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inflammation or scar tissue after bcg
Had cysto yesterday 6 weeks after bcg treatment. Doc sees more inflammation on left side of bladder than on the right. Said it could be scar tissue on left due to two previous biopsies done. I’ll have cytology results tomorrow. If negative, I follow up in 3 months. If positive, he will do biopsy. Anyone have an experience like this? I’m so scared.
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8 Replies
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Such great news, thanks for sharing that.
8/20 tumor found, 2 TURB with stent, tumor resected from bladder, another portion lasered from ureter, Toa,papillary urothelial carcinoma, non-invasive, high grade, BCG began Oct 22,2020
I was diagnosed first with papillary and the path report stated that there were areas of “inflammation.” My urologist was concerned with these and did a second TURB where he paid special attention to these areas and the second path report noted that I had CIS, which is always high grade. I then had a six-week course of BCG. After that a cystoscopy was clear of any malignancy and I started maintenance BCG, three once-a-week doses every three months for a period of about 2 years.
Been cancer-free now for over 12 years.
Sara Anne
Diagnosis 2-08 Small papillary TCC; CIS
BCG; BCG maintenance
Vice-President, American Bladder Cancer Society
Forum Moderator
Sara, after your BCG 6 wks and BCG maintenance, did you have any recurrence? Do you still have your bladder? thank you for the help and information
8/20 tumor found, 2 TURB with stent, tumor resected from bladder, another portion lasered from ureter, Toa,papillary urothelial carcinoma, non-invasive, high grade, BCG began Oct 22,2020
I relied on my urologist to make that diagnosis. Instead of a day or so of burning/urgency, it went on longer than HE thought normal. And at my three-month cystoscopy there was a lot of irritation evident in the bladder.
Sara Anne
Diagnosis 2-08 Small papillary TCC; CIS
BCG; BCG maintenance
Vice-President, American Bladder Cancer Society
Forum Moderator
In your case, how was it a “not normal” side effect? In other words, how did you know it was not a typical BCG side effect, since both burning and urgency are a side effect of BCG? thank you for your information
8/20 tumor found, 2 TURB with stent, tumor resected from bladder, another portion lasered from ureter, Toa,papillary urothelial carcinoma, non-invasive, high grade, BCG began Oct 22,2020
My urologist diagnosed it. I had a lot of urgency and burning, beyond what was “normal” as a BCG side effect. He did a cystoscopy and saw a lot of angry irritation. We put off BCG for a couple of weeks until it healed.
Sara Anne
Diagnosis 2-08 Small papillary TCC; CIS
BCG; BCG maintenance
Vice-President, American Bladder Cancer Society
Forum Moderator
Sara, how is BCG irritation/cystitis determined? How did you know you had it during BCG?
8/20 tumor found, 2 TURB with stent, tumor resected from bladder, another portion lasered from ureter, Toa,papillary urothelial carcinoma, non-invasive, high grade, BCG began Oct 22,2020
Yes, it could be scar tissue from the biopsies or it could be something call BCG-cystitis. BCG can be very irritating to the bladder lining. Not time to panic yet! Multiple times I had to delay additional BCG treatments due to BCG induced irritation.
Sara Anne
Diagnosis 2-08 Small papillary TCC; CIS
BCG; BCG maintenance
Vice-President, American Bladder Cancer Society
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