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NO intestinal segments
Aren’t there any bladder removal prosses that don’t require F@#king up a working system. There would be a small chance I would let the butchers take my bladder if they would leave my bowels alone.
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16 Replies
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I usually asked the surgeon did you sleep well last, everything ok with the wife no arguments, and you did not go out last night to a party did you? lol. And I am not joking here I ask these questions. Best Wishes, Joe
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I think it is important to form an alliance with your Doctor, and if you have to be the one to give 75% then, so be it. My first surgeon told me that he always prayed before surgery, and somehow I knew that he and I were plugged in to the same current. He seemed to like me. He actually performed 2 TUR’s on me and never was able to get enough muscle tissue with either. He said it was so easy to puncture the bladder. I figured that because he was fond of me, that he was afraid of hurting me. That is when I decided that I probably needed to ask the 2nd Opinion Doctor in Chapel Hill to do the biopsy. He said that it was no big deal to puncture the bladder, it happens. The 2nd Opinion Doctor claimed to have gotten plenty of muscle tissue. :P
Anyway, ya’ll have a good day!
Your friend,
Rosemary
Rosemary
Age – 55
T1 G3 – Tumor free 2 yrs 3 months
Dx January 2006
My Dad was a Veteranarian and my wife is an LPN so I too have a medical background here. Unfortuantely sometimes costly mistakes are made and some Dr’s just have no damn bedside manners.
And if you wanna get deep on this issue the human body was not designed to be cut. But now for me with Stage2 G3 bladder cancer what the hail am I suppose to do. Without the chemo and more importantly the surgery I’m a deadman. There are good and bad in any occupation on the face of this earth. Here’s what I’m getting at yes through technology and many experiments some cancers are treatable and thank God the medical field has come along way in the field of cancer. But with all this it is just not the Dr’s or surgeons that cure the cancer we to as patients are responsible for trying to get cured. With this disease you pick your Uro/Oncologist. If your bladder needs to come out then it is up to you to find a surgeon that not only is good but that you trust. The same with the chemo you pick your Oncologist once again one you trust and comes up with a chemo plan that you want after you hear your options. I got dx with bladder cancer so it was up to me to go out and try to put the best medical team together to try and beat this cause I got one damn life and I am the quarterback here not the Dr’s. I could piss and moan why me what the hell did I do to deserve this and that would get me absolutely nowhere.So having this disease I have educated myself the best I can and as the patient I went out there and did my best to put the best team together I could possibly get to try and beat this. All I can do now is do what these Dr’s (the team I assembled) tell me to do and fight and try to stay focused as positive as I can. Sure in the back of anyones head is suppose this does not go right or this happens that’s time and energy I am wasting for something that might not happen at all so I use that energy to try and get cured. I got no choice now but to accept that I have bladder cancer, fight, and have faith once again in the team I assembled and the rest is in the Lord’s Hands. Keep The Faith, Joe
Zachary…i saw your humor in it..God forbid we have a sense of humor. And since we both come from medical families we’ve heard a lot of stories….not that we’re disrespectful but its important to seek the best medical care available…and we know not all practicioners are created equal.
And sometimes in an emergency situation mistakes are made…..one person doesn’t communicate with another. When the surgeon who was responsible for cutting my husband up for bypass made the remark “If i’d know what condition he was in i would have never cut”…..Well that pretty much told me that proper tests were not done beforehand. Some of these cardiology practices have gotten so large that the poor doc who has to do the hospital scene doesn’t know the patient….has not met the patient..has no idea of his/her history…..mistakes are made. One lawyer friend of mine who looked at the discharge papers said he saw at least 7 mistakes…the least of which was the pump to keep him alive just happened to be at another hospital..maybe 2 blocks away…and it took them 2 hours to get it. He died. So forgive me if i have a bit of misplaced trust in doctors. I was simply just not a good enough advocate and i may never forgive myself for that. PatMy Dad and more Importantly my Uncle who has worked day in and out with these people will be choising my caregivers.
One of my arguments against gun control is that Doctors mistakes and bathrooms in the home each kill ten times the number of people guns do by mistake or on purpose. Maybe we should Outlaw doctors and bathrooms in peoples homes. The truth is controls are lacking and hopefully knowing this it is up to you to protect you and yourns. untill and after resonable measures are put into practise. Some people should not own guns and some should not be doctors and some just need educated. When my Daughter was 6 I made up a milk jug of cherry jello and told her to imagine it was a persons head and shot it with my deer rifle. It was her first lesson in firearm safety and made a lasting impression when it exploded putting jello everywhere. But no matter how hard you try somethings can’t be tought , researched or planned away and chance rears it’s ugly head and your bathroom eats you. I’m sure one of your hubbies deepest wishes is for you to be happy and guilt and what if are not part of the program. Take care John R.
One of the problems with the internet is that we can’t always catch tones, irony, subtleties, or facial expressions.
So…. I’m glad we’re still friends…. :)
It would be a boring world indeed if every middle-aged, impotent, incontinent man agreed on everything!
(I really don’t need to add a smiley face after this, do I?)Yes I need to learn to use the smileys they will help some. While the anonymity of the net allows me to speak freely it doesn’t promote clarity. My standard practice of speaking in analogies, inside jokes and toungs only really works with people who know me and it doesn’t help I can’t spell for cwap. But if you met me you would understand why I get stuff back like “Come on Eeyore eat your cattle fodder and lets get going” from my teenage daughter.
