• Posted by Poohgirl on September 20, 2016 at 9:33 am

    Ok mom has bladder cancer stage four had surgery den firts to remove what they could of rumor it’s in her bladder walls. Has had chemo carbopytim then had pet scan then went to urologist to see if they could take bladder out he wanted her to do more chemo to string the lymph nodes. She did cisplytin and went for ct scan and pet scan now it shows a spot in her lungs and another spot in her pelvic bone. I am scared hopefully oncologist will start her on tecentriq ASAP but anyone going thru this or have someone goi g through it. I don’t want to lose my mom. Can she live please help me I have no one please

    Poohgirl replied 7 years, 11 months ago 4 Members · 6 Replies
  • 6 Replies
  • Poohgirl

    Member
    September 21, 2016 at 9:52 am

    Can u tell me how long the chemo last when he would do it is it long day thing like the carbo or just a couple of hours and how often did he get it please? Thank you

  • Bchamburger

    Member
    September 21, 2016 at 2:38 am

    Poohgirl,
    I completely understand the terror you are experiencing. My 83 year old dad was diagnosed with TCC (bladder cancer) in his left kidney last September. We took the kidney out in October only to be told on New Years Eve it had metastasized to a para aeortic lymph node and possibly a couple spots on the lungs. We went on carbo/gem chemo combo in January for a couple months and then found out in March the cancer had grown. After much research, I found a couple clinical trials of what is now known as Tecentriq. We started this in April and according to his last scan at the end of June his tumors shrank! We are due for another scan next week and am preying for good results.

  • Poohgirl

    Member
    September 21, 2016 at 1:34 am

    Thank you I just am bless to have u and jack to talk to

  • Poohgirl

    Member
    September 21, 2016 at 1:34 am

    Thank you I truly appreciate you . Thank you for everything

  • sara.anne

    Member
    September 20, 2016 at 11:50 pm

    So sorry to hear about your mother’s diagnosis. It is so difficult when they have been there for us all our lives and we find that there is so little we can do to help. You will need to be her support now, as Jack says.

    It would be a good idea to see if her oncologist will recommend Tecentriq at this stage. Perhaps he may also be aware of any clinical trials that may be available for her,.

    Wishing you both the best

    Sara Anne


    Diagnosis 2-08 Small papillary TCC; CIS
    BCG; BCG maintenance
    Vice-President, American Bladder Cancer Society
    Forum Moderator
  • jack-r

    Member
    September 20, 2016 at 11:21 pm

    Poolgirl,

    You need to have the big talk with Mom AND her Oncologist. At stage 4 chemo and or radiation is like to be offered to Mom – her oncologist is the person best able to design a course of treatment and describe the type of support Mom is likely to need.

    Mom is going to need a LOT of support at this time.Try to rally her friends and neighbors to be there for her. It is your turn to comfort and be strong for Mom.

    Best to You and Mom,
    Jack

    (I lost my father to bowel cancer at age 85)


    6/2015 HG Papillary & CIS
    3 Years and 30 BCG/BCG+Inf
    Tis CIS comes back.
    BC clear as of 5/17 !
    RCC found in my one & only kidney 10/17
    Begin Chemo; Cisplatin and Gemzar
    8/18 begin Chemo# 3
    Begin year 4 with cis
    2/19 Chemo #4
    9/19 NED again :)
    1/2020 CIS is back
    Tried Keytruda, stopped by side effects
    Workin on a new plan for 2021

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