• Posted by lotech35 on November 13, 2017 at 7:07 pm

    Back from Oncologist today, he said I have 2 enlarged lymph nodes in my abdomen. Might be due to infection or cancer could be back, in 3 weeks doing another CT to check nodes. I’m a little worried as I’m still recovering from bladder cystectomy. If it is cancer he will use immunotherapy, since I’ve had max chemotherapy. My cancer was high grade and aggressive, I’m praying it’s not back, the recovery is hard enough!


    Diagnosed Sept 2015 noninvasive
    1st turbt Oct 3 2015, 2nd turbt Nov 13 bladder,
    Completed 6 BCG initial treatments 01/11/16 02/09/16 No Cancer!
    08/09/16 Cyto shows red spots on bladder, TURBT prostate scheduled
    09/12/16 Cancer is back Ta prostate ,T1 high grade bladder papillary uthelial.
    Cancer has invaded muscle getting RC.
    lotech35 replied 6 years, 9 months ago 6 Members · 21 Replies
  • 21 Replies
  • lotech35

    Member
    January 7, 2018 at 4:35 pm

    Jack,

    I felt terrible after the chemo. I had the same Gemzar and Cisplatin, to me the Gemzar stung a little, but the after effects ugh! I stayed in bed for days felt nauseas. I hope this keytruda is my GOD send!


    Diagnosed Sept 2015 noninvasive
    1st turbt Oct 3 2015, 2nd turbt Nov 13 bladder,
    Completed 6 BCG initial treatments 01/11/16 02/09/16 No Cancer!
    08/09/16 Cyto shows red spots on bladder, TURBT prostate scheduled
    09/12/16 Cancer is back Ta prostate ,T1 high grade bladder papillary uthelial.
    Cancer has invaded muscle getting RC.
  • sara.anne

    Member
    January 7, 2018 at 4:05 pm

    If anyone can beat this, you can. You are one of our heroes!!

    Sara Anne


    Diagnosis 2-08 Small papillary TCC; CIS
    BCG; BCG maintenance
    Vice-President, American Bladder Cancer Society
    Forum Moderator
  • jack-r

    Member
    January 7, 2018 at 8:06 am

    Lotech,

    Sorry to hear that you have additional cancer issues.

    I hope you had a good Christmas and New Year, and were able to spend time with your family and friends. Cancer or not, the holidays are time to celebrate with those close to us.

    Looking at other sites, the numbers for Keytruda are looking better and better, now that the FDA trials reports are fading and earlier user (after platinum chemo) reports are coming in. I hope you will see results such as you describe for your father in law; thank goodness the research continues on BC.

    The good news, as I understand it, is that the side effects from Keytruda are minor compared to chemo (I just finished the second round of Cisplatin and Gemzar) so I hope you will be much more comfortable.

    Keep your eye on the goal and keep us up to date. We are pulling for you.

    Best,
    Jack


    6/2015 HG Papillary & CIS
    3 Years and 30 BCG/BCG+Inf
    Tis CIS comes back.
    BC clear as of 5/17 !
    RCC found in my one & only kidney 10/17
    Begin Chemo; Cisplatin and Gemzar
    8/18 begin Chemo# 3
    Begin year 4 with cis
    2/19 Chemo #4
    9/19 NED again :)
    1/2020 CIS is back
    Tried Keytruda, stopped by side effects
    Workin on a new plan for 2021
  • cltyxx

    Member
    January 7, 2018 at 1:20 am

    LoTech, sorry to hear the updates.

    Keep up the fight, one day at a time!

    Cltyxx

    ————————————————————–
    Diagnosed on 03/23/2017
    TURBT#1 04/06/2017, Pathology report not conclusive
    TURBT#2 05/26/2017, HG T1, No cancer found
    BCG 6 treatments finished on 08/11/2017
    Cysto: 11/14/2017 Biopsy: 11/27/2017 Still There!
    TURBT #3 01/05/2018, waiting
    ————————————————————–

  • Alan

    Member
    January 6, 2018 at 12:20 am

    LoTech, thanks for the updates but, sorry about the report. I like the fight in you, it inspires all of us.


