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  • Metastatic Bladder Cancer

    Our Pain Releiving Choice

    Posted by momof4 on March 13, 2008 at 4:27 pm

    Start of Discussion
    0 of 0 replies June 2018
    Now

    Hello All,

    Thank you all for your replies to my previous post regarding the results of the most recent scans…

    We had a consult with Dr. Daniel Fried, a Radiation Oncologist at Wake Forest Baptist Hospital. We were given quite a bit of information to digest.

    We have decided on an injection of “Quadramet” see:

    http://www.cytogen.com/professional/quadramet/pi.php

    It is used for pain management in those suffering from Bone Mets. For the areas that don’t respond to this drug, the option for external beam radiation is still available. With this drug the blood must be monitored closely, so we will have a visiting nurse coming weekly to assess and draw blood.

    Hopefully the response will be good to this drug, because then we will have the option of using “Zometa” see:

    http://www.us.zometa.com/info/therapy/how_it_works.jsp?irmasrc=ZOMWB0084

    this is a drug that promotes healthly bone growth…Neither stop the cancer, but with pain management, and stronger bones…quality of life should be greatly improved. These drugs are not without side effects, and that part does worry me…but we can only trust, and take one day at a time…

    Keep us in your Prayers!

    Karen

    Caregiver for my Wonderful Husband Angelo, who has Metastatic Bladder Cancer.

    Life isn’t about how to survive the storm, but how to dance in the rain.

    Leigh replied 16 years, 10 months ago 4 Members · 6 Replies
  • 6 Replies

  • leigh

    Member
    March 14, 2008 at 10:09 am

    Dear Karen,

    My thoughts are with you and your family..

    Wishing your husband all the very best with his new pain treatment plan.

    Kind Regards
    Leigh

    Leigh, 39
    Dx July 2007
    TURBT July 2007
    RC/Neobladder ,Studer Pouch, September 2007
    Erasmus Centrum Rotterdam
    TNM Classification: pT4 N2 Mo
    4 cycles aduvant chemo Gemzar & Cisplatinum

  • marie

    Member
    March 14, 2008 at 2:49 am

    Karen,
    Thinking of you and your family everyday. Your attitude has given me a lot of strenght in the past few months. Sending you positive thoughts and hugs.
    Marie xoxox

  • Guest
    March 13, 2008 at 9:11 pm

    Karen, good luck with this pain solution you have come up with, I hope it works for him,,keep us informed. Ginger

  • Guest
    March 13, 2008 at 7:44 pm

    Thats great news…and you’re right…they are an excellent team.
    Pat

  • momof4

    Member
    March 13, 2008 at 7:14 pm

    Hi Pat…

    He will be hospitalized for 24 hrs to be monitored. I don’t know if this is typical, but his Dr. recommended it, and said that it would save me from having to worry about the little ones using his bathroom…

    They said that the benefits far out way the possible risks…I really trust this team of Drs. Dr. Torti, and Dr. Fried are awesome!!!

    Thanks,
    Karen

    Caregiver for my Wonderful Husband Angelo, who has Metastatic Bladder Cancer.

    Life isn’t about how to survive the storm, but how to dance in the rain.

  • Guest
    March 13, 2008 at 6:27 pm

    Wow Karen…reading those studies with the drug are kind of alarming…but then most drugs if you read the literature you would probably not take. I’m just wondering the precautions you must take for at least the first l2 hours with the radiation excretion from your husbands body..are you able to have a dedicated bathroom just for him that the children won’t be around?
    Pat

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