Home Forums All Categories Muscle Invasive Bladder Cancer Questions about mucus in neobladder

  • Questions about mucus in neobladder

    Posted by MBourne on May 2, 2010 at 10:02 pm

    Thanks to everyone who gave me support before my bladder cancer surgery. I am now 2 weeks post surgery and seem to be doing great. I have been able to eat just about anything I was before only in smaller quantities. I am walking about a half block twice daily. The catheter is still in, but is scheduled to come out later this week. The mucus is definitely increasing now and we are having to flush 2-3 times a day. Are there certain foods that might be contributing to the increase in mucus? I was only flushing once a day for the first 10 days, but now I notice the cath gets blocked up if I don’t flush more often.
    My other question is about the flushing after the cath comes out. I know I will be learning the technique when it does come out, but it is curious how so much “egg drop soup” will be able to make it through a smaller opening!

    humpy replied 14 years, 2 months ago 5 Members · 6 Replies
  • 6 Replies
  • humpy

    Member
    May 6, 2010 at 10:47 am

    Professor Mike-n-stien
    I find that Tanqueray and Squirt is far superior to reducing mucous
    but, it is hard to find an establishment that has Squirt anymore.
    So I settle for tonic.


    Age 54
    T1NOMX,Grade 3 Urothelial CIS (Carcinoma in Situ)
    Neobladder 5/19/2009
    Prostate Capsule Sparing
    U of M Hospital, Ann Arbor, Michigan
  • mmc

    Member
    May 6, 2010 at 6:50 am

    Through diligent research I have discovered that gin and tonic can greatly reduce mucous. I can only attest to Tanqueray and tonic with a bit lime. You will need to do your own experiments for other brands. :)

    Mike


    Age 54
    10/31/06 dx CIS (TisG3) non-invasive (at 47)
    9/19/08 TURB/TUIP dx Invasive T2G3
    10/8/08 RC neobladder(at 49)
    2/15/13 T4G3N3M1 distant metastases(at 53)
    9/2013 finished chemo -cancer free again
    1/2014 ct scan results….distant mets
    2/2014 ct result…spread to liver, kidneys, and lymph system

    My opinions are my own and do not reflect the opinion of ABLCS or anyone else. I am not a doctor nor do I play one on TV.
  • Guest
    May 3, 2010 at 5:21 pm

    I would agree with KC. I also notice that if I’m starting with an infection the mucous builds up too. I was only advised to flush the neobladder for a short while after surgery.

    Betsy Mae

  • kcnorthstar

    Member
    May 3, 2010 at 4:38 pm

    I am almost 4 years out with a neobladder and mucus is less now than it was the first year or so. The only time I notice mucus now is if I get dehydrated. I have never noticed what I eat or drink making a differance in mucus other that drinking enough liquids to stay well hydrated.

    KC


    Age 59
    DX Jan 2006 – T1B G3
    RC – Neobladder June 2006
  • humpy

    Member
    May 3, 2010 at 10:33 am

    Welcome to “the other side!”

    All I can recommend is drink, drink, drink.
    I drink a minimum of 64oz’s of water & 16oz’s of cranberry juice a day.
    It does seem to help thin the mucus. Also I take Zantac (for heartburn) as perscribed by my surgeon, which has proved to thin mucus as well.
    I have heard that cranberry pills may help also.
    I am a about a year post op. for some reason i thought the mucus would be behind me, but it’s not. No big deal. Still a small price to pay for life.

    So drink, drink, drink. Walk, walk, walk.

    Jim


    Age 54
    T1NOMX,Grade 3 Urothelial CIS (Carcinoma in Situ)
    Neobladder 5/19/2009
    Prostate Capsule Sparing
    U of M Hospital, Ann Arbor, Michigan
  • mmc

    Member
    May 2, 2010 at 10:25 pm

    Glad to hear you are doing so well so fast! That’s great.

    Some folks have found different things increase mucous but I haven’t seen much difference one way of the other (for me).

    Once the cath is out, you shouldn’t have to worry. It will drain out. Mucous is viscous so it will manage to come out of the opening available. :)

    Keep up the walking. All the best for a continued great recovery.

    Mike


    Age 54
    10/31/06 dx CIS (TisG3) non-invasive (at 47)
    9/19/08 TURB/TUIP dx Invasive T2G3
    10/8/08 RC neobladder(at 49)
    2/15/13 T4G3N3M1 distant metastases(at 53)
    9/2013 finished chemo -cancer free again
    1/2014 ct scan results….distant mets
    2/2014 ct result…spread to liver, kidneys, and lymph system

    My opinions are my own and do not reflect the opinion of ABLCS or anyone else. I am not a doctor nor do I play one on TV.

Log in to reply.