcome Danielle. Thanks for your wonderful post. I love the thought that it is a setback and not defeat. I hope to see you in the forum often sharing your hard earned insights and wisdom. My best to you both…
Catherine
Best wishes… CatherineTURBT 1/21/10 at age 55
Dx: T2aN0M0 Primary Bladder Adenocarcinoma
Partial Cystectomy 2/25/10
Vanderbilt Medical Center
Nashville, TNSign In to reply.
