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Its been 2 1/2 years now need ureter reattachment
Well its been a long while since I have posted but I come on the site and try to keep informed on everyone, I had been complaining for a year or more about flank pain and last Thanksgiving while on vacation in Florida my left ureter became totally blocked. I have had 4 nephrostomy tubes placed (2 became dislodged) The interventional radiologist tried to stent the ureter but was unsuccessful. This Thursday I will go back to the University of Chicago and have the ureter reattached to my Indiana pouch with Dr Norm Smith also 3 hernia repairs and a lymphocele removed or drained. I hope the Kidney is in good working order they did a 24 hr urine and it looked ok. I know Cynthia you had your other ureter become blocked what did you do for that??? Has anyone else here had a ureter reattachment???? Well as we all know on this site everyone hates surgery and its just my time so here I go……..
Julie
T1/G3-CIS 10-01-2010
10-27-2010-Indiana Pouch7 Replies-
Julie,
Sorry you had so many darn complications and pain. :(
Hope all goes well from here on.
Mike
Age 54
10/31/06 dx CIS (TisG3) non-invasive (at 47)
9/19/08 TURB/TUIP dx Invasive T2G3
10/8/08 RC neobladder(at 49)
2/15/13 T4G3N3M1 distant metastases(at 53)
9/2013 finished chemo -cancer free again
1/2014 ct scan results….distant mets
2/2014 ct result…spread to liver, kidneys, and lymph system
My opinions are my own and do not reflect the opinion of ABLCS or anyone else. I am not a doctor nor do I play one on TV.
I am home and the reattachment surgery went very well. 3 1/2 hrs surgery and I didnt need any pouch alterations. The pathology came back NEG so I feel very blessed. Dr Smith found many hernias and repaired them but he said the fascia was in bad shape. I had 3 bad days of uncontrolled pain in the hospital and I had dry heaving which tore sutures and I could feel the them opening and the blood draining out. How frustrating when I just had all that surgery to repair them. I have to wait for complete healing and then the Dr will be able to assess the damage. Cynthia thank you for your info and I will have to learn what tests I should be having in the future to keep monitoring the ureter.
Julie
T1/G3-CIS 10-01-2010
10-27-2010-Indiana Pouch
Cynthia, once more your words are soothing. My husband after 5 years clear of bc with a stoma and attached ileal conduit,finds out yesterday that ureter is blocked and doc says “itlooks like the real thing” He wull have biopsy on 3.22 to look see and take a stage and grade.Was your bockage appearing as an enlargement in ureter on CT scan? How did they find it? and was it canceroous? I am OUT OF MY MIND! Ct scan says enlargement of ureter in left pelvis area.
Good news the recovery was much quicker than having an RC. Mine became blocked and they went in and removed the blocked portion and reattached. I had a stent for a while and had that removed through the stoma. I was dreading them taking out the stent but it was really quick and no pain. I had a few problems as they did a revision of the pouch due to scar tissue that had nothing to do with the ureter surgery. But all in all it is a memory of three years ago so far so good. I have blood work every two months to check on kidney function looking for the canary in the mine so to speak to make sure it is not closing off again because I am down to one kidney. Hope all goes well for you and that your keep us updated. You are to the place you have so much experience to share I hope we see you posting more often to help out the newbies.
Cynthia Kinsella
T2 g3 CIS 8/04
Clinical Trial
Chemotherapy & Radiation 10/04-12/04
Chemotherapy 3/05-5/05
BCG 9/05-1-06
RC w/umbilical Indiana pouch 5/06
Left Nephrectomy 1/09
President American Bladder Cancer Society
Julie,
Good luck on the fix.
Mike
Age 54
10/31/06 dx CIS (TisG3) non-invasive (at 47)
9/19/08 TURB/TUIP dx Invasive T2G3
10/8/08 RC neobladder(at 49)
2/15/13 T4G3N3M1 distant metastases(at 53)
9/2013 finished chemo -cancer free again
1/2014 ct scan results….distant mets
2/2014 ct result…spread to liver, kidneys, and lymph system
My opinions are my own and do not reflect the opinion of ABLCS or anyone else. I am not a doctor nor do I play one on TV.
Funny!!!Thanks Sara Anne!! Well for the last year and half I have been having lots of flank pain on and off. I went to the Dr and he would blame it on my weight saying I just needed to lose weight. Then I became very sick infection, vomiting, fever and finally a diagnosis. So now on to surgery. I sure hope recovery is faster than RC.
T1/G3-CIS 10-01-2010
10-27-2010-Indiana Pouch
Julie, did you just get bored and decide you needed something “new” to do? Can’t think of any good reason you “decided” to do this!!
:laugh:I realize that it is NOT funny…..and wish you the very best.
Sara Anne
Diagnosis 2-08 Small papillary TCC; CIS
BCG; BCG maintenance
Vice-President, American Bladder Cancer Society
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