• Posted by dieseldoc on December 17, 2010 at 9:31 pm

    Hi all,my name is gary,I have hade bladder cancer for 6 years. I just found this site, wish I would have found it years ago. The first time I had tumors (I had 5 tumors) my doc removed them. I did the BCG treatments for 6 weeks and that was it. Now when he finds a tumor he just takes it out. Is this normal?


    T1,NO,MO battling bladder cancer since 2005
    dieseldoc replied 14 years, 1 month ago 10 Members · 35 Replies
  • 35 Replies
  • dieseldoc's avatar

    dieseldoc

    Member
    December 26, 2010 at 6:29 pm

    Tony the Tiger was right on!!!!!THANKS everyone!! I was able to go to church today (I run the sound system for the church) so I guess I’m feeling better!


    T1,NO,MO battling bladder cancer since 2005
  • moonerj's avatar

    moonerj

    Member
    December 26, 2010 at 1:59 pm

    Fantastic News!!!!!!!!!!!!
    Jack


    TA Grade 1
    3 Turbts
    30 BCG Treatments
    Cancer Free since Nov 2007
  • mmc's avatar

    mmc

    Member
    December 26, 2010 at 1:24 pm

    Thaaaaat’s GRRRRRRRRRRRRRRRRRREAAAAATTTTTTTT!!!!!!


    Age 54
    10/31/06 dx CIS (TisG3) non-invasive (at 47)
    9/19/08 TURB/TUIP dx Invasive T2G3
    10/8/08 RC neobladder(at 49)
    2/15/13 T4G3N3M1 distant metastases(at 53)
    9/2013 finished chemo -cancer free again
    1/2014 ct scan results….distant mets
    2/2014 ct result…spread to liver, kidneys, and lymph system

    My opinions are my own and do not reflect the opinion of ABLCS or anyone else. I am not a doctor nor do I play one on TV.

  • catherineh's avatar

    catherineh

    Member
    December 26, 2010 at 2:07 am

    Wonderful news!!!


    Best wishes… Catherine

    TURBT 1/21/10 at age 55
    Dx: T2aN0M0 Primary Bladder Adenocarcinoma
    Partial Cystectomy 2/25/10
    Vanderbilt Medical Center
    Nashville, TN

  • DougG's avatar

    DougG

    Member
    December 25, 2010 at 8:43 pm

    Hallelujah! Merry Christmas!! Glad you are doing well and are home now!!


    Anita
    Forum Moderator
    Caregiver
  • dieseldoc's avatar

    dieseldoc

    Member
    December 25, 2010 at 4:45 pm

    CAT scans are normal! EKG normal!! I’m going home!! yeppie!!!!!


    T1,NO,MO battling bladder cancer since 2005
  • catherineh's avatar

    catherineh

    Member
    December 25, 2010 at 2:17 am

    So sorry you’re having problems that required a hospital visit. Hope all tests show no signs of a stoke and it is good they are being thorough, although I’m sure that is frustrating for you. Not a good way to spend Christmas Eve… sending positive vibes your way!


    Best wishes… Catherine

    TURBT 1/21/10 at age 55
    Dx: T2aN0M0 Primary Bladder Adenocarcinoma
    Partial Cystectomy 2/25/10
    Vanderbilt Medical Center
    Nashville, TN

  • dieseldoc's avatar

    dieseldoc

    Member
    December 25, 2010 at 2:00 am

    Well I’m sitting in the hosp. They want to make sure I didn’t have a stroke. They did an EKG on me this mourning,and they will do another tomarrow. I might get to go home tomarrow afternoon. I’m glad I have a laptop!! :dry:


    T1,NO,MO battling bladder cancer since 2005
  • dieseldoc's avatar

    dieseldoc

    Member
    December 24, 2010 at 4:17 am

    Got home from work 1:00 AM, took a shower, looked in the mirror, the right side of my face is not moving!! D#&*n my bells palsy is back!! This sucks! :(


    T1,NO,MO battling bladder cancer since 2005
  • dieseldoc's avatar

    dieseldoc

    Member
    December 22, 2010 at 6:31 am

    I’ve been to Barnes hosp. before, that place is enormas, it needs it’s own zip code… And maybe it does!!? Been up in the arch. that was cool!! Bush statium.( The old one before they tore it down.) Grand Centrol Station was pretty cool!The airport sucks!!!


    T1,NO,MO battling bladder cancer since 2005
  • gkline's avatar

    gkline

    Member
    December 21, 2010 at 10:05 pm

    Gary

    You are part of the “kicked in the butt” club. Pat and Mike are “pushy, pushy” and will not allow anyone to accept crummy service. Their “get to the Best” mantra is a theme you will hear over and over again.

    Listen to them! They know their stuff.

    So, now you can whistle “Meet Me in St Louis”

    Glad to Help

    George


    Light a man a fire and he is warm for an evening.
    Light a man ON fire and he’s warm forever.

    08/08/08…RC neo bladder
    09/09/09…New Hip
    =
    New Man! [/size]

  • nix's avatar

    nix

    Member
    December 19, 2010 at 1:39 pm

    My brother had a neobladder done at Barnes by Dr. Arnold Bullock. It was done 6 years ago, and he is like a Poster Boy for a Neo. Not one problem in 6 years, he is one of the lucky ones not having to catheterize.Goes once a year for check up! Wishing you the best!

    Nancy


    Nancy S
    Ta CIS
    dx Ta 11/06
    dx Ta CIS 10/07
  • dieseldoc's avatar

    dieseldoc

    Member
    December 18, 2010 at 11:52 pm

    Yes,Chakinala! We also told them she is alergic to latex. I had to get between him and her because he was wearing latex gloves! But thats a differant forum!!!!


    T1,NO,MO battling bladder cancer since 2005
  • 's avatar

    Guest
    December 18, 2010 at 11:44 pm

    Is your wifes specialist on this list?
    http://www.phassociation.org/page.aspx?pid=437
    pat

  • dieseldoc's avatar

    dieseldoc

    Member
    December 18, 2010 at 11:33 pm

    Pat. my wife went there for polminary hypertention because she was refered there, they told her they were the best. I’m sorry to say they did nothing for her!! But that was not cancer!!It still looks promising though! It’s got to be better than what I’m getting now.I don’t think I qualify for assistance, I make too much money!?!


    T1,NO,MO battling bladder cancer since 2005
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