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  • Newly Diagnosed in Canada

    Posted by stacker on November 26, 2007 at 2:55 pm

    Hi I’am new to this forum, and am just wondering if there is anybody from the Niagara region who has gone thru the neo-bladder surgery in Hamilton. I have invasive cancer and in the process of finding out if i am a canditate for the surgery.Just wondering because every Doc says it pretty rare for someone my age (41)to have this cancer.


    Dx Nov 07
    Turbt Nov 07
    RC/Neo-Bladder Dec 07
    T3 N1 bladder carcinoma
    Feb 08 4 cycles chemo Gemzar&Cisplatinum
    May 09 Dx Lymph node enlargement
    June 09 10 cycles Radiation
    July 09 Mets in Lungs & Lymph node
    July 09 started chemo Abraxane (every 3 wks)
    replied 16 years, 11 months ago 4 Members · 8 Replies
  • 8 Replies
  • Guest
    November 28, 2007 at 12:52 am

    Well if its into the muscle its definately in the T2 range ..could be low 1or2 or high grade 3or4 but when it invades the muscle most surgeons say..get it out of there….I hope you find a surgeon soon and a plan. I wish i knew more about the system up there…We had one canadian on here who was not given a choice of surgeons until he realized as he was in the advertising business that he had done some promotional work for one of the hospitals and used that as leverage to get the surgeon he wanted. I’ll try to find him for you. Pat

  • Maxmag

    Member
    November 27, 2007 at 9:08 pm

    HEY STACKER,
    YEAH,THE WAITING IS LOUSY.
    THERE ARE A LOT OF KNOWLEDGEABLE FOLKS ON THIS SITE.
    I’M SURE YOU WILL BE HEARING FROM A LOT OF THEM.
    I’VE BEEN TO HAMILTON….NICE PLACE!
    GOOD LUCK ON YOUR UPCOMING SCOPE.
    TRY TO KEEP YOUR SPIRITS UP..THINK POSITIVE.
    AFTER THE INITIAL SHOCK OF BEING DX WITH THIS DISEASE,
    I TRIED LEARNING AS MUCH ABOUT IT AS I COULD…WHAT ARE MY OPITIONS ETC.
    I REALIZED THERE ARE MANY TREATMENTS..SO KEEP YOUR CHIN UP.
    YOU WILL DO ALRIGHT.
    WELCOME TO THE BLADDERHOOD,
    MAX


    Max
    Age 70
    Ta G2
    Dx March 2007
  • Joeburg55

    Member
    November 27, 2007 at 6:50 pm

    Hi Stacker , my Name is Joe, I was 51 when i was diagnosed, they told me that was considered young, Get the doctor to grade it, then you will have a better idea, Do you Smoke? if you do Quit!I went the bladder sparing route, i was T2,N0,M0 grade 3
    get that info first, alot of good peeps on this site
    Joe

  • Guest
    November 27, 2007 at 4:10 pm

    Stacker sorry to hear your bad news here, but what your Doc thinks age wise is useless under these circumstances it is what it is. We had a kid here 17 who had BC unreal. Seem BC doesn’t care about what age anyone is for some reason. I’m from the states don’t know much about Canada but we got a few Canadians here that may show up here. As far as being a candidate you are for a Neo unless when the surgeon goes in he sees cancer cells in the uretha or a stricture of the uretha which is a narrowing of the uretha. I myself was trying to get a Neo but my surgeon saw somethings he didn’t like so I got the Indiana Pouch which now I am quite satisfied with. Make sure you find the best cancer facility up there because you want a good surgeon with this type of tumor. Best Wishes, Joe

  • Stacker

    Member
    November 27, 2007 at 12:55 pm

    Pathology report doesn’t really say what stage or grade.
    Biopsies- High grade urothelia carcinoma invading lamina propria
    Tumor- High grade urothelia carcinoma invading deep muscle
    Going for another scope with the doc in Hamilton so he can come up with his diagnoses and treatment plan.
    I just find the waiting the hardest part.


    Dx Nov 07
    Turbt Nov 07
    RC/Neo-Bladder Dec 07
    T3 N1 bladder carcinoma
    Feb 08 4 cycles chemo Gemzar&Cisplatinum
    May 09 Dx Lymph node enlargement
    June 09 10 cycles Radiation
    July 09 Mets in Lungs & Lymph node
    July 09 started chemo Abraxane (every 3 wks)
  • Guest
    November 26, 2007 at 11:58 pm

    Hi Stacker,

    Sorry to meet you here… and , yes, there are quite a few of us in our 40’s. I think there are even a few in their 20’s and 30’s too – can’t swear to that though. Let us know your stage and grade and what kind of treatments you’re looking at – most of us have been there too. God Bless, Holly

  • Guest
    November 26, 2007 at 5:55 pm

    Hi Stacker…..what did your pathology report say…how invasive is the blc? We have some other Canadians on this forum..hopefully they will see this post and respond. Pat

  • Maxmag

    Member
    November 26, 2007 at 5:17 pm

    HI STACKER;
    HAVE YOU CONSIDERED A SECOND OPINION?
    YOU MIGHT WANT TO ASK SOME QUESTIONS ABOUT ALTERNITIVE TREATMENTS.
    GOOD LUCK,
    MAX


    Max
    Age 70
    Ta G2
    Dx March 2007

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