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Neobladder Urione Retention
Took my neobladder in for its 6 month checkup yesterday. CT scans with contrast, urine retention test, blood tests. Uro is pleased with recovery. No signs of cancer and everything looks good with the neobladder and intestines.
Only negative point was ultrasound showed I am retaining about 250 ml of urine after voiding. The uro didn’t seem too concerned as long as I wasn’t having infections. He didn’t give as reason for the retention. His solution is catheters if it becomes a problem.
I’m mot worried for now. Does anyone else have any experience with urine retention volumes?
Thanks,
Flyer -
13 Replies
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Thank you Mike for answering, I have been a member of this site for a long time, it is so helpfull and was recommended to me by my surgeon about 4 years ago.
Thanks for all that you do.
Silk -
Silk,
Sorry. No ideas about the pressure part of things.
MIke
Age 54
10/31/06 dx CIS (TisG3) non-invasive (at 47)
9/19/08 TURB/TUIP dx Invasive T2G3
10/8/08 RC neobladder(at 49)
2/15/13 T4G3N3M1 distant metastases(at 53)
9/2013 finished chemo -cancer free again
1/2014 ct scan results….distant mets
2/2014 ct result…spread to liver, kidneys, and lymph system
My opinions are my own and do not reflect the opinion of ABLCS or anyone else. I am not a doctor nor do I play one on TV.
Hi Mike,
Thank you for your message.
I do not find if an “issue” either to have to cath all the time, after 4 years it does become a part of what you JUST do.
I have a lot of pressure when on my feet or walking, exercising etc. because of a rectocele, not from the neo, but the rectocele causes me to cath more often, about every 2 1/2 hours because of the pressure.
Any suggestions for the pressure?
Thank you all.
Silk
It really doesn’t hurt at all. I certainly wouldn’t recommend it without the surgical lubricating gel or KY jelly though!
Without the prostate any more, it is simple. If I still had my prostate (especially since mine was enlarged and constricting my urethra for years) I would have a very different position on the matter. I hated cystos. Not a comfortable experience at all!!! Now I could probably do my own. :).Mike
Age 54
10/31/06 dx CIS (TisG3) non-invasive (at 47)
9/19/08 TURB/TUIP dx Invasive T2G3
10/8/08 RC neobladder(at 49)
2/15/13 T4G3N3M1 distant metastases(at 53)
9/2013 finished chemo -cancer free again
1/2014 ct scan results….distant mets
2/2014 ct result…spread to liver, kidneys, and lymph system
My opinions are my own and do not reflect the opinion of ABLCS or anyone else. I am not a doctor nor do I play one on TV.
Mike is just a masochist :laugh:
Age: 50
Bladder cancer diagnosed Mar, 2010.
Robotic assisted laproscopic cystoprostatectomy with Studer neo-bladder, 2010.
UMC Tucson
I have to cath every time I go. Doesn’t bother me a bit. I try to be discreet about washing my catheter in public restrooms so it doesn’t embarrass other people but that’s about it. Was kind of funny when my three year old granddaughter came out of the bathroom swinging the red rubber catheter around one day! :D (I don’t keep it in there to dry out anymore).
Would I be happier if I didn’t have to cath? Sure, who wouldn’t. Is it a big deal? Nope. :)
I don’t think they just go in and do the belly button surgery if you have problems that cause you to need to cath. I would guess it would likely be considered “elective” surgery by an insurance company but I don’t know that for sure.
Mike
Age 54
10/31/06 dx CIS (TisG3) non-invasive (at 47)
9/19/08 TURB/TUIP dx Invasive T2G3
10/8/08 RC neobladder(at 49)
2/15/13 T4G3N3M1 distant metastases(at 53)
9/2013 finished chemo -cancer free again
1/2014 ct scan results….distant mets
2/2014 ct result…spread to liver, kidneys, and lymph system
My opinions are my own and do not reflect the opinion of ABLCS or anyone else. I am not a doctor nor do I play one on TV.
Took my neobladder back for its one-year checkup last week. Blood tests, CT scan all look good, retained about 50 ml of urine. No sign of cancer returning.
Past few months I’ve had trouble voiding. He scoped me and found nothing unusual and recommended pressing harder or cath if necessary. Lavitra didn’t do anything so he gave me a prescription for an ErectAid. Anyone have any experience with that?
Hi,
Thank you so much for answering.
I have had two neo surgeons opinions and both are in agreement.
I do not have a problem with the cath, wow after 4 years, it becomes just something you do, it is the pressure of having to void because of the rectocele.
Again many thanks.
Silk
I’ve never heard of that. I guess he means there is not adequate support? Perhaps you should get a second opinion. For me, if I had to cath to void, I’d just get the bellybutton surgery instead. I only agreed to the neo on the assumption I would be part of the ninety percent. My doctor told be around ten percent of his patients have to cath regularly, 50 percent at least once.
Age: 50
Bladder cancer diagnosed Mar, 2010.
Robotic assisted laproscopic cystoprostatectomy with Studer neo-bladder, 2010.
UMC Tucson
Hi,
I saw your post about neo bladder and having to cath.
I have a neo for 4 year now and HAVE to cath to void, about every 3 hours. The surgeon said the neo “flopped” because I have no female organs.
Your thoughts please.
Thank you.
Silk
I’m two years out. I occasionally have problems. On one office visit they had me scoped at almost 400ml. I was stumped, since I was using the same two techniques to void as when I was able to get it below 100. The Dr didn’t seem too concerned. I still wonder if those ultrasounds work as well on studers. Anyway, two months later I began having noticeable problems voiding–going every hour or two. Then a month later I stopped completely, had to cath myself twice–2x too many. Had corrective surgery to remove a flap of skin in the neo-bladder that had grown over the exit to the urethra. All better :woohoo: I also find that if I eat too much I have trouble emptying–must get crowded down there.
Age: 50
Bladder cancer diagnosed Mar, 2010.
Robotic assisted laproscopic cystoprostatectomy with Studer neo-bladder, 2010.
UMC Tucson
Flyer, For me it’s as simple as making sure I take the time to work hard to get it all out. I really do have to remind myself. Sounds like you are doing great.
Duke
This is a test they do on me every time. I guess they want you to void everything and that reduces the cause of infection. I was retaining a small amount at first because I was not “pushing” enough. I went back into the bathroom and “pushed” and voila! No retention!
What I find interesting is the way the stream “cuts off” when the baldder is empty. This makes knowing when the bladder is empty easy. Maybe it will work for you.I am always amazed that the conversation after Neobladder surgery, invariably turns to either incontinence or retention.
Things that make you go Hmmmmmmmmmmmmmmmmmmmmmmmmmmmmmmm.George
Light a man a fire and he is warm for an evening.
Light a man ON fire and he’s warm forever.08/08/08…RC neo bladder
09/09/09…New Hip
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