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My Doctor said, "You’r one lucky kid!"
I am 37 years old. I had a mandarin orange sized tumor removed on
Dec 27. :oJan 11 I had my follow up to review biopsy results etc… :-/
My Doctor said, “I’m very suprised. A tumor that size which was superficial and non-invasive, you’r one lucky kid!”
He described it as G2 superficial, Stage A, confined to lining and is now gone. :)
My pathology report states…
1. Non-invasive papillary transitional cell carcinoma, Grade II/III.
Multiple fragments of non-invasive exophytic tumor are present.2. Numerous fragments of unremarkable uninvolved muscularis propria.
3. Cautery artifact. :-?
To me it sounds good.
My Doctor tells me I will not be requiring any BCG treatments.
He also tells me there is a 50% chance of me requiring more surgery to remove future tumors.
Is this standard practice for my diagnosis?My next appointment is Feb 26.
I will be scheduled for another scope after this.
Then scopes every 3 months for the first year.Right now I am walking on cloud 9.
I am worried that I am being too optamistic.Thank you Wendy.
The advice you gave me about staying off of the net was great.Any suggestions on how to alleviate some of the pain I am experiencing when I urinate? [smiley=evil.gif]
I haven’t been eating any spicy foods, no coffee, alcohol etc…
Just lots of green tea and water. Every once and a while some juice or milk.
I sure could go for a [smiley=beer.gif].
My Doctor certainly scared me away from that!Thanks again Ro, Wendy, and someone else whos name I have forgotten.
(Had a brocolli tumor removed).Simon.
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9 Replies
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Simon-
Your situation is very similar to mine. I’m 28. I had a tumor the size of a plum (43 grams) removed and I got the same results as yours. I am on the same schedule as you for check ups and poke and peeks. I can also tell you that for a few weeks after, I absolutely positively dreaded going to the bathroom. Peeing was absolutely no fun. I felt the razor blades too.
And, like your doctor, my uro told me there’s a 50 percent chance. But, “we’ll catch it early,” he said. So, like Wendy said, I’m hoping we’re both in the 50 percent that doesn’t get a recurrence.
“I am third.”
-Gayle Sayers
Simon,
4 weeks was the magic number for me, after my TURB, for the urinary pain to subside 90%. Then another few weeks to get rid of the other 10%. I’ve read, in this forum, that 4 weeks was pretty average for others also. Also, in my case, he said he had to cut the urethra to get the instrument in so, I’m sure, that had to add to my “peeing razors” as you call it.
Good luck with follow up exams!
Bob P
Once again it is confirmed that size of tumor is not indicative of the seriousness of tumor nor an indication of it becoming invasive in the future. Papillary tumors are of less concern that all other tumors as to progressing and/or invading. They do, however, recur quite often. I have seen many write ups questioning if these papillary tumors shoudl even be labeled as cancer as they seldom react as the definition of cancer meaning invasion and spread to other organs than can cause death.
Thanks again Wendy.
Simon.
Hi Simon,
That’s good news, I”m happy for you.
People complain of the pains you describe, it sounds awful but not necessarily a complication. Keep an eye out for symptoms of infection and if that kidney pain continues have a urine test to rule out infections. For sure, update your uro on the state of things.
I hope you fall into the 50% that get NO recurs, ever.
All the best,
Wendy
What I found about my own pain is that they were harder to get rid of than prevent. In other words if I left it til things got really bad before I took pain meds then sometimes it was almost too late. So now, when I get pain I drop the pain meds early on! I don’t go crazy but I don’t want to take twice as much later on when a little would have done the job earlier. I just trust my body is healing and, for me, feel it heals better when the mind isn’t focused on feeling grotty. If you had a mandarin sized tumour removed just after xmas I’m not surprised you still have pain. I found it took sometimes 6 weeks for residual pain and trauma to fix for me. Back and abdomen pain is pretty common with bladder surgery. Not sure about the testicle but I wouldn’t be surprised. You can get all kinds of weird sensations with pelvic surgery. If anything overly concerns you then talk to your doc. Infections are also not uncommon.
All the best
Tim
Today I had pain from my left lower back, through my left testicle and into my lower abdomen when urinating. This happened twice. The pain was significant.
Anyone else experience these symptoms?
Simon.
Hello Tim.
I have been told by others to continue with the pain meds.
I however have always been one to stop taking them when I started to feel better. I am a firm believer in not masking any pains so I have an idea of how my body is healing. Granted this is usually from a work or sports related injury. I am beginning to understand all to well that surgery and this disease is something that can’t be fixed by ice and a bandage.
My Dr laughed when I asked him when I could play hockey again. He told me 2 walks a day for 30 min. Funny, 6 to 8 weeks to heal, I’m feeling way ahead of that. If only the razor blades would subside…
I shall have to try some cranberry juice. My Dr. also suggested carbonated water.
Thanks Tim,
Simon.
Hey Simon
Apart from lots of water I just used the usual off-the-shelf medication (paracetamol, Ibuprofen) to alleviate painful urination post bladder resection. Some people reckon on cranberry juice. Can’t do any harm! The outcome of this disease is so varied it’s not really possible to predict whether you will be someone who just has the one tumour pop up or a series over the years. But I don’t think you’re wrong at all to be optimistic. You’ve won the first battle by not having an invasive tumour. And now the disease has shown itself, you have the opportunity to keep an eye on things. Sounds like your doc is following the usual regimen for these tumours. You will find that the checks will continue for some time but, if you keep getting clear results, the intervals between checks may increase. You’ve been really lucky but a G2 tumour (it says II/III on the path report) is still something to take seriously. It’s funny how these things can develop silently even when they are the size of a mandarin orange!Best of luck Simon
Tim
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