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  • Muscle Invasive Bladder Cancer

    Pathology is back

    Posted by Cynthia on February 6, 2009 at 9:11 pm

    Start of Discussion
    0 of 0 replies June 2018
    Now

    I am sorry this has taken so long to get out but I am just now starting to rejoin the land of the living again. The surgery was a little more than I had bargained for once they got in they found that some of my stoma had dead tissue attached to it as well as was being obstructed by scar tissue. So it had to be reconstructed as well as the left kidney and ureter removed. There is some good news attached to all of this however. The pathology came back and there is no new cancer the finding was xanthogranulomatous pyelonephritis (XGP) and diffuse fibrosis. This is a very rare type of infection of the kidney about 1% that could only be cured by removal of the kidney trigged by the ureter being blocked by scar tissue and causing the kidney not to be able to drain correctly. All the scaring may be from the extensive pelvic radiation during my tratetment. The other good news is that quite possibly the correction to my stoma will take care of the sever metabolic problems I have been having and that the chronic pain I have had was caused the kidney condition. We will be traveling back to MA on Sunday and Ed and I will be very happy to be back home. Thank you all for your support and love I don’t know how we would have ever made it this far on our journey without you all.

    Cynthia

    Cynthia Kinsella
    T2 g3 CIS 8/04
    Clinical Trial
    Chemotherapy & Radiation 10/04-12/04
    Chemotherapy 3/05-5/05
    BCG 9/05-1-06
    RC w/umbilical Indiana pouch 5/06
    Left Nephrectomy 1/09
    President American Bladder Cancer Society
    suzy wong replied 15 years, 10 months ago 25 Members · 25 Replies
  • 25 Replies

  • suzy-wong

    Member
    February 24, 2009 at 6:55 pm

    great news cynthia pleased you r recovering well just as i joined this site you were leaving for your op just want you to know that this has helped me more than i ever thought possible take care xxxxxxxxxxxxxx

  • gkline

    Member
    February 24, 2009 at 6:33 pm

    I feel so bad comeing to the is post so late but could I just say one thing; YYYYYYYYYYYYYEEEEEEEEEEEEEEEEEEEEEEEEEEHHHHHHHHHHHHHHAAAAAAAAAAAAAAA !!!
    ;) George

    Light a man a fire and he is warm for an evening.
    Light a man ON fire and he’s warm forever.

    08/08/08…RC neo bladder
    09/09/09…New Hip
    =
    New Man! [/size]

  • rockyiss

    Member
    February 15, 2009 at 6:27 pm

    I hope your trip home wasn’t to hard on you. What good news no cancer !! Every step you take now is one step closer to healing and feeling better, yeahhhh! Rocky

  • suzy-wong

    Member
    February 14, 2009 at 9:44 pm

    fantastic news cynthia thrilled to bits for u and your family you r a very courageous lady celebration time come on xxx

  • tr1492

    Member
    February 9, 2009 at 1:32 pm

    Great news – have a safe trip home.

  • julie

    Member
    February 9, 2009 at 6:25 am

    Scaring seems to be so unpredictable. I’m sorry that it caused such problems for you. I’m glad to know you are now on the mend. I hope this will take care of the pesky bladder/kidney difficulties.
    Julie

    Volunteer Coordinator
    ABLSC

  • Alan

    Member
    February 8, 2009 at 5:59 pm

    Was happy to see great news! You are an inspiration!

    DX 5/6/2008 TAG3 papillary tumor .5 CM in size. 2 TURBS followed by 6 instillations of BCG weekly with a second round of 6 after a 6 week wait.

  • blb

    Member
    February 8, 2009 at 2:15 am

    Good news on the path report – rest and relax once at home – you are quite a person – take care bobbi

  • thewifeagain

    Member
    February 8, 2009 at 1:17 am

    WOOT!

    Age 53 Currently
    Bladder Cancer Diagnosis October 2006 T1G3
    2011 Finally made it 6 month between Cystos
    8/22/2011 Cysto in the OR
    (BCG and BCG Maintenance over the years)
    Graduated to yearly Cystos
    Tumor found at first one year Cysto – TURBT 4/26/2013
    Kidney pain – CT scan 5/1/2013

  • lisaloo

    Member
    February 7, 2009 at 5:16 pm

    Hi
    What fanastic news its made my day wishing you health and happiness
    Lisa xx

  • lady-jane

    Member
    February 7, 2009 at 4:44 pm

    I love to hear good news.
    Rest up and recover at your own speed.

    Ta Grade 1
    6 TURBS
    15 BCG
    dx Jan 07

  • mona

    Member
    February 7, 2009 at 4:28 pm

    Oh that is WONDERFUL news about the path report, I’m so glad,
    Mona

  • momof4

    Member
    February 7, 2009 at 8:50 am

    Just one word comes to mind….YEAH!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!

    <3 <3 <3

    Caregiver for my Wonderful Husband Angelo, who has Metastatic Bladder Cancer.

    Life isn’t about how to survive the storm, but how to dance in the rain.

  • sailorman

    Member
    February 7, 2009 at 3:40 am

    Such great news. I know that it will be great to get home.

  • jmema

    Member
    February 7, 2009 at 2:20 am

    Cynthia,
    I am so happy to hear the good news about the path report and hopefully you will be feeling a whole lot better once you have recovered from the operation. It is been so cold here in the foothills of the Berkshires but tomorrow is going to be a balmy 35 degrees and on Sunday we expect to get up into the 40’s so there will be a lot less ice around by the time you get home.
    I hope your trip home is safe and uneventful.
    Blessings…..Jean

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