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Radical cystectomy
I am 78 years old and may have to have a radical cystectomy. I am very nervous, and was hoping someone could help lessen my fear about the surgery and outcome.
Thank you.
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8 Replies
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thank you very much.
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George: I agree with you but also understand the site concerns. And, yes I have read all the posts including Sara Anns. And if any moderator is reading this, is there a way to get to private mode to exchange information? Appreciate the site and the assistance and certainly the information exchange, but some things are just best not put “out there” on a public forum.
Anyway, I’ll check in periodically and try to help as I can. Blessings,
giff (mystri) -
That’s too bad, was looking forward to hearing all about it. I got a response saying that I couldn’t give out personal info. on this site due to confidential and liability concerns, so don’t even know if you got my last message. I had given you my email address. I guess I can understand their concern, but wish that they would have a way to let members communicate if both are willing. Anyway, I appreciate the info. that I did receive from you. I have been bleeding a lot since my last turpt, and waiting for the doc. to call.
Thanks again, hope to hear more from other members as well.
Have a good day.
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So, did recipient still get my message?
Thank you.
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Well George I just wrote half a novel to you and I have no clue where it went. I’m not familiar with the mechanics of this site and manage to mess it up pretty easy. Anyway I didn’t jump through all the hoops you did. I knew when my cancer was discovered that it would be chemo and surgery. And to answer we chose the ileal conduit based on the advice of several due to age and physical condition. You will be making several decisions over the next few months and just when you think you have it figured out, you realize you don’t. No worries, plenty of folks around to help. And find a group in your local hospital .. You’ll be welcomed and learn much from the members.
Good luck and if we can figure out how to share info outside the forum so as not to take up their space and time, we’ll continue the conversation.
Best of luck,
giff ( mystri) -
George9, I am sorry but I needed to remove your personal address from your post. We do not allow such information to be posted for confidentiality and liability issues on the advice of our attorneys.
Sara Anne
Diagnosis 2-08 Small papillary TCC; CIS
BCG; BCG maintenance
Vice-President, American Bladder Cancer Society
Forum Moderator
Thank you for replying, and so glad that you are doing well. I have had 4 turpts plus bcg and interferon, but it still comes back. Did you have any serious complications, and what type of diversion did you choose? I am in the Boston area. .
Hey George .. just thought I would jump in here .. we are the same age so fully understand your situation. I underwent this procedure along with removal of my prostate in June 2018. I won’t tell you it is a piece of cake because it certainly isn’t. But it is manageable. Being an old military guy, the term we used a lot applies; adjust and adapt. And you will be doing a lot of that.
Anyway just wanted to touch base and let you know that you are not alone in the fight. Feel free to contact me any time and there are several folks on this forum that will assist you. Good luck snd Blessings,
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