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Neobladder Surgeons in Denver or San Francisco
Hello all,
I have been reading your group regularly and decided to join today when my husband found out his cancer is T2. In early June, after his first TURBT, it was T1G3, but the second TURBT showed muscle involvement.
I am wondering if any of you have had (or you know someone who had) success with the neobladder in either Denver or San Francisco. Either place is an alternative for us, we are just trying to decide where he will have the best chance of success.
I am impressed by all the support and good information I see on this site.
Thanks,
Janet
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13 Replies
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Take up all the room you want!
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Janet
Also keep in mind that he is worried about how he says things what things he says to you too. If the two of you talk about that, it might help both of you.
Mike
Age 54
10/31/06 dx CIS (TisG3) non-invasive (at 47)
9/19/08 TURB/TUIP dx Invasive T2G3
10/8/08 RC neobladder(at 49)
2/15/13 T4G3N3M1 distant metastases(at 53)
9/2013 finished chemo -cancer free again
1/2014 ct scan results….distant mets
2/2014 ct result…spread to liver, kidneys, and lymph system
My opinions are my own and do not reflect the opinion of ABLCS or anyone else. I am not a doctor nor do I play one on TV.
Janet, you probably have about 100 people going to that appointment with you tomorrow!! Hope we don’t take up too much room in the waiting room!!
Sara Anne
Diagnosis 2-08 Small papillary TCC; CIS
BCG; BCG maintenance
Vice-President, American Bladder Cancer Society
Forum Moderator
Again, thank you.
We know why you are upset even though you don’t have cancer. It is because you are afraid of losing him and worried about everything that comes along with this whole mess.
I was the one with cancer and I knew that it was very tough on my wife. She would be the one to be on her own if I died. Instead I just didn’t die. Got my bladder out instead. Way better choice if I do say so myself.
Your husband isn’t about to die either. Life without a bladder is just fine and odds are that he will be just fine. It would be quite abnormal though to not worry about and about yourself. So, why feel bad about something completely normal?
Now that you know it is normal, no reason to feel guilty about it.
Keep us in the loop. It is ok to share that feeling with your husband. Telling him exactly what you said here would be greater. You actually used the perfect words to describe it. This is a team sport!
Mike
Age 54
10/31/06 dx CIS (TisG3) non-invasive (at 47)
9/19/08 TURB/TUIP dx Invasive T2G3
10/8/08 RC neobladder(at 49)
2/15/13 T4G3N3M1 distant metastases(at 53)
9/2013 finished chemo -cancer free again
1/2014 ct scan results….distant mets
2/2014 ct result…spread to liver, kidneys, and lymph system
My opinions are my own and do not reflect the opinion of ABLCS or anyone else. I am not a doctor nor do I play one on TV.
Hi Anita and Doug,
Thank you for your support. I am finding being the support person is very hard. I have times of extreme anxiety or melancholy, but then I think “Why am I so upset? I am not the person with cancer!”. Having people here to talk to will help me a great deal as well as my husband.
Janet
Janet,
So glad that your husband will be seeing Dr. Wilson tomorrow. Best wishes to you and to your husband.
Anita
Anita
Forum Moderator
Caregiver
Hi Bill,
Thank you for the information on Dr. Wilson. We will be seeing her tomorrow! They had a cancellation so we lucked out.
Janet
Hi Janet,
If you decide on the Denver area, Dr. Wilson is great. She is one of the kindest doctors I have ever met, she really does care. She was my surgeon and everything went really well, only 6 days in the hospital after RC. Also, she will set some pretty high goals for your husband, so be prepared.
Hopefully you can get in to see her in a timely manor. If you have any questions don’t hesitate to ask.
Bill
5.24.10 Final staging T2G3 7.28.10 Started Gemcitabine, Cisplatin neoadjunctive chemotherapy
11.2.10 RC with NEO 11.18.11 First year CT shows possible liver tumor
12.8.11 Confirmation of TCC BC mets to the liver 6.27.12 Final round of Dose Dense MVAC
7.26.12 Final scans showed no tumor or no metabolic response10.18.12 Wife leaves, now a single dad
10.31.12 New scans show metastic return to liver 2.4.13 New scans for treatment, no other sites found
2.20.13 New chemo regiment started, will run at least 12 weeks
Hi Mark,
Thank you. I am grateful that I found this site.
Just wanted to welcome you to the site, and tell you how sorry I am that your family had to join us Janet.
Thanks for registering with ABLCS.
Mark
Age 55
Diagnosed BC 12/20/2011 Ta No Mo 0a Non-Invasive At age 48
“Please don’t cry because it is over….. Smile because it happened!” {Dr. Seuss} :)
Hi Mike,
Thanks so much. I knew you were here in CO and I hoped you would answer. We are trying to contact Dr. Wilson today.
Janet
Janet,
I had mine at University of Colorado Hospital in Denver. My guy was great but the absolute best is Dr. Shandra Wilson. A couple of other guys on the site went to her.
http://www.coloradourologists.com/urologists/wilson_shandra.htm
“Dr. Wilson performs 2-3 bladder removals, or cystectomies, every week as well as 2-3 robotic procedures. A recent analysis showed Dr. Wilson performs approximately 70% of all of the cystectomies (or bladder removals) in the state. Dr. Wilson trained with one of the founding fathers of bladder cancer surgery, Dr. Don Skinner and learned modern techniques of neo-bladder, continent cutaneous, and ileal conduit formation during her training at the University of Southern California with him. Dr. Wilson also trained with Dr. William Catalona at Washington University in medical school and Dr. David Crawford in fellowship.”
Best of luck! I was T2, and I am going on four years cancer free now.
Mike
Age 54
10/31/06 dx CIS (TisG3) non-invasive (at 47)
9/19/08 TURB/TUIP dx Invasive T2G3
10/8/08 RC neobladder(at 49)
2/15/13 T4G3N3M1 distant metastases(at 53)
9/2013 finished chemo -cancer free again
1/2014 ct scan results….distant mets
2/2014 ct result…spread to liver, kidneys, and lymph system
My opinions are my own and do not reflect the opinion of ABLCS or anyone else. I am not a doctor nor do I play one on TV.Sign In to reply.
