Home › Forums › All Categories › Non Invasive Bladder Cancer › Number 4 of 6 BCG
-
Number 4 of 6 BCG
Posted by Shacky73 on February 29, 2020 at 6:12 amHad number 4 of 6 induction BCG yesterday. I’m getting full dose Tokyo-172 via Prime Trial.
Toughest yet! Peeing after holding in for bit over 2 hours (fell asleep) was painful. I was only going 25-50 ml for 6-7 hours and it hurt like hell. Urgency was off charts at times.
Today got better and volume increase to 100-150.
I was amazed at how much tissue was floated NGx in urinal today. Wasn’t really checking yesterday. Some clots too. All day into evening.
Makes me feel like it’s doing its job!!!
2 more to go.
T1 Grade 3 with CISShacky73 replied 4 years, 8 months ago 4 Members · 12 Replies12 Replies-
I do have Urobel but MD said not to use. Perhaps because it has a anti inflammatory aspect?
Hope your husband does well with Neobladder!
T1 Grade 3 with CISMy husband had a burning sensation after BCG treatments, and the urologist perscribed Uribel tablets that really helped. Be aware it turns the urine blue.
Also, looked at the photo and it was mild in comparison to flushing out the neo-bladder after surgery. That is really gross ! I’ve been doing it twice a day for a week now since we got home from the hospital. Another week to go before follow up to see if neo-bladder healed for activation.
Shacky73
That’s the kind of photo that would send you running to the doctor, if you wern’t being treated already, and expecting this as a “side effect” of treatment.
Hoping that BCG does the job for you. Not a barrel of laughs, but still the best chance of resolving the issue.
Best
Jack
6/2015 HG Papillary & CIS
3 Years and 30 BCG/BCG+Inf
Tis CIS comes back.
BC clear as of 5/17 !
RCC found in my one & only kidney 10/17
Begin Chemo; Cisplatin and Gemzar
8/18 begin Chemo# 3
Begin year 4 with cis
2/19 Chemo #4
9/19 NED again :)
1/2020 CIS is back
Tried Keytruda, stopped by side effects
Workin on a new plan for 2021https://share.icloud.com/photos/0J3UWyw9_jkPlKZAnvEX-q94A
Not for the faint of heart!
T1 Grade 3 with CISCongrats on the Milestone !
TURBT Jan 2019; Diag: CIS
Induction BCG (Mar 19) /Maint BCG (Aug 19)
TURBT Nov 2019; Diag: CIS
Repeat Induction BCG – Jan 2020 CompleteNumber 6 of 6 in the books!
It was again very painful. Not constant but urgency off the charts, pain from muddle to end of stream, and small volumes which kill. The first 6 hours are the worse.
When describing symptoms my treatment team felt I had infection. I was actually hoping that would be. The case and I could expect relief from antibiotics. Unfortunately culture came back negative.
Nothing I can’t handle but glad I have some time before maintenance 3 weeks.
Lots of tissue again for first 2 days in urine. Kind of proud of it. Would share picture if I could figure out how to attach.
Now I have scope first week in May then the 3 week maintenance.
T1 Grade 3 with CISNumber 5 of 6 down. Pain on urgency same which is not good news. Forcing fluids and getting volume per pee up helped. But oh that pain. Starts on urgency then after flow starts it kills.
The amount of tissue 1st and second day was impressive!!!
I used heating pad (saw someone here suggest) and it seemed to help.
One more to go for induction phase.
T1 Grade 3 with CIS[quote=”Shacky73″ post=59162]Had number 4 of 6 induction this week. Wow did I get a lot of tissue and some clots next day. I assume that means it’s working.[/quote]
Good to hear your facing it and pushing through ;)
TURBT Jan 2019; Diag: CIS
Induction BCG (Mar 19) /Maint BCG (Aug 19)
TURBT Nov 2019; Diag: CIS
Repeat Induction BCG – Jan 2020 CompleteFor those not eating at the time here is a picture
T1 Grade 3 with CISHad number 4 of 6 induction this week. Wow did I get a lot of tissue and some clots next day. I assume that means it’s working.