    DX 5/6/2008 TAG3 papillary tumor .5 CM in size. 2 TURBS followed by 6 instillations of BCG weekly with a second round of 6 after a 6 week wait.
  • lotech35

    Member
    January 5, 2018 at 10:13 pm

    Alan

    Not great news, cancer is back spread to liver, lymph nodes, and lungs. No symptoms right now starting immunotherapy on the 18th. Wish it wasnt so but im still going to fight!


    Diagnosed Sept 2015 noninvasive
    1st turbt Oct 3 2015, 2nd turbt Nov 13 bladder,
    Completed 6 BCG initial treatments 01/11/16 02/09/16 No Cancer!
    08/09/16 Cyto shows red spots on bladder, TURBT prostate scheduled
    09/12/16 Cancer is back Ta prostate ,T1 high grade bladder papillary uthelial.
    Cancer has invaded muscle getting RC.
  • lotech35

    Member
    December 22, 2017 at 6:22 pm

    Alan,
    Thank you I will, especially after all thar will be going on next week.
    Merry Christmas!


    Diagnosed Sept 2015 noninvasive
    1st turbt Oct 3 2015, 2nd turbt Nov 13 bladder,
    Completed 6 BCG initial treatments 01/11/16 02/09/16 No Cancer!
    08/09/16 Cyto shows red spots on bladder, TURBT prostate scheduled
    09/12/16 Cancer is back Ta prostate ,T1 high grade bladder papillary uthelial.
    Cancer has invaded muscle getting RC.
  • Alan

    Member
    December 22, 2017 at 6:07 pm

    LoTech,

    As always thanks for the updates. Enjoy that grand daughter coming next week!

    Merry Christmas!


    DX 5/6/2008 TAG3 papillary tumor .5 CM in size. 2 TURBS followed by 6 instillations of BCG weekly with a second round of 6 after a 6 week wait.
  • lotech35

    Member
    December 22, 2017 at 5:32 pm

    Any questions you have, fire away! I’m here to answer anything i can!! Gives me something to do!


    Diagnosed Sept 2015 noninvasive
    1st turbt Oct 3 2015, 2nd turbt Nov 13 bladder,
    Completed 6 BCG initial treatments 01/11/16 02/09/16 No Cancer!
    08/09/16 Cyto shows red spots on bladder, TURBT prostate scheduled
    09/12/16 Cancer is back Ta prostate ,T1 high grade bladder papillary uthelial.
    Cancer has invaded muscle getting RC.
  • dtat60

    Member
    December 18, 2017 at 7:43 pm

    Happy Holidays, Lotech35. Thinking of you and hoping for good news in the coming year. I have lots of questions about your recent RC but will wait until after the holidays to discuss. May the force be with you!

    Peace and Love,
    Dave


    08/16 Blood in Urine;09/16 CT Scan, RPG, Cysto;10/16 TURBT;12/08 BL TURBT;01/17 6X BCG;05/17 NED, 3X BCG, 9/17 NED, 3X BCG,1/18 NED, 3X BCG,7/18 NED, 3X BCG
  • lotech35

    Member
    December 18, 2017 at 6:08 pm

    Thanks Jack, I needed to hear that, CT shows enlarged nodes in lungs and aortic nodes increased in size a little more. Also to suspicious spots on the liver. Liver biopsy scheduled.
    I wont get my grand daughter till the 29th but will have her for 4 days! She makes me happy, she’s 1 but full of energy! Your right NO GRINCHES ever.
    Docs say immunotherapy if cancer is found. Still a waiting game but for now……

    MERRY CHRISTMAS my friend to you and your family!


