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  • Newly diagnosed with questions

    Posted by Terri324 on March 13, 2017 at 3:21 am

    Seen my GP about blood in my urine (have always had issues with my colon & stomach), but the blood in my urine was something really new (hyst. 17 years ago, so not the cause of the blood), which set me to be scared….that was on 1-9-2017….On 1-17-2017 First appointment with Urologist, he scheduled doing cystoscope on 2-27-2017 which showed a tumor (to me it looked like a mushroom moving back & forth in liquid), which he scheduled surgery on 2-1-2017….wow my life was beginning to change even more…..On 2-27-2017 was the results are Non-invasive low grade papillary urothelial carcinoma (The Urologist said this kind of cancer grows like weeds–so for this first year he will check every 3 months –(If there are 2-3 times of it regrowing then he will try the chemo in the bladder)….The Urologist will see me on 4-18-2017 for the test on how my bladder is working (like how the muscles are working & such)….And then 5-24-2017 another cystocope (to see if it has regrown)….Just really hate the thought that every 3 months I’ve got to worry, stress & especially worry even more that it has regrown (yes I worry over everything), and yes I’ve been told not to think of it & don’t stress for nothing (which is easy for someone to say – especially when they don’t have to deal with it)…Have other medical issues & this just adds to the meltdown of my life…..My other thought is why have to go through this every 3 months – just remove my bladder so the cancer is gone & it has no chance of getting any where else??? Am I wrong for felling this way & where do I go from here…what have I got to look forward to???

    sara.anne replied 7 years, 4 months ago 2 Members · 1 Reply
  • 1 Reply
  • sara.anne

    March 13, 2017 at 4:44 am

    Terri, your post got listed in two places, so I answered you under the first one….”Newly Diagnosed, New to the Forum”

    Sara Anne

    Diagnosis 2-08 Small papillary TCC; CIS
    BCG; BCG maintenance
    Vice-President, American Bladder Cancer Society
    Forum Moderator

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