• DougG's avatar

    DougG

    Member
    May 13, 2014 at 12:00 am

    KWhite,

    I don’t think you will be taken off BCG due to a bladder infection. You might ask your doctor about cutting the dosage.

    Anita


    Anita
    Forum Moderator
    Caregiver
  • anneh's avatar

    anneh

    Member
    May 12, 2014 at 9:03 pm

    The same thing happened to me on my 5th week of BCG treatment my urine turned cloudy but they still did the last treatment.

    To tell you not to worry is silly because with this crazy disease we all worry. I go for my first cysto next Tuesday and I’m scared as hell to get the results. Whatever it is I will deal with it, we have no choice. Remain positive, I’m sure it will be okay.

    Let us know how it goes, I will check back often for your update.

    Anne

  • Kwhite65's avatar

    Kwhite65

    Member
    May 12, 2014 at 1:57 am

    I called the doctor today because the burning had gotten worse and my urine had turned cloudy. He says that I probably have a urinary tract infection. So he prescribed antibiotics. I’m scared that because of the UTI it might be the end of my BCG treatments. Has this happened to anyone else?

  • Kwhite65's avatar

    Kwhite65

    Member
    May 11, 2014 at 4:46 am

    I just had my first BCG treatment less than 2 days ago. The worst has been the frequency and the burning. After my next I’m gonna try the water 15min before urinating and drinking water that night. Hopefully it will make a difference. Thanks

  • anneh's avatar

    anneh

    Member
    March 27, 2014 at 11:27 pm

    I’ve just completed my fourth of six BCG treatments, first two I had flu like symptoms and fregency but nothing I couldnt handle. The third treatment same but added to that was burning and some bleeding. The fourth I followed what I did on the first two which was fifteen minutes before it was time to urinate I drank several bottles of water and an additional one through the night. I had no burning and no bleeding just felt funky the first 24hours.

    Good luck with your treatment I was prepared for the worst and honestly it was nothing I couldn’t handle.

    Anne

  • joey's avatar

    joey

    Member
    March 17, 2014 at 5:44 pm

    Mike, I was DX in November 2007 with a low grade tumor. During my initial follow up after 6 BCG treatments one pathologist said I had a recurrence of focal CIS. both the cytology and Fish tests were negative and several other pathologist said I had displasia.

    Over the next several years I have had a total of 30 BCG treatments with no recurrences. So I am 6.5 years from dx and 6 years from my recurrence. My recent cysto was good and scheduled for next cysto January 2015.

    Joey

  • nix's avatar

    nix

    Member
    March 15, 2014 at 2:23 am

    Good luck Mike. It is definitely a journey …not a sprint:)
    If all goes well along the way, you really don’t think about the bladder cancer all the time (I know it seems impassive to you right now)
    Before my yearly cystoscope I am very nervous

    Namcy


    Nancy S
    Ta CIS
    dx Ta 11/06
    dx Ta CIS 10/07
  • raider's avatar

    raider

    Member
    March 15, 2014 at 1:41 am

    That’s awesome Nancy, thanks for taking the time to reply. it is something I guess that will always be in the back of your mind but a once a year cystoscopy is not such a bad thing. I have many BCG treatments to go, going in for my second next Tuesday.

    Regards,
    Mike

  • nix's avatar

    nix

    Member
    March 14, 2014 at 8:21 pm

    I was dx’d with CIS 2007. I did 23 BCG washes over a two year period. Although bladder cancer can and does return in some cases, the further out one gets “clear ” cystoscope and CT scans, I was told the odds are more in my favor of staying cancer free.
    There have been cases on here that have re-appeared as long as 10 yrs. later. That is why we continue to be screened.

    I do consider myself Cancer free after 6 1/2 years because as of my last check up I am! :)

    Nancy


    Nancy S
    Ta CIS
    dx Ta 11/06
    dx Ta CIS 10/07
  • raider's avatar

    raider

    Member
    March 14, 2014 at 8:14 pm

    That’s great Sara Anne, I’m hopeful for the same reults down the line.

  • sara.anne's avatar

    sara.anne

    Member
    March 14, 2014 at 8:01 pm

    I sure hope so!!! I am six years out (almost) and haven’t had a recurrence!!

    Sara Anne


    Diagnosis 2-08 Small papillary TCC; CIS
    BCG; BCG maintenance
    Vice-President, American Bladder Cancer Society
    Forum Moderator
  • raider's avatar

    raider

    Member
    March 13, 2014 at 1:52 am

    Question: With CIS can you “ever” be considered cancer free?

  • rbmc's avatar

    rbmc

    Member
    March 10, 2014 at 9:40 pm

    Hi, and welcome. Glad you finally got a proper diagnosis, although one not most welcome to hear. And starting with a topic I can relate to. The treatment is good. I had 3 surgeries prior to starting BCG. Been thru the 6X routine twice, and the 3X maintenance twice. It’s working. Good luck with your BCG. You’ll probably find it more annoying than any serious side effects, and that’s just for one day. But do report any wild abnormalities to the doctor, just in case. Normal may be pain, burning, bleeding, frequency, and fatigue. Hold it in there! And do the disinfecting routine. Come back, and start a new topic for your updates.

  • raider's avatar

    raider

    Member
    March 10, 2014 at 5:58 pm

    Thanks Sara Anne!

    This is a nice site to join and see what others are experiencing. I will update my progress as I go and will follow others as well.

    Regards,
    Mike

  • sara.anne's avatar

    sara.anne

    Member
    March 10, 2014 at 5:51 pm

    Welcome to a group you did not want to join! You seem to have done your homework and are headed the right way with BCG. It IS the treatment of choice for CIS!
    BTW, CIS is sort of like a rash on the surface of the bladder and would be more than difficult to remove. Which is why so many of us are grateful for BCG.

    Let us know how you are doing!

    Sara Anne


    Diagnosis 2-08 Small papillary TCC; CIS
    BCG; BCG maintenance
    Vice-President, American Bladder Cancer Society
    Forum Moderator
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