    Diagnosed Sept 2015 noninvasive
    1st turbt Oct 3 2015, 2nd turbt Nov 13 bladder,
    Completed 6 BCG initial treatments 01/11/16 02/09/16 No Cancer!
    08/09/16 Cyto shows red spots on bladder, TURBT prostate scheduled
    09/12/16 Cancer is back Ta prostate ,T1 high grade bladder papillary uthelial.
    Cancer has invaded muscle getting RC.
  • jack-r

    Member
    December 18, 2017 at 2:42 pm

    Lotech,

    Pulling for you having a clean report on the lymph nodes. Whether welcome or not, there is always a next test just down the road – it does seem that anticipating the test is worse than the actual results, whatever they may be. Bad tests require a follow-up test, which, in my experience, has a good chance of finding the bad test to be wrong.

    Cancer is quite the county fair thrill ride. The ups and down hit us in the pit of our stomachs, but somehow we seem to always be ready for a re-ride.

    Merry Christmas to you and the family. Make it work for those who are worrying and pulling for you.

    The big Christmas issue here is how to hug the rug rats and still deal with the depressed immune system from the chemo. So far, the plan is to offer sneeze masks as the family arrives. One way or another, the grands are going to have a good time visiting Grandma & Gramps, as always. The two older boys (7 & 8) are expecting to go down to the target range by the creek this year and finally be allowed shoot the .22 rifles. It will happen, no matter what. We are a No Grinch household.

    Life goes on. Enjoy it.

    Best,
    Jack


    6/2015 HG Papillary & CIS
    3 Years and 30 BCG/BCG+Inf
    Tis CIS comes back.
    BC clear as of 5/17 !
    RCC found in my one & only kidney 10/17
    Begin Chemo; Cisplatin and Gemzar
    8/18 begin Chemo# 3
    Begin year 4 with cis
    2/19 Chemo #4
    9/19 NED again :)
    1/2020 CIS is back
    Tried Keytruda, stopped by side effects
    Workin on a new plan for 2021
  • lotech35

    Member
    December 18, 2017 at 8:43 am

    CT last friday. Going to see oncologist this morning. Very anxious but i want to know. Tree is up and decorated some good news would be great. But if not early detection is good too.


    Diagnosed Sept 2015 noninvasive
    1st turbt Oct 3 2015, 2nd turbt Nov 13 bladder,
    Completed 6 BCG initial treatments 01/11/16 02/09/16 No Cancer!
    08/09/16 Cyto shows red spots on bladder, TURBT prostate scheduled
    09/12/16 Cancer is back Ta prostate ,T1 high grade bladder papillary uthelial.
    Cancer has invaded muscle getting RC.
  • Alan

    Member
    November 17, 2017 at 1:10 pm

    LoTech and Jack,

    Guys, I really look forward to your posts. I care about each of you and learn not just more about our cancer journeys but, about life also. Here is to only good news going forward!


    DX 5/6/2008 TAG3 papillary tumor .5 CM in size. 2 TURBS followed by 6 instillations of BCG weekly with a second round of 6 after a 6 week wait.
  • lotech35

    Member
    November 17, 2017 at 4:04 am

    Jack
    Sorry your going thru this too, i wish something or a miracle cure would appear out of the blue and we’d both could just enjoy our families with out the shroud of cancer hovering above us. I await my next CT
    With anxiety but has to be done. But that’s 3 weeks away so until then my friend

    HAPPY THANKSGIVING TO YOU AND YOUR FAMILY! we are still in this. Fight!!!


    Diagnosed Sept 2015 noninvasive
    1st turbt Oct 3 2015, 2nd turbt Nov 13 bladder,
    Completed 6 BCG initial treatments 01/11/16 02/09/16 No Cancer!
    08/09/16 Cyto shows red spots on bladder, TURBT prostate scheduled
    09/12/16 Cancer is back Ta prostate ,T1 high grade bladder papillary uthelial.
    Cancer has invaded muscle getting RC.
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