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It begins as "Low malignant potential"
Hello, from a New Guy, folks, and first, let me say thank you to all who post here, as, since being diagnosed three weeks ago, I have read most of the content of this forum – my wife thinks more than I should have read, as some of you have been through hell. Also, next to what most of you are going through, I feel like I am whining about a stubbed toe After a one time appearance of blood in the urine following a workout, the usual tests led me to a urologist who wanted to “Have a look.” Well, no fun, but at least he looked with a flexible scope. After the look he wanted to have a cut. So, last Monday I had my first TURBT and this Wednesday the Doc will give me the results of the biopsy, but he seems 95% sure that this is “carcinoma of low malignant potential.” The day after the surgery he removed the catheter and I felt pretty normal, so I went back to work the second day and proceeded through my week. But, then yesterday morning, around 6 AM, urinating hurt far more than it had previously and I wound up on the floor drenched in sweat: not sure if I passed out or not. Eventually that passed, but now every time I go, it sure as heck hurts, which it never did pre-surgery. The nurse had told me it would only hurt bad a couple of times. Maybe I was too active after surgery, so am spending the weekend staying down and quiet, but planning to go back to work again tomorrow, Monday. So far, I am not especially worried, but am wondering if I can expect my urinary tract to return to normal operation anytime soon.
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11 Replies
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Fantastic. Sounds like you’re getting on top of it. I remember my first scope and the fear it tinged every subsequent one with. Don’t let it. It’s hugely variable and dependent on depth of biopsy and position within the bladder (bladder neck can be problematic – but isn’t always). Mostly I think I was shocked on that first scope. Sure the pain was horrible but what made it worse was the surprise of it and that noone had prepared me for it. I remember lying bunched up on the hospital bed just glad I’d made it back from the toilet and thinking I was going to pass out. I did breathing exercises on every subsequent one (when peeing) which also helped a lot and made sure I had a garage full of pain meds on standby!
Good to hear the encouraging pathology too.
Really glad you’re on the mend and that we could help in some way
Regs
Tim
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Thanks for getting back with us Goducks. I’m glad to know that this turned out so well. :)
And thanks for telling us that we were right about the spasm. It’s nice to know that.
Hope you take care of yourself and you will check back in with us.
Your friend,
Rosemary
Rosemary
Age – 55
T1 G3 – Tumor free 2 yrs 3 months
Dx January 2006
Thank you all, particularly Rosemary and Tim. Today was my pathology report and the Doc says, “I have the best possible news for you.” I get a G1, T0 score and remain “low malignant potential.” Of course, I still get the excitement of looking forward (is the more correct term “dreading”) to quarterly scoping. But, I guess even with those, only the first time do we react with a: “You’re gonna do WHAT?” I do have some other prostate issue to be looked at next month (maybe I will become friends with that Cystoscope…nah, no chance), but am pretty happy for now. Rosemary and Tim called my bladder spasm correctly according to my Doc, and Tim your Cranberry Juice prescription was right on the money. As soon as I started guzzling that, the pain lessened substantially – still hurts though. The Doc confirmed that cranberry juice helps and also gave me a prescription that will turn my urine orange but should get rid of the burn.
Good luck to all of you from Go Ducks!
Hi Goducks,
I hope you called the doctor. That sounds like a dreadful experience.
Keep us posted…
Wendy
Hello
I’ve had many TURs done and I have definitely experienced the situation you describe. I’m not sure exactly what causes it but I’m sure you’ll get back to normal. Another thing I found strange was when bleeding restarted about three weeks after a TUR. I interpreted this as the scab from the wound site dropping away.I can only echo Joe’s sentiments about this forum. It’s been a fantastic resource for me and of all the places I’ve been, the one with the best all-round advice. I’m a lot further down the road than you and its seen me through what could have been a far more hellish period in my life.
As Rosemary says, the sweating on the floor could have been a bladder spasm. Really unpleasant and sometimes accompanied by quite a drop in blood pressure. It sent me to the floor many times. But when you have subsequent TURs don’t assume it will always happen. It happened to me on my first TUR – the blackout pain, sweatiness etc – and I feared, needlessly, every one after. It won’t necessarily happen every time.
I drank lots of cranberry juice which seemed to help with post TUR sharpness on peeing. And also, if you don’t mind doing them, keep up with the basic pain meds as they definitely helped me a lot too.
Take care
Tim
Thank you, Rosemary. I appreciate the suggestion. I had read a bit about the spasms and it did cross my mind that that might have been what was going on – though I would have thought spasms would be more like contractions, coming and going, while this was more just straight out pain. No, my Doc did not give me any anti-spasm meds, but I will ask him about that Wednesday. And, thank you for the well-wishes.
Goducks,
I’m wondering if you had a bladder spasm. :-/ Did your Doctor give you meds for spasms? My doctor always made sure that I had plenty of meds after TUR’s in case I had spasms. I’ve never had a spasm, but according to other posters they are pretty painful.
Wishing you luck on the outcome of your biopsy.
Regards,
Rosemary
Rosemary
Age – 55
T1 G3 – Tumor free 2 yrs 3 months
Dx January 2006
After I had my TUR done I had blood in my urine which they said would clear up in time and it did. I also had a stent put in my ureter because I had a blocked left kidney. Now with that it hurt some when I was almost done going. As far as the burning I had no more then I did before I got the TUR done. As far as hurting to the point of passing out or feel like passing out my answer to that is no. Now as far as your wife is concerned yes they are all worried about us or vice versa. I would agree with your wife if you were surfing the net checking everything out cause you will drive yourself nuts. But this is a great forum with good people who can answer most questions you have. I’ll tell you this goducks I personally have got alot of support here and many questions answered and I be lost without this forum because here people care about eachother. We are all different but here you get to exchange experiences and find out things that others may have that are similar to you. If you have bladder cancer this is where you wanna be and this is the best forum on the net plus their website http://blcwebcafe.org. Best Wishes, Joe
Sorry, Messed that up. Let’s start over: Hello, NH. Nope, no pain at all during the bleeding episode and yes, that was the first time I have ever had blood in the urine. It did not reoccur, but, never having seen it before, I called the Doc the next day and have been on this path since, first with testing by my regular Doc, then the referral and now post-TURBT.
Hello, NH.
Welcome goducks71,
I am new here myself. Did you have pain during the bleeding episode?
Was that the first time you had blood in your urine?
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