Speaking of attitudes, the other day I was trying to think of at least one thing about cancer that wasn’t entirely awful–and I realized that when the bar is set so low that part of having a good day is not wetting your pants in public, it makes having a good day not that difficult a task.
Plus, we’ve gotten out of some engagements that I really didn’t want to go to in the first place–“sorry, my cancer is acting up….”
There’s a great quote from the Dalai Lama: “The enemy is a very good teacher.” I’m trying to learn to keep my humanity–and my humor–in what is, as we both know, not the best of all possible worlds.
“Standing on my Head”––my chemo journal
T3a Grade 4 N+M0
RC at USC/Norris June 23, 2006 by Dr. John Stein
One of the problems with the internet is that we can’t always catch tones, irony, subtleties, or facial expressions.
So…. I’m glad we’re still friends…. :)
It would be a boring world indeed if every middle-aged, impotent, incontinent man agreed on everything!
(I really don’t need to add a smiley face after this, do I?)
“Standing on my Head”––my chemo journal
T3a Grade 4 N+M0
RC at USC/Norris June 23, 2006 by Dr. John Stein
There would be a small chance I would let the butchers take my bladder….
That’s quite a strong statement about a team that will be working hard to save your life.
I couldn’t be more grateful to my surgeons.
I am grateful to my Doctor and staff and have thanked them for their efforts of helping and dealing with the likes of me.
you need to take my tactless irreverance with a grain of salt and a splash of humor. I say horrible mean things to my dog in my doggie voice but that doesn’t meen I don’t love him. I call my Dad and his freinds Shrinks sometimes even to their face buut once again That doesn’t meen I don’t love an respect them. I call all surgeons Butchers and yes there was some vehemence when I wrote it. But I have processed enough deer and game to know an adept butcher would have made a fine surgeon. My Dad once wanted to give me stitches and I ask when was the last time he gave anyone stitches? Was it back in med school and was the patient alive or a cadaver. When he gave the answer I expected I yelled for Mom she at least sews regularly and fixed me right up.
I’m broadly with Zachary on this one. I couldn’t have had my cystectomy thinking of my surgeon as the enemy. No way. But I kind of understand where Pat is coming from and understand JRs anger. It’s a tough situation and I am guilty of blaming docs and mistrusting them at times. Sometimes when you are in the middle of it all it’s hard to see the situation for what it really is. I think and hope your anger is at the situation you’re in and not the people who are trying to help. And I hope you have a great summer too Zachary and everyone else in the Northern Hemisphere!
Tim
As I’m writing this, and between posts, I’m doing some gardening today. Planting seeds. Tomatoes, peppers, beans, and cucumbers.
I fully expect them to flourish and to feed me and my wife all summer long. Frankly, it would never occur to me to think the farmers who grew the seeds or the company that packaged them or the garden-supply store where we bought them were thieves, or incompetent or had malicious intent. I can understand fear and apprehension–I had both of them myself. But I never once thought that those whom I chose to work on me had anything but the highest regard for my safety and my life. Or I wouldn’t have gone to them in the first place.
As it turns out, I’m going back to USC for more surgery on March 23rd. Two weeks from now. And I’m pretty confident that when I return home I’ll be in a better situation than when I arrived, my longevity and quality of life will be improved (over not going at all), and that the tomatoes, peppers, beans, and cucumbers will be starting to sprout.
I’m planning to have the best summer possible. I hope you are as well.
“Standing on my Head”––my chemo journal
T3a Grade 4 N+M0
RC at USC/Norris June 23, 2006 by Dr. John Stein
Patricia,
When all is said and done, words do have meaning. They can heal, they can harm, they’re how we communicate both to others and to ourselves.If you honestly think that referring to those who are working like hell to save your life as “killers” and “butchers” is either helpful or healing, then I guess I respectfully disagree. No one is forcing us to have any kind of treatment or surgery; we always have a choice. If not in every aspect of our treatment, at least in our attitude toward it.
I’d rather have an attitude of positive expectation and gratitude. Vitamins for the mind, so to speak. But if that’s not a concept that works for you, I hope you have one that does.
I do know that if I thought of my surgeon as a butcher before I even had surgery, I’d probably get a fourth and fifth opinion.
“Standing on my Head”––my chemo journal
T3a Grade 4 N+M0
RC at USC/Norris June 23, 2006 by Dr. John Stein
There would be a small chance I would let the butchers take my bladder….
That’s quite a strong statement about a team that will be working hard to save your life.
I couldn’t be more grateful to my surgeons.
“Standing on my Head”––my chemo journal
T3a Grade 4 N+M0
RC at USC/Norris June 23, 2006 by Dr. John Stein
Well call me Mr Porker Piss, very Interesting. One of those pig valves gave me 10 more years with my Grandpop and outlasted him. I don’t even remember him being on any anti-rejection drugs but maybe he was.
AND we use pig valves for valve replacement surgery……….so my thought is they’re working with pig bladders……..but i’ll bet its in trials. I’ll let you know if i get a reply…Pat
Thanks Patrica I’ll look into Rochester. It just seems to me if they can put a saline or silacone bags in a womens chest for (edit judmental comment ) reasons they ought to be able to do something mechanically usefull with the technology.
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