• Posted by michael305 on October 23, 2010 at 10:01 pm

    My surgery for my bc was done on sept 3 by Michael koch at IU in indianapolis . I was walking around the very next 2 days. I was able to leave the hospital after 4 days and go home to fort wayne in.

    Durin my 1st week home about the 4th night I started getting a very high fever and my wife rushed me to a local hospital.they wanted to do some test and I also informed them of my neo bladder surgery. they have never dealt with anyone with a neo bladder for the fact that they(nurses) did not understand the flushing procedure so my wife had to do it.after finding my white blood cells extremely high they confirmed i had a blood infection which originated in my catherter.

    I made so my urologist was informed of my situation because It took 16hrs before I spoke to a doctor and a nurse had stated that they would most likely change my catherter.he told them under no condition should they change that tube and gave me an antibiotic thats used to treat amthrax. I left for home after 3 days and was told that the infection would still be there till the bag was removed.

    I seen my uroligist on the 28 of sept and he was really pleased with his work and ordered the catherter removed thak god!.my next step is learning to go to the bathroom and holding it in at night long enough to wake up and go. I do us a pad although at first i acted too manley and my wife told me to man down a bit so i did. its been inside of 30 days since the removal of my catherter and i was talked into using an external catherter so i would be able to sleep. that was 1 1/2 weeks ago. I recieved a free sample from bio derm and when I ran out i found out my insurance would pay for this but they needed to get an okay from my surgen and he very quickly stated no?

    I was a little upset but thought about it and realized i would never learn to sleep through the night with out this thing if i kept using it. I am now just waking up 2 maybe 3 times a night to empty my bladder and also do not dring fluids after 7 pm. I am so happy and the best park thank god is that I have not gotten clogged with mucas and have not had to catherter myself. I thought my life was over because of my bladder and prostate being removed and having a new bladder made from a piece of my intestine but i was wrong. oct 28 my urologist will inform me of any needed chemo being he told me on the 28 of sept i wouldnt need it but wanted to check with his oncologist and get his opinion. I am 47 yr old male in fairly decent health and in good shape btw. please feel free to place this where it should go

    GKLINE replied 13 years, 1 month ago 8 Members · 25 Replies
  • 25 Replies
  • gkline

    Member
    October 22, 2011 at 6:03 pm

    Way to Go Mike!!!!! With that personality, you won’t be vacationing for long. Someone is going to hire you soon, and then; Back to work :(

    George


    Light a man a fire and he is warm for an evening.
    Light a man ON fire and he’s warm forever.

    08/08/08…RC neo bladder
    09/09/09…New Hip
    =
    New Man! [/size]

  • Guest
    October 22, 2011 at 3:50 am

    Hi Mike,
    Glad to see your post and so glad everything is working out for you. Dr. Koch one of my favorites..what a nice person and, of course, top uro.
    Congrats :silly:
    pat

  • Michael305

    Member
    October 21, 2011 at 3:17 pm

    Michael305

    Member
    March 28, 2011 at 10:20 pm

    Yes Mike Time Does Fly!
    Thank You All for your kind words..

  • jimswife

    Member
    March 28, 2011 at 8:00 pm

    Congrats on the great report, Mike, so glad for your results. We will get an 8 mo report on Jim on Friday and hopefully great news like you have! Good show!!!

  • catherineh

    Member
    March 26, 2011 at 4:44 pm

    Michael… congrats on your most excellent report! Glad you are doing so well and are back to work. Hats off to all our wonderful doctors and surgeons!


    Best wishes… Catherine

    TURBT 1/21/10 at age 55
    Dx: T2aN0M0 Primary Bladder Adenocarcinoma
    Partial Cystectomy 2/25/10
    Vanderbilt Medical Center
    Nashville, TN

  • mmc

    Member
    March 26, 2011 at 12:28 pm

    Michael,

    Congrats on the great news! I’m up to annual visits now and you will be too. Moving from 3 months, to 6 months, to annually is kind of like a graduation with all the joy that comes with it.

