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Plasmacytoid Urothelial carcinoma
Yesterday (3/28/17) we received the phone call of the lab report from my Husband’s RC on 3/16/17.
Plasmacytoid Urothelial Carcinoma – agressive. It was in 13 of the 36 lymph nodes removed and tested.
We are so scared.
We have to wait until 5/3/17 for CT Scans, Ultrasound, Blood drawn and meeting with Oncologist Team.
The waiting is torturous & miserable. Need distraction ideas, support.
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4 Replies
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Hope your feeling better lotech35!
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Thank you Cynthia. Wmy husband is seeing a. Team of Oncologist s and Urologist at University of Michigan in Ann Arbor. They were our 2nd opinion. They reacted swiftly for us. But this waiting 8 weeks from surgery is hard.
We are focusing on nutriton and walking.
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The news is always the worse next to waiting
I know. But at least knowing they can get a strategy! I had a bad reaction to my chemo and am still in the hospital as i write. But HOPE, is a powerful thing gotta just keep trying my Friend.
Diagnosed Sept 2015 noninvasive
1st turbt Oct 3 2015, 2nd turbt Nov 13 bladder,
Completed 6 BCG initial treatments 01/11/16 02/09/16 No Cancer!
08/09/16 Cyto shows red spots on bladder, TURBT prostate scheduled
09/12/16 Cancer is back Ta prostate ,T1 high grade bladder papillary uthelial.
Cancer has invaded muscle getting RC.
djb,
I am sorry you didn’t hear better news. You are dealing with a very rare form of bladder cancer. I do not know what your situation is but if you are able I would strongly advise you seek a second opinion from NCI your contact there would be
Piyush K. Agarwal, MD
Head, Bladder Cancer Section
Urologic Oncology Branch
National Cancer Institute, NIHThey are in Bethesda MD. and have a very impressive team, if you are interested please email me and I will send you the exact contact information for his office. [email protected].
As for distraction do things you enjoy and concentrate on getting into the best shape you can before treatment starts it will give you a leg up. With doctors help and permission, proper nutrition and exercise, even just walking will help.
Remember we are here for you.
Cynthia Kinsella
T2 g3 CIS 8/04
Clinical Trial
Chemotherapy & Radiation 10/04-12/04
Chemotherapy 3/05-5/05
BCG 9/05-1-06
RC w/umbilical Indiana pouch 5/06
Left Nephrectomy 1/09
President American Bladder Cancer SocietySign In to reply.