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  • Pet Peeves on Support Group

    Posted by heather79 on September 30, 2016 at 5:14 pm

    I started attending a support group facilitated by The American Cancer Society/Hope Club (used to be known as Gilda’s Club). First few weeks were great, met a nice group of people at different stages, all but me were breast cancer.

    Then last week we had a “new” member (she comes on and off apparently, none of us there remembered her) so she asked the ice breaker question “What brings you here?” I’m sure she’s a nice person outside of cancer, and might be coming from a place of anger (just ended chemo for breast cancer, cue ball bald, and all sorts of side effects), she still went out of her way to make me feel “not cancerous” enough! Like it’s my fault that I won’t have systemic chemo. It’s my fault my tumor was smaller than hers and in a different place.

    Does anyone else ever get that static? That because we might not look “cancer sick” as soon as they do, somehow we’re a lesser cancer?

    Heather Diagnosed 5/25/2016 First cysto and TURBT 5/23/2016 Nephrostomy placement 5/24/2016 Second cysto and TURBT 6/20/2016 Papillary urothelial carcinoma, mostly low grade No stromal invasion, no metastasis Original tumor size (by CT): 7.3 cm x 4.8 cm x 4.8 cm Starting BCG 8/21/2016


    Heather
    Dx 5/25/2016, First cysto and TURBT 5/23/2016, 2nd cysto and TURBT 6/20/2016, Original tumor size (by CT): 7.3 cm x 4.8 cm x 4.8 cm, BCG 8/31/2016-10/12/2016,
    Cysto 11/15/2016: Recurrence :(, TURBT (#3) 12/5/2016, BCG x 3 weeks, off 1 week x 1 year (end Jan 2018)
    Cysto 4/5/17: NED!!
    dieseldoc replied 8 years, 6 months ago 5 Members · 4 Replies
  • 4 Replies
  • dieseldoc's avatar

    dieseldoc

    Member
    October 4, 2016 at 8:20 pm

    Well put G!! This is not a competition. If it was i would rather be last


    T1,NO,MO battling bladder cancer since 2005
  • gkline's avatar

    gkline

    Member
    October 4, 2016 at 1:42 pm

    cancer is cancer is cancer.

    Wow!

    But we don’t have pink ribbons.

    If it makes them feel better, or helps them in any way….. they can have it.

    I am happy to be alive and if I didn’t have a Headline cancer….. so what!
    I’m not showing my scar to anyone anyway.

    My dad has told his friends that I had a slight cancer issue. I think it makes him worry less about me. And that is a very good thing indeed. At 90 years, he does not need to have another thing to worry about.

    Keep your chin up and remember….. In the end, We Are ALL Survivors!

    George


    Light a man a fire and he is warm for an evening.
    Light a man ON fire and he’s warm forever.

    08/08/08…RC neo bladder
    09/09/09…New Hip
    =
    New Man! [/size]

  • DougG's avatar

    DougG

    Member
    October 2, 2016 at 2:50 am

    Heather,
    I can feel my blood pressure shooting up after reading what that lady did to you. Somehow breast cancer gets ALL the attention. I’m going to stop. Hugs to you!!! Bladder cancer sucks too.


    Anita
    Forum Moderator
    Caregiver
  • active-mom's avatar

    active-mom

    Member
    October 1, 2016 at 1:56 pm

    I suppose every cancer patient has a different journey both mental, emotional and physical, your body your cancer regardless where it’s at, it’s yours and you own it. No one can minimize it but you. Are there “better” cancers to have? Sure but it’s still that nasty word CANCER. Everyday you wake up is a blessed new day to conquer new challenges of this thing we call life…..good luck.

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