Home › Forums › All Categories › Newly Diagnosed, New To The Forum › My FIL is fighting with T1 high grade, a type of non-muscle invasive canncer

  • Newly Diagnosed, New To The Forum

    My FIL is fighting with T1 high grade, a type of non-muscle invasive canncer

    Posted by mansinanchahal on October 15, 2018 at 7:06 pm

    Start of Discussion
    0 of 0 replies June 2018
    Now

    Hi,

    My FIL was diagnosed with T1 high grade, a type of non-muscle invasive bladder cancer. He went through tumor remover and then 6 weekly BCG treatments.

    After a month he went through another BCG treatment but after that he is having sever pain and burning sensation. Doctors are giving him pain killers and antibiotics and not telling what is the issue, attached is his recent ultrasound report.

    Could you please see what is going on.

    Alan replied 5 years, 11 months ago 3 Members · 2 Replies
  • 2 Replies

  • Alan

    Member
    October 15, 2018 at 8:18 pm

    Welcome. I see Cynthia has removed personal attachments which I presume includes the ultrasound. As none of us are doctors reading an ultrasound is way above our expertise so we can’t help there. Communication with our doctors are important and I would press for more information. Some burning and irritation is an indication it may be working, as you do want a reaction. If it is too severe a reduced dosage to 1/2, 1/3 1/4 or even 1/10 is sometime tried and still works. Keep asking away as you have further questions.

    DX 5/6/2008 TAG3 papillary tumor .5 CM in size. 2 TURBS followed by 6 instillations of BCG weekly with a second round of 6 after a 6 week wait.

  • cynthia

    Administrator
    October 15, 2018 at 8:11 pm

    Hi sorry to hear that your FIL is having problems. It is not uncommon to have a UTI and reaction from the BCG treatments. Side effects often from BCG can happen at anytime in treatment and tend to be cumulative and intensify as treatment goes on. We are not doctors here this is based on what we see commonly here. If you have questions the best thing to do is call your doctor’s nurse and tell her, that is often time the quickest was. Often times if it is anUTI they can continue treatment once things have settled down. Even if side effect persist we have seen them reduce the amount of BCG significantly with good results. Of course once again talk to your medical team with your concerns.

    Cynthia Kinsella
    T2 g3 CIS 8/04
    Clinical Trial
    Chemotherapy & Radiation 10/04-12/04
    Chemotherapy 3/05-5/05
    BCG 9/05-1-06
    RC w/umbilical Indiana pouch 5/06
    Left Nephrectomy 1/09
    President American Bladder Cancer Society

Sign In to reply.