You have discovered the nasty little secret of low-grade bladder cancer. It likes to return. The usual protocol is NOT to treat upon first diagnosis….sometimes it doesn’t come back…but to save that for later if it continues to return. The patient is scheduled for frequent cystoscopies, as you have been.
Whether now is the time to consider BCG (the usual treatment for recurrent low-grade tumors) or just to remove them and do another three months of waiting for another cystoscopy is the question. Not being a urologist, I don’t know the answer to that. There has been a shortage of BCG, which is probably why your urologist suggested mitomycin.
Is it possible to switch to a doctor at one of the hospitals you had a second opinion from? Emory?)
Sara Anne
Diagnosis 2-08 Small papillary TCC; CIS
BCG; BCG maintenance
Vice-President, American Bladder Cancer Society
Forum Moderator
Just a quick suggestion. Make notes NOW of what you want to ask/know and take it with you. Our minds do NOT work well under stress or when we need to think quickly (ask me how I know!)
Sara Anne
Diagnosis 2-08 Small papillary TCC; CIS
BCG; BCG maintenance
Vice-President, American Bladder Cancer Society
Forum Moderator
Cookies are used to ensure the best experience on our website. You must accept the Cookie Policy to create a forum post or to load the Contact Us form. If you do not accept the Cookie Policy, you cannot create an account, Sign In to the forum, or load the Contact Us form.
Functional
Always active
The technical storage or access is strictly necessary for the legitimate purpose of enabling the use of a specific service explicitly requested by the subscriber or user, or for the sole purpose of carrying out the transmission of a communication over an electronic communications network.
Preferences
The technical storage or access is necessary for the legitimate purpose of storing preferences that are not requested by the subscriber or user.
Statistics
The technical storage or access that is used exclusively for statistical purposes.The technical storage or access that is used exclusively for anonymous statistical purposes. Without a subpoena, voluntary compliance on the part of your Internet Service Provider, or additional records from a third party, information stored or retrieved for this purpose alone cannot usually be used to identify you.
Marketing
The technical storage or access is required to create user profiles to send advertising, or to track the user on a website or across several websites for similar marketing purposes.
To provide the best experiences, we use technologies like cookies to store and/or access device information. Consenting to these technologies will allow us to process data such as browsing behavior or unique IDs on this site. Not consenting or withdrawing consent, may adversely affect certain features and functions.
Functional
Always active
The technical storage or access is strictly necessary for the legitimate purpose of enabling the use of a specific service explicitly requested by the subscriber or user, or for the sole purpose of carrying out the transmission of a communication over an electronic communications network.
Preferences
The technical storage or access is necessary for the legitimate purpose of storing preferences that are not requested by the subscriber or user.
Statistics
The technical storage or access that is used exclusively for statistical purposes.The technical storage or access that is used exclusively for anonymous statistical purposes. Without a subpoena, voluntary compliance on the part of your Internet Service Provider, or additional records from a third party, information stored or retrieved for this purpose alone cannot usually be used to identify you.
Marketing
The technical storage or access is required to create user profiles to send advertising, or to track the user on a website or across several websites for similar marketing purposes.