Home Forums All Categories Metastatic Bladder Cancer Is this the end of the road?

  • Is this the end of the road?

    Posted by on May 6, 2010 at 9:29 pm

    Results from my recent CT scan show that my metastatic disease has spread rapidly. I now have multiple lesions in my pelvis, cancer in my abdominal lymph nodes and some ‘suspicious’ patches on each lung. The enlarged lymph nodes are causing my left kidney to swell so I will need a nephrostomy tube for now and possibly a stent. I have been offered some chemotherapy but no guarantee of success.
    Betsy Mae

    Cynthia replied 14 years, 9 months ago 13 Members · 13 Replies
  • 13 Replies
  • cynthia's avatar

    cynthia

    Administrator
    May 11, 2010 at 2:44 pm

    Anne,

    None of us can see into the future or change it. But I can tell you that our forum family are here for you. Know that you are in my heart and mind.


    Cynthia Kinsella
    T2 g3 CIS 8/04
    Clinical Trial
    Chemotherapy & Radiation 10/04-12/04
    Chemotherapy 3/05-5/05
    BCG 9/05-1-06
    RC w/umbilical Indiana pouch 5/06
    Left Nephrectomy 1/09
    President American Bladder Cancer Society
  • webs's avatar

    webs

    Member
    May 10, 2010 at 6:44 pm

    Sweet Anne,

    CANCER SUCKS!!!!!!!!!!!!!!! I wish I could be there for you my sister of the heart. I am available most of this week. Call, Skype, FB, chat, or email I am here for you.

    (((((Hugs))))

    Char

  • flamenco's avatar

    flamenco

    Member
    May 10, 2010 at 10:06 am

    Anne, I am really sad and angry at the injustice of all this.But Keep strong, this little light of yours will not be diminished.
    Love Diane

  • rockyiss's avatar

    rockyiss

    Member
    May 10, 2010 at 2:24 am

    Dear Betsy Mae , As I read your post and the others I wondered what I could say, the words are so hard to find. I don’t know what your beliefs are but as I thought of you Psalms 91 of the Bible came in to my mind.
    My prayer is for strength and love to fill you and your family as you try to decide what your next move will be, I know the people on this site will be there to give you all the info and support you need . God bless. Rocky

  • moglie's avatar

    moglie

    Member
    May 9, 2010 at 8:31 am

    Anne, please don’t stop fighting this, you can get this back under control. When does the chemo start, are you going into the Christie?
    Thinking of you all, be strong Anne!
    Moglie
    xxxxxx

  • vgau's avatar

    vgau

    Member
    May 8, 2010 at 7:54 pm

    I will be adding extra requests in my prayers for you and wish there was more that I could do.

    Keep the faith,
    Vi


    Dx 10/5 Non Invasive Papillary
  • maz's avatar

    maz

    Member
    May 8, 2010 at 7:58 am

    I’m sending you my most positive thoughts, please keep strong. xx


    Dx-11/12/09 pTa G2
    Mitomycin C x6
  • sara.anne's avatar

    sara.anne

    Member
    May 8, 2010 at 2:17 am

    Anne, you have a lot of friends here rooting for you! We will keep good thoughts

    Sara Anne


    Diagnosis 2-08 Small papillary TCC; CIS
    BCG; BCG maintenance
    Vice-President, American Bladder Cancer Society
    Forum Moderator
  • sandymc's avatar

    sandymc

    Member
    May 7, 2010 at 11:50 pm

    Dear Anne – I am crushed to read this news! You’ve already been thru so much it is totally unfair. Still – I know you will continue to fight so no – this is not the end of the road!

    Please know I think of you every day, Anne. Please take good care!

    Sandy

  • gkline's avatar

    gkline

    Member
    May 7, 2010 at 7:28 pm

    I am so sorry to read this post from you Betsy Mae. I certainly hope this is NOT the end of the road. I will light the candle and say a prayer for you. Please don’t give up without trying to get answers and any kind of help.

    Please Please Please Keep the faith. Even when it is easier to give it a rest.

    George


    Light a man a fire and he is warm for an evening.
    Light a man ON fire and he’s warm forever.

    08/08/08…RC neo bladder
    09/09/09…New Hip
    =
    New Man! [/size]

  • mmc's avatar

    mmc

    Member
    May 7, 2010 at 7:00 pm

    I certainly hope that it is NOT the end of the road. I can’t even imagine. I am so sorry to hear this report and hope that they are able to do something with chemo or something to get the beast back under control.

    Mike


    Age 54
    10/31/06 dx CIS (TisG3) non-invasive (at 47)
    9/19/08 TURB/TUIP dx Invasive T2G3
    10/8/08 RC neobladder(at 49)
    2/15/13 T4G3N3M1 distant metastases(at 53)
    9/2013 finished chemo -cancer free again
    1/2014 ct scan results….distant mets
    2/2014 ct result…spread to liver, kidneys, and lymph system

    My opinions are my own and do not reflect the opinion of ABLCS or anyone else. I am not a doctor nor do I play one on TV.
  • melodie's avatar

    melodie

    Member
    May 7, 2010 at 6:34 pm

    Betsy Mae,

    I’m so sad to read this latest post from you. What to say but that my heart goes out to you and you will be in my daily prayers and thoughts. Big hugs traveling your way…


    Melodie, Indy Pouch, U.W.Medical Center, Seattle, Dr. Paul H. Lange & Jonathan L. Wright
  • 's avatar

    Guest
    May 6, 2010 at 10:45 pm

    Oh CRAP Betsy Mae…..i’m so sorry to hear this news. You’ve fought so hard and so many obstacles thrown at you. One wonders if the lung patches might be due to the radiation after the breast cancer? What can they offer you as secondary treatment?
    My heart is heavy and i wish i knew the right words .
    xxoo Pat

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