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  • Newly Diagnosed, New To The Forum

    New comer

    Posted by Ely on November 15, 2019 at 7:23 am

    Start of Discussion
    0 of 0 replies June 2018
    Now

    Hello all – I had a radical cystectomy 12 years ago. The cause of my cancer was cyclophosphamide which I was
    rescribed for Wegeners Granulomatosis diagnosed in 1991. At first, my bladder cancer was graded at 2 then when pathology returned it was grade 3. I saw two urologists with both recommending radical cystectomy. Three months after surgery a CAT scan showed metastases to lymph nodes. This brought my cancer grading to stage 4. I underwent chemo and radiotherapy and obviously I am still around.

    Alan replied 5 years, 2 months ago 3 Members · 2 Replies
  • 2 Replies
  • Alan's avatar

    Alan

    Member
    November 15, 2019 at 1:51 pm

    Ely,

    Welcome and, thanks for posting. I always love good news. This should show to all their is hope no matter how serious. Our life on this earth isn’t over until it’s over!

    DX 5/6/2008 TAG3 papillary tumor .5 CM in size. 2 TURBS followed by 6 instillations of BCG weekly with a second round of 6 after a 6 week wait.
  • regor's avatar

    regor

    Member
    November 15, 2019 at 12:07 pm

    Congrats for surviving the journey Ely !!

    TURBT Jan 2019; Diag: CIS
    Induction BCG (Mar 19) /Maint BCG (Aug 19)
    TURBT Nov 2019; Diag: CIS
    Repeat Induction BCG – Jan 2020 Complete

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