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Mets are back :(
Got my scan results yesterday. After two all clear scans, I was not so fortunate on this one. Several new lymph nodes have problems. I had to drop out of clinical trial.
I go back in 6-8 weeks for another scan to see the rate of progression. Certainly was not the best way to start the year! They are all super tough to be able to biopsy so we won’t bother.
Different kinds of chemo is an option as is a phase I study. That’s the one not tried on humans yet.
Been through the chemo route already and I don’t plan to do it again. Not sure if I want to mess with a phase 1. Likely, we will just be doing palliative treatment.
Lots to think about. Thanks for all the support for so long!
Mike
Age 54
10/31/06 dx CIS (TisG3) non-invasive (at 47)
9/19/08 TURB/TUIP dx Invasive T2G3
10/8/08 RC neobladder(at 49)
2/15/13 T4G3N3M1 distant metastases(at 53)
9/2013 finished chemo -cancer free again
1/2014 ct scan results….distant mets
2/2014 ct result…spread to liver, kidneys, and lymph system
My opinions are my own and do not reflect the opinion of ABLCS or anyone else. I am not a doctor nor do I play one on TV.40 Replies-
Mike, I been off the site for sometime. So sorry to hear your news.
You have been a great help to so many of us. God bless you.Duke
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My husband’s mets are back in his pelvis area also. He had his bladder removed September 2013 and the lymph nodes were cancerous. We have been thru chemo last year that kind of controlled it but he wanted to quit for six months. We went to the doctor on Wednesday and the cat scan shows that they are now growing again at 2.5 centimeters but she thinks they are localized in the pelvic area. Has any of you had this or know about this? Is that big? With it being in the lymph nodes, how do they know it is not traveled? We are starting chemo again next Wednesday. Hopefully this will contain it.
Thanks to everyone on this post. It helps a lot.
Cathy
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Mike… Sounds like a wonderful place to spend a couple of weeks to relax and plan that trip to Italy. I hope you have done a little scuba diving or snorkeling in that beautiful water. My best to Liz too!
Best wishes… CatherineTURBT 1/21/10 at age 55
Dx: T2aN0M0 Primary Bladder Adenocarcinoma
Partial Cystectomy 2/25/10
Vanderbilt Medical Center
Nashville, TN
Glad you are enjoying Cancun! Sounds wonderful. :)
Anita
Anita
Forum Moderator
Caregiver
Mike
It’s not the number of breathes you take in your life……
It’s the number of times you have had your breath taken away that makes a life.You are certainly an inspiration in how life should be lived. I cannot get a grip on ALL of the emotions that are floating inside me now. Everything from great pain to great Joy
repeat….. YOU ARE INDEED THE MAN!!!!!!!!!
George
Light a man a fire and he is warm for an evening.
Light a man ON fire and he’s warm forever.08/08/08…RC neo bladder
09/09/09…New Hip
=
New Man! [/size]
Love ya Mike!
DX 5/6/2008 TAG3 papillary tumor .5 CM in size. 2 TURBS followed by 6 instillations of BCG weekly with a second round of 6 after a 6 week wait.
Good thoughts and sunny days are always being sent your way Mike.
God BlessNancy
Nancy S
Ta CIS
dx Ta 11/06
dx Ta CIS 10/07
Wow, I’m jealous. Of the adventures, not the reason.
Go Man Go. You deserve every second.
God bless you Mike. Live large my friend, live large.
Age 54
T1NOMX,Grade 3 Urothelial CIS (Carcinoma in Situ)
Neobladder 5/19/2009
Prostate Capsule Sparing
U of M Hospital, Ann Arbor, Michigan
YOU GO MIKE!!!!!!!!!!
T1,NO,MO battling bladder cancer since 2005
Laughing it up in Cancun for two weeks. Got here last Sunday so one more week to go. My last scan showed several new lesions on my liver and other areas were hard to see because my kidneys were not in such good shape. They couldn’t do IV contrast. Probably will if I get another scan. Not sure I will though.
Calling this trip my “farewell tour”. Having a blast in the surf and I don’t don’t give a darn about getting skin cancer. Still use sunscreen to not burn but tan baby tan! :)
Early May we are off for our Italy tour. Going to be visiting friends and family and having fun until I can’t. Doc says I should probably be OK for 3-4 months before I start having real issues. Right now I feel great!!!! Chemo is worn off and I am not having any pain or anything.
Colleagues from HP are coming to see me in April and we’ll do a golf day and nice dinner and some nice port and work on solving problems of the world again (like the old days when HP was a great company (pre-Carly)).
After Italy, I will have the miles for an east coast trip to visit friends and family in PA and VA!
I haven’t posted much lately. Sorry about that but I’m kinda busy living every day and enjoying Liz’s company!
Mike
Age 54
10/31/06 dx CIS (TisG3) non-invasive (at 47)
9/19/08 TURB/TUIP dx Invasive T2G3
10/8/08 RC neobladder(at 49)
2/15/13 T4G3N3M1 distant metastases(at 53)
9/2013 finished chemo -cancer free again
1/2014 ct scan results….distant mets
2/2014 ct result…spread to liver, kidneys, and lymph system
My opinions are my own and do not reflect the opinion of ABLCS or anyone else. I am not a doctor nor do I play one on TV.
So sorry to read this post. I have had some mets to lymph nodes that they have beaten back a bit with Taxol and Carboplatin. Maybe there will be something out there that will help and that is my wish and prayer for you. You have been very brave in your battle and have always been an inspiration to me and I am sure many others as well.
Blessings…..Jean
Mike. I can not say how sorry I am. This is just devastating. I know you have taken care of your family. I know you have thought about this a lot, and I for one respect your decision. Only you can say enough is enough. I gratefully appreciate all of your help for me and others on here. All I can say is, have a safe journey from here on out.
T1,NO,MO battling bladder cancer since 2005
If I have brought a smile or laugh to you over our time together or helped you discover something good about yourself, then I’ve done my job. Life is to be lived and it must contain laughter!
Wish I could say words as you have said them, and wish I could reply in words similar to yours.
Like so many on this site, I just cannot put into words or get my head around your news.
I have been on this journey for 7 years now, and you have played such a big role on my trip with cancer[/size][/size]i don’t even have the words in my vocabulary to thank you!
You have been in my prayers for years, and will continue to be.Nancy
Nancy S
Ta CIS
dx Ta 11/06
dx Ta CIS 10/07Sign In to reply.