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I’m back
I have posted this on the non-invasive board but am posting this here as well in case you guys have a different perspective based on your personal experiences.
For those of you who don’t know me a brief summary. I’m a pediatrician, diagnosed with TCC TaG3 + CIS 12 years ago. I was treated by TURB & intravesical mitomycin C. I developed a major problem with a urethral stricture which is when I learned about this support group and became a member. In 10/2009 I finally had a urethroplasty to repair the stricture just in time to deal with a recurrence of CIS after 10 years cancer-free. I was treated with BCG, and 1 year later had a recurrence of CIS treated with BCG/interferon. I had consulted specialists at Weill-Cornell and NYU, who agreed that this was a reasonable approach and that a recurrence after that would require a cystectomy. 6-7 months after my last set of biopsies and 3 months after BCG/interferon my biopsy shows high grade TCC with invasion of the lamina propria making it T1G3. My opinion is that this is a rapid enough progression to make it wise to get this bladder out before it becomes muscle invasive, even though it is not a recurrence of CIS (which I’m betting would happen within the year anyway). I have forwarded the biopsy reports to the specialist at NYU. I welcome your opinions. -Warren
-Warren
TaG3 + CIS 12/2000. TURB + Mitomycin C (No BCG)
Urethral stricture, urethroplasty 10/2009
CIS 11/2010 treated with BCG. CIS 5/2012 treated with BCG/interferon
T1G3 1/2013. Radical Cystectomy 3/5/2013, No invasive cancer. CIS in right ureter.
Incontinent. AUS implant 2/2014. AUS explant 5/2014
Pediatrician