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  • Newly Diagnosed, New To The Forum

    Newly Diagnosed

    Posted by tom90210 on March 8, 2023 at 5:47 pm

    Start of Discussion
    0 of 0 replies June 2018
    Now

    Hello,

    I was diagnosed with Hematuria, and it causes me to have blood clots that stop me from passing a full urine.  It very painful.  I used to wait for the clots to pass on their own.  It’s gotten so bad I have to go to the ER to get a manual flush with a cath.  I’m very exhausted and this taking toll on my mental health.  Has anyone ever experienced this?

    If so, what treatment route did you go.  Does it still happen? Did anyone have surgery to fix this?

    Alan replied 1 year, 6 months ago 3 Members · 2 Replies
  • 2 Replies

  • Alan

    Member
    March 8, 2023 at 10:54 pm

    Welcome 90210,

    I second Sara Anne’s comments. If you have not seen a urologist, you need to. What you describe can be many things from an infection, kidney stones passing, sometimes a cause is never found, and yes types of cancer. Anything else I would add is simply a guess.

    DX 5/6/2008 TAG3 papillary tumor .5 CM in size. 2 TURBS followed by 6 instillations of BCG weekly with a second round of 6 after a 6 week wait.

  • sara.anne

    Member
    March 8, 2023 at 7:50 pm

    I assume you have seen a urologist?  Was his diagnosis hematuria?  What was the explanation for this?

    Sara Anne

    Diagnosis 2-08 Small papillary TCC; CIS
    BCG; BCG maintenance
    Vice-President, American Bladder Cancer Society
    Forum Moderator

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