    Mike

    P.S. WOW! Time flies! I can’t believe it has already been 5 months since you started this thread!


    Age 54
    10/31/06 dx CIS (TisG3) non-invasive (at 47)
    9/19/08 TURB/TUIP dx Invasive T2G3
    10/8/08 RC neobladder(at 49)
    2/15/13 T4G3N3M1 distant metastases(at 53)
    9/2013 finished chemo -cancer free again
    1/2014 ct scan results….distant mets
    2/2014 ct result…spread to liver, kidneys, and lymph system

    My opinions are my own and do not reflect the opinion of ABLCS or anyone else. I am not a doctor nor do I play one on TV.
  • Michael305

    Member
    March 25, 2011 at 1:34 pm

    Thank you too Motormike and yes good news is always great!

  • motomike

    Member
    March 25, 2011 at 4:53 am

    Thanks for bringing this thread back. I read it from the beginning and it was great. Good news is always my favorite.


    I’m 70, retired heat/air contractor. After 4 months of keymo ileal conduit (IC) surgery removed bladder & prostate May 2010
  • Michael305

    Member
    March 25, 2011 at 1:17 am

    Thank you dukel I appreciate Hearing This From You! I just Wish Every one Could Just walk Away From This Monster.

  • dukel

    Member
    March 24, 2011 at 3:46 am

    Michael, It’s good hear you are doing well. I am a little over a year out from my neo surgery and i can tell you that for me things have continued to get better. I hope things continue to get even better for you as time goes on.
    Duke

  • Michael305

    Member
    March 22, 2011 at 11:16 pm

    Well it has been a while since my last post. I am glad to say that I have been at work and hod no issues what so ever. My sleeping now is a whole lot better as far as how many times I have to get up. I awaken every morning between 330 am to 4 am 1 time verses 3 prior then sleep for rest of morning.

    I had my 1st 3 month visit and Dr Koch was really Proud of himself when he asked me how I was getting along and I stated I felt as normal as anyone else except I have a neo bladder. He then informed me of my results on my CT with Dye and my blood work was excellent. So after expecting him to tell me I see you in another 3 months instead he gave me 6 months.

    I hope all the best and will also keep all updated as well.

    michael..

  • Michael305

    Member
    October 30, 2010 at 6:24 pm

    Thank you guys, Sometimes I guess ive come off too happy lol but i am. I know its only 2 months but it feels good to see major accomplishments for me its been rough a couple times and I have a long road ahead of me as well. I really do want to thank the Admins for this forum and its members as well. my buddy just informed me he has prostate cancer and I told him id be there as well with prayers and support.One day they will find a cure for this beast and I hope to be alive to see it B)

  • gkline

    Member
    October 30, 2010 at 2:07 pm

    Yeeeeeeaaaaahhhhh! Congratulations!!

    I just don’t know about this “work” thing. :laugh: :laugh:

    Goerge


    Light a man a fire and he is warm for an evening.
    Light a man ON fire and he’s warm forever.

    08/08/08…RC neo bladder
    09/09/09…New Hip
    =
    New Man! [/size]

  • mmc

    Member
    October 30, 2010 at 11:52 am

    Yay!!!!! Great News Michael!
    Everything you were hoping for.

    All the best!
    Mike


    Age 54
    10/31/06 dx CIS (TisG3) non-invasive (at 47)
    9/19/08 TURB/TUIP dx Invasive T2G3
    10/8/08 RC neobladder(at 49)
    2/15/13 T4G3N3M1 distant metastases(at 53)
    9/2013 finished chemo -cancer free again
    1/2014 ct scan results….distant mets
    2/2014 ct result…spread to liver, kidneys, and lymph system

    My opinions are my own and do not reflect the opinion of ABLCS or anyone else. I am not a doctor nor do I play one on TV.
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