T1 Grade 3 with CISI read good things about Connaught. Too bad it’s no longer available.
And thanks for advice. Good luck with your treatment!!!
T1 Grade 3 with CISShacky73
Your BCG experience sounds similar to mine, and the effects can slowly increase.
It helped me to know that the worst resolves in 12 to 14 hours after the first void.
During those first hours it helped me to drink fluids, even with little return. Warm liquids (coffee) is my favorite.I would get comfortable in bed, and place a urinal to receive the few ml + clots & tissue, and put a hot towel or microwaved heat pad over the bladder and TRY to relax through the urgency. Some time in a hot shower, with pressure shifted to other parts of the bladder while standing was sometimes a help.
I never quite figured out a pattern, but changing position – sometimes – seemed to help quite a bit, at least for a little while. I’m sure we are each different. I started on Connaught BCG and was switched to TICE BCG after 9 instillations.
Hopefully, Tokyo 172 will do the trick.
Best
Jack
6/2015 HG Papillary & CIS
3 Years and 30 BCG/BCG+Inf
Tis CIS comes back.
BC clear as of 5/17 !
RCC found in my one & only kidney 10/17
Begin Chemo; Cisplatin and Gemzar
8/18 begin Chemo# 3
Begin year 4 with cis
2/19 Chemo #4
9/19 NED again :)
1/2020 CIS is back
Tried Keytruda, stopped by side effects
Workin on a new plan for 2021Sign In to reply.
All services of the American Bladder Cancer Society are free of charge to everyone.
Information on this site is not intended as medical advice but rather to help you formulate questions for your medical team. If you are having a true medical emergency, please seek immediate attention at a qualified care facility or from a medical professional.
ABLCS is a 501(c)(3) non-profit organization
© American Bladder Cancer Society, Inc.Cookie Policy Acceptance RequiredCookies are used to ensure the best experience on our website. You must accept the Cookie Policy to create a forum post or to load the Contact Us form. If you do not accept the Cookie Policy, you cannot create an account, Sign In to the forum, or load the Contact Us form.Functional Always active
The technical storage or access is strictly necessary for the legitimate purpose of enabling the use of a specific service explicitly requested by the subscriber or user, or for the sole purpose of carrying out the transmission of a communication over an electronic communications network.Preferences
The technical storage or access is necessary for the legitimate purpose of storing preferences that are not requested by the subscriber or user.Statistics
The technical storage or access that is used exclusively for statistical purposes. The technical storage or access that is used exclusively for anonymous statistical purposes. Without a subpoena, voluntary compliance on the part of your Internet Service Provider, or additional records from a third party, information stored or retrieved for this purpose alone cannot usually be used to identify you.Marketing
The technical storage or access is required to create user profiles to send advertising, or to track the user on a website or across several websites for similar marketing purposes.Cookie Policy Acceptance RequiredTo provide the best experiences, we use technologies like cookies to store and/or access device information. Consenting to these technologies will allow us to process data such as browsing behavior or unique IDs on this site. Not consenting or withdrawing consent, may adversely affect certain features and functions.Functional Always active
The technical storage or access is strictly necessary for the legitimate purpose of enabling the use of a specific service explicitly requested by the subscriber or user, or for the sole purpose of carrying out the transmission of a communication over an electronic communications network.Preferences
The technical storage or access is necessary for the legitimate purpose of storing preferences that are not requested by the subscriber or user.Statistics
The technical storage or access that is used exclusively for statistical purposes. The technical storage or access that is used exclusively for anonymous statistical purposes. Without a subpoena, voluntary compliance on the part of your Internet Service Provider, or additional records from a third party, information stored or retrieved for this purpose alone cannot usually be used to identify you.Marketing
The technical storage or access is required to create user profiles to send advertising, or to track the user on a website or across several websites for similar marketing purposes.