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Just saying hi
Had my Cysto today. It showed 3 reddish spots that the doc said he can scope out in the office. I don’t know how usual this is, but at least he does not seem concerned and feels it is just precautionary to do. I go back in 90 days for the procedure which is sort of a cysto+ I guess.
I suppose I am staying on top of all of this and with the docs help it is not getting worse to any degree whatsoever.
alanleee
2/2011: diagnosed with non invasive Type1 stage1…and had turbt in march….first follow up 5/19/11, had laser again as it re-occurred.
10/12/2011 TURPT with more bladder laser….still non invasive..
11/17/14 diag. with CIS non invasive, beginning BCG 11/26/14
2/2015 BCG did not work, had another TURBT.
Second opinion in July 2015, and my bladder looked angry. Had RC with conduit (bag) done on 9/18/2015.9 Replies-
I had my “red spots” biopsied last week and got the news two days ago that it was just irritation from the BCG. I’m with Mike, as much as I hate being put under, I was glad they did for this. I’m betting yours are also just scar spots or irritation from past treatments. Good luck.
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Awww. Now you’re making me blush!
Vent away. I’m sure these spots are no big deal and I have a way with these things. :)
Mike
Age 54
10/31/06 dx CIS (TisG3) non-invasive (at 47)
9/19/08 TURB/TUIP dx Invasive T2G3
10/8/08 RC neobladder(at 49)
2/15/13 T4G3N3M1 distant metastases(at 53)
9/2013 finished chemo -cancer free again
1/2014 ct scan results….distant mets
2/2014 ct result…spread to liver, kidneys, and lymph system
My opinions are my own and do not reflect the opinion of ABLCS or anyone else. I am not a doctor nor do I play one on TV.
you didnt mess up Mike! I had the cancerous tumors removed the first time! Non-invasive and I guess superficial, but it is in there but not nearly as bad as many other folks. I just feel great that I can come here and vent and learn! You folks are wonderful.
2/2011: diagnosed with non invasive Type1 stage1…and had turbt in march….first follow up 5/19/11, had laser again as it re-occurred.
10/12/2011 TURPT with more bladder laser….still non invasive..
11/17/14 diag. with CIS non invasive, beginning BCG 11/26/14
2/2015 BCG did not work, had another TURBT.
Second opinion in July 2015, and my bladder looked angry. Had RC with conduit (bag) done on 9/18/2015.
OK. I messed up. Forgot you had just “stuff” and not bladder cancer. NO REASON to worry!!! My fault and I apologize.
Your doc is correct and there is nothing to worry about now. Really.
You should be fine to get this dealt with in the office because they don’t have take much other than just getting the small spots.
Mike
I need to keep a log of everywhere.
Age 54
10/31/06 dx CIS (TisG3) non-invasive (at 47)
9/19/08 TURB/TUIP dx Invasive T2G3
10/8/08 RC neobladder(at 49)
2/15/13 T4G3N3M1 distant metastases(at 53)
9/2013 finished chemo -cancer free again
1/2014 ct scan results….distant mets
2/2014 ct result…spread to liver, kidneys, and lymph system
My opinions are my own and do not reflect the opinion of ABLCS or anyone else. I am not a doctor nor do I play one on TV.
Hi folks, no I have not had BCG, and the first operation was to remove the non invasive tumors, the second was to do the turpT, the third was that he did not like what he saw on a cysto but the biopsy came back negative (scar tissue), the fourth was the same but he had to take more of the prostate because it grew back somewhat, biopsy was negative. This would have been #5 I guess.
So, after the cysto he told me the red spots were nothing to be concerned about unless the urine test came back with something. So far it has not. So he said he could do another cysto in the office and remove or scrape or whatever the reddish spots in about 2 minutes.
What is CIS? I need to look that up. Right now I am not freaking out, just my normal panic attacks! LOL :ohmy:
2/2011: diagnosed with non invasive Type1 stage1…and had turbt in march….first follow up 5/19/11, had laser again as it re-occurred.
10/12/2011 TURPT with more bladder laser….still non invasive..
11/17/14 diag. with CIS non invasive, beginning BCG 11/26/14
2/2015 BCG did not work, had another TURBT.
Second opinion in July 2015, and my bladder looked angry. Had RC with conduit (bag) done on 9/18/2015.
If it’s all not even precancerous you should be fine.
Has he taken any samples previously from you in the office setting? Some people can handle that little sampling without any problem but not me. :)
Mike
Age 54
10/31/06 dx CIS (TisG3) non-invasive (at 47)
9/19/08 TURB/TUIP dx Invasive T2G3
10/8/08 RC neobladder(at 49)
2/15/13 T4G3N3M1 distant metastases(at 53)
9/2013 finished chemo -cancer free again
1/2014 ct scan results….distant mets
2/2014 ct result…spread to liver, kidneys, and lymph system
My opinions are my own and do not reflect the opinion of ABLCS or anyone else. I am not a doctor nor do I play one on TV.
I don’t remember whether you have had BCG or not. After a number of BCG treatments, my cysto showed “red” spots that my uro was pretty sure were irritation from the BCG. We agreed that he would do a “little bit of a biopsy” in the office…if he couldn’t do it we would then go to a full TURB. He was able to get enough tissue with a sort of scraping to tell that, indeed, it was irritation and we avoided the general anesthesia, day in the hospital, etc… It was not uncomfortable. Just like the dentist says, “a little pinch.”
I would emphasize that we were just confirming what he was already 99% sure of. A lot of uro’s might not have done anything. If there were any question at all, this would not be the right procedure.
Sara Anne
Diagnosis 2-08 Small papillary TCC; CIS
BCG; BCG maintenance
Vice-President, American Bladder Cancer Society
Forum Moderator
He siad it was nothing to be concerned about but i will double check with him. Are you saying that i could have lots of pain? The doctor has been great so far, and has not taken any chances whatsoever. If it hurts that bad, let me know and I will give the doc a call and tell him I want this to be done in the hospital.
So far everything they have scraped off since the very first and second trips have come back as not even being precancerous. I value your opinion greatly so please let me know! :dry: :( :huh:
2/2011: diagnosed with non invasive Type1 stage1…and had turbt in march….first follow up 5/19/11, had laser again as it re-occurred.
10/12/2011 TURPT with more bladder laser….still non invasive..
11/17/14 diag. with CIS non invasive, beginning BCG 11/26/14
2/2015 BCG did not work, had another TURBT.
Second opinion in July 2015, and my bladder looked angry. Had RC with conduit (bag) done on 9/18/2015.
So he doesn’t think that it might be CIS? If the spots are from previous biopsies that is one thing but if they are new then they should certainly be checked out.
Any time I had anything removed it was in the hospital and I was out. Once they tried getting a sample while I was in his office on the table and I think the dent in his ceiling is still labelled the Mike’s nose imprint from where I levitated off the table at the speed of light.
Hope it’s nothing but as you say, it is good to be vigilant.
Mike
Age 54
10/31/06 dx CIS (TisG3) non-invasive (at 47)
9/19/08 TURB/TUIP dx Invasive T2G3
10/8/08 RC neobladder(at 49)
2/15/13 T4G3N3M1 distant metastases(at 53)
9/2013 finished chemo -cancer free again
1/2014 ct scan results….distant mets
2/2014 ct result…spread to liver, kidneys, and lymph system
My opinions are my own and do not reflect the opinion of ABLCS or anyone else. I am not a doctor nor do I play one on TV.Sign In to reply.
