• Alan

    Member
    August 4, 2016 at 9:44 pm

    2 or 3 week wait is ok on the TURB. Two months, no. Is there a medical reason why the longer delay than normal? As many of us would say sometimes a second opinion is good. A major cancer center/teaching hospital. Also, you want a practice that sees a LOT of bladder cancer as so many see mostly prostate issues.


    DX 5/6/2008 TAG3 papillary tumor .5 CM in size. 2 TURBS followed by 6 instillations of BCG weekly with a second round of 6 after a 6 week wait.
  • mbmccauley

    Member
    August 4, 2016 at 9:40 pm

    Well, the tumor is 2cm. Not getting TURBT until October. Hope it doesn’t invade between now and then. Won’t know grade and stage until after that. Seems like a long time to stew over it


    8/9/16: 2cm tumor found on CT
    8/10/16: cystoscopy
    8/18/16: TURBT; HG Non-Invasive
    9/29/16: 2nd TURBT clear
    Completed first BCG regimen: 1/31/17
  • jopo

    Member
    August 4, 2016 at 3:10 pm

    ahhh, another bathroom crier ~ my favorite place to go to shed some tears.
    She might benefit from joining this forum also. Lots of information here.
    Lots of love and support too.

    The waiting is difficult, try not to stress (too much).
    Big hugs to both of you.

  • jack-r

    Member
    August 4, 2016 at 4:45 am

    MB,

    Most of us here, if not all, were hit hard by the unforseen diagnosis of bladder cancer. Most of us, but NOT all, had a diagnosis that appears to be similar to what you described in your post – many of us had an initial diagnosis of Superficial Bladder Cancer, caught early.

    The good news is that superficial bladder cancer is highly responsive to treatment.It does require constant monitoring.

    Once the TURBT and the associated pathology report are completed, you will have a much clearer idea of the path ahead.

    Until then, hold on to the term “Highly Treatable”, while you wait for more information and are presented with treatment options. Allow a few days to get over the punched-in-the-gut shock of having the word “cancer” applied to a loved one.

    Best,
    Jack


    6/2015 HG Papillary & CIS
    3 Years and 30 BCG/BCG+Inf
    Tis CIS comes back.
    BC clear as of 5/17 !
    RCC found in my one & only kidney 10/17
    Begin Chemo; Cisplatin and Gemzar
    8/18 begin Chemo# 3
    Begin year 4 with cis
    2/19 Chemo #4
    9/19 NED again :)
    1/2020 CIS is back
    Tried Keytruda, stopped by side effects
    Workin on a new plan for 2021
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