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KWhite,
I don’t think you will be taken off BCG due to a bladder infection. You might ask your doctor about cutting the dosage.
Anita
Anita
Forum Moderator
CaregiverThe same thing happened to me on my 5th week of BCG treatment my urine turned cloudy but they still did the last treatment.
To tell you not to worry is silly because with this crazy disease we all worry. I go for my first cysto next Tuesday and I’m scared as hell to get the results. Whatever it is I will deal with it, we have no choice. Remain positive, I’m sure it will be okay.
Let us know how it goes, I will check back often for your update.
Anne
I called the doctor today because the burning had gotten worse and my urine had turned cloudy. He says that I probably have a urinary tract infection. So he prescribed antibiotics. I’m scared that because of the UTI it might be the end of my BCG treatments. Has this happened to anyone else?
I just had my first BCG treatment less than 2 days ago. The worst has been the frequency and the burning. After my next I’m gonna try the water 15min before urinating and drinking water that night. Hopefully it will make a difference. Thanks
I’ve just completed my fourth of six BCG treatments, first two I had flu like symptoms and fregency but nothing I couldnt handle. The third treatment same but added to that was burning and some bleeding. The fourth I followed what I did on the first two which was fifteen minutes before it was time to urinate I drank several bottles of water and an additional one through the night. I had no burning and no bleeding just felt funky the first 24hours.
Good luck with your treatment I was prepared for the worst and honestly it was nothing I couldn’t handle.
Anne
Mike, I was DX in November 2007 with a low grade tumor. During my initial follow up after 6 BCG treatments one pathologist said I had a recurrence of focal CIS. both the cytology and Fish tests were negative and several other pathologist said I had displasia.
Over the next several years I have had a total of 30 BCG treatments with no recurrences. So I am 6.5 years from dx and 6 years from my recurrence. My recent cysto was good and scheduled for next cysto January 2015.
Joey
Good luck Mike. It is definitely a journey …not a sprint:)
If all goes well along the way, you really don’t think about the bladder cancer all the time (I know it seems impassive to you right now)
Before my yearly cystoscope I am very nervousNamcy
Nancy S
Ta CIS
dx Ta 11/06
dx Ta CIS 10/07That’s awesome Nancy, thanks for taking the time to reply. it is something I guess that will always be in the back of your mind but a once a year cystoscopy is not such a bad thing. I have many BCG treatments to go, going in for my second next Tuesday.
Regards,
MikeI was dx’d with CIS 2007. I did 23 BCG washes over a two year period. Although bladder cancer can and does return in some cases, the further out one gets “clear ” cystoscope and CT scans, I was told the odds are more in my favor of staying cancer free.
There have been cases on here that have re-appeared as long as 10 yrs. later. That is why we continue to be screened.I do consider myself Cancer free after 6 1/2 years because as of my last check up I am! :)
Nancy
Nancy S
Ta CIS
dx Ta 11/06
dx Ta CIS 10/07That’s great Sara Anne, I’m hopeful for the same reults down the line.
I sure hope so!!! I am six years out (almost) and haven’t had a recurrence!!
Sara Anne
Diagnosis 2-08 Small papillary TCC; CIS
BCG; BCG maintenance
Vice-President, American Bladder Cancer Society
Forum ModeratorQuestion: With CIS can you “ever” be considered cancer free?
Hi, and welcome. Glad you finally got a proper diagnosis, although one not most welcome to hear. And starting with a topic I can relate to. The treatment is good. I had 3 surgeries prior to starting BCG. Been thru the 6X routine twice, and the 3X maintenance twice. It’s working. Good luck with your BCG. You’ll probably find it more annoying than any serious side effects, and that’s just for one day. But do report any wild abnormalities to the doctor, just in case. Normal may be pain, burning, bleeding, frequency, and fatigue. Hold it in there! And do the disinfecting routine. Come back, and start a new topic for your updates.
Thanks Sara Anne!
This is a nice site to join and see what others are experiencing. I will update my progress as I go and will follow others as well.
Regards,
MikeWelcome to a group you did not want to join! You seem to have done your homework and are headed the right way with BCG. It IS the treatment of choice for CIS!
BTW, CIS is sort of like a rash on the surface of the bladder and would be more than difficult to remove. Which is why so many of us are grateful for BCG.Let us know how you are doing!
Sara Anne
Diagnosis 2-08 Small papillary TCC; CIS
BCG; BCG maintenance
Vice-President, American Bladder Cancer Society
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