Home Forums All Categories Muscle Invasive Bladder Cancer Is there no end to this?

  • Is there no end to this?

    Posted by Dana on July 5, 2011 at 11:19 am

    I just read your message Patricia, sorry I didn’t answer, I just got on the site. My husband is well concerning his problem with blood in the urine, it was scar tissue or residue from the operation.
    We just got our biopsy results over the phone and they weren’t good, My husband was lymph node poitive. I think this will never end, we are going this week to meet our doctor and get the results and then we will meet with an oncologist to determine the chemo therapy he will be doing.
    From what I understood the lymph nodes that were positive were the ones that were removed (as these had the biopsy done).
    I am pretty much in despair and very scared, he seemed to be going so well, I feel as if we get over a hurdle and then there are numerous others. Does this ever end? We get our hopes up only to be let down again.
    Can anyone help me? what does this mean? Are there lymph nodes in his body with cancer? Didn’t the radical cystectomy help?

    p.s I am sorry if I don’t always answer, I am just going through a lot at the moment.

    mmc replied 13 years ago 4 Members · 6 Replies
  • 6 Replies
  • mmc

    Member
    July 6, 2011 at 2:19 pm

    While being prepared for dying is something to think about, it is certainly not time to throw in the towel.

    Chemo can often take care of the remaining cancer in the lymph system.

    I prepared a bunch of things “just in case” when I was first diagnosed. Power of Attorney, living will, a file with all the financial information and passwords, etc. It’s just a good idea to have it. My wife didn’t even want to hear about it so I just wrote it all up and put it in a file and told her where the file was if anything ever happened.

    I’ve now been cancer free for 2.5 years but I still keep the file up to date.

    Let us know what the doctor says when you visit. As Pat said, others here have had chemo after finding lymph involvement and they are doing fine.

    It’s a tough road at times.

    Mike


    Age 54
    10/31/06 dx CIS (TisG3) non-invasive (at 47)
    9/19/08 TURB/TUIP dx Invasive T2G3
    10/8/08 RC neobladder(at 49)
    2/15/13 T4G3N3M1 distant metastases(at 53)
    9/2013 finished chemo -cancer free again
    1/2014 ct scan results….distant mets
    2/2014 ct result…spread to liver, kidneys, and lymph system

    My opinions are my own and do not reflect the opinion of ABLCS or anyone else. I am not a doctor nor do I play one on TV.
  • Dana

    Member
    July 5, 2011 at 6:45 pm

    The blood in his urine has stopped and he had no other symptoms, he’s fine in that sense.
    We didn’t get the biopsy results over the phone, just more of an update, we live very far from the hospital almost a 6 hour drive.
    We wanted to just know if the results were good or bad, we leave tomorrow to see our doctor, discuss the results and then to see our oncologist so we can find out what course of chemo my husband will be following.
    I know I can’t lose faith, but my husband is already talking about death and that we must come to terms with him dying, it’s more than i can handle

  • Guest
    July 5, 2011 at 6:26 pm

    I find it hard to believe they gave you that information over the phone. Did they say how many lymph nodes were involved? One..three?? more..or less?
    Many have found themselves in this position after surgery and have undergone adjuvant chemotherapy and are doing just fine.
    How did they determine the blood was from scar tissue..did the uro do another cystoscopy?
    pat

  • gkline

    Member
    July 5, 2011 at 5:58 pm

    Dana

    Please don’t lose your faith. Now is the time you need it most. There are challenges put before us, and how we handle them is what keeps us going. I know this sounds so cliche’ but now is definately NOT the time to panic and throw away your faith.
    You must keep yourself occupied. Sometimes with very common tasks that can be consuming. With all of this added pressure, YOU are the person your husband is looking to for strength.

    While I am writing this; I had a visit from a wonderful woman whose husband has cancer in his lymph nodes! He is undergoing a Chemo regamin, and she was giving me an update. Everyone needs a shoulder sometimes. Everyone needs someone to help return that positive perspective to you. Do you have family? Or friends who can really help YOU. Right now you are as much of a patient as your husband. It may be hard, but if you can reach out, I am sure there is someone you can lean on. Don’t try to “tough it out” alone.

    We are here for you.

    Sincerely
    George


    Light a man a fire and he is warm for an evening.
    Light a man ON fire and he’s warm forever.

    08/08/08…RC neo bladder
    09/09/09…New Hip
    =
    New Man! [/size]

  • Dana

    Member
    July 5, 2011 at 4:12 pm

    We have found a very good oncologist referred to us by 2 different doctors, (one happens to be a close friend who I totally trust).
    We will be seeing him in a few days, the biopsy for the prostate hasn’t come out yet,(it will tomorrow) I don’t know what to expect there.
    I am really scared now, I am so afraid my husband won’t make it, up until know I thought we were actually handling everything well both mentally and physically(my husband that is).
    I believe in god and have always turned to him for help and hope, but now I am beginning to lose faith, something I don’t want but I just can’t feel differently, I am so scared.

  • gkline

    Member
    July 5, 2011 at 3:39 pm

    Dana
    I know it never seems to end. This Damned cancer is a constant aggressor and every move must be countered. The Neo bladder did indeed help but it seems as though some of the cells made it through the muscle lining and into his body. cancer cells usually go toward the body’s filters; lungs, lymphnodes etc.

    I know this cancer is proving to be aggressive, and the only way to attack it is to be super aggressive in your counterattack. The chemo therapy, even radiation, will need to be aggressive indeed. The lymph nodes that were removed were only a partial portion of his lymph nodes. He has many more, and they indicate the cancer is still in his body. An aggresive treatment is required.

    Please keep us in the information loop. Again, get a GREAT oncologist who knows his(or her) stuff and keep a positive outlook. We are praying like mad for you and your husband. Now is the time for the best oncologist to do his stuff.

    With Love

    George


    Light a man a fire and he is warm for an evening.
    Light a man ON fire and he’s warm forever.

    08/08/08…RC neo bladder
    09/09/09…New Hip
    =
    New Man! [/size]

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