Home Forums All Categories Chit Chat I say a big THANK YOU Bladder Cancer Web Café….

  • I say a big THANK YOU Bladder Cancer Web Café….

    Posted by Leigh on May 29, 2008 at 9:52 am

    People touch our lives in so many ways and I have noticed that when in need and at a point in life when we are starting to fall, hands seem to appear out of nowhere to offer support to get back on our feet again.

    Even thoughts have such a great power because sometimes we find it hard to reach out and ask for any help and hold our pains inside.

    I have struggled with life at many times during my 38 years on this floating spinning ball we call earth. I have been extremely lucky to have many caring hands held out to me when I have fallen of which I am so grateful for.

    Since my diagnosis I have been a member of this wonderful site and through the forums guidance my bladder cancer journey has been eased.

    My fellow bladder cancer warriors and the wonderful caregivers at this site have supported me since my diagnosis last July. Searching out people dealing with the same issues has helped immensely and I am deeply appreciative of the fantastic help I have received.

    I receive caring, wonderful, inspirational messages from many people around the world offering support and advice. The sharing of personal experiences on this site helps many seeking out help during desperate times after diagnosis. When anyone is diagnosed with cancer we slip into a zone of deep dark and scary thoughts until we understand and research and seek help.

    The bladder cancer web café has been my second home for nearly a year now. Having this ability to connect with fellow patients has filled me with the strength and motivation to continue the fight and remain positive even during times of despair. I admire the unconditional loving support given by all and the way in which personal stories are told that we can read and relate to and most of all it proves that we are not alone in our fight.

    I say a big THANK YOU Bladder Cancer Web Café and all of the wonderful forum members and long may people in need be given that helping hand of love and support……

    Leigh


    Leigh, 39
    Dx July 2007
    TURBT July 2007
    RC/Neobladder ,Studer Pouch, September 2007
    Erasmus Centrum Rotterdam
    TNM Classification: pT4 N2 Mo
    4 cycles aduvant chemo Gemzar & Cisplatinum
    marie replied 16 years, 8 months ago 8 Members · 8 Replies
  • 8 Replies
  • marie's avatar

    marie

    Member
    June 21, 2008 at 7:10 pm

    Dear Leigh,
    That was well said, and I too am so appreciative of the people on this forum. I read it frequently, and I’ve been helped by so many. I think of you and everyone on here often…hugs to you.
    Marie
    (RC Jan 18/08 – slowly getting back to hectic life with my 3 kids and trying to to be too stressed)

  • rockyiss's avatar

    rockyiss

    Member
    June 6, 2008 at 3:04 am

    Hi Leigh, I think sometimes this big ball were all on spins alittle to fast and we end up hanging on by our finger tips! It’s funny but no matter where everyone is, when we look up we all see the same sun, moon, and stars. My prayer for you Leigh is that the world slows down some so you can relax and not have to hang on so tight and wear yourself out. God bless, Rocky

  • N3qtrtme's avatar

    N3qtrtme

    Member
    June 4, 2008 at 7:41 am

    It’s been a little over a year now since I went though diagnosis, chemo, several TURBT’s, a studer pouch created and all the education that goes with major lifestyle modification. All of the wonderful friends on this message board have helped me through the process and helped provide hard to find answers, experiences, and suggestions. The help provided made navigating this whole bizarre and unexpected cancer situation as easy as it could possibly be. A huge thanks to you all! I look forward to reciprocating the support and information and doing what little I can to help others through their bladder cancer experiences.

    My 6 month check-up on 12/29/07 came up clean… YEAH! I am also now somewhat of an expert on possible treatments for hypercontinence issues related to the studer pouch and internittent self-catheterization (as well as techniques for keeping catheters on-hand while still living a very active lifestyle).

    If I can be of help to any of you all, let me know. I look forward to getting to know you all better!

    Christine


    Christine Springfield
    T3/G3 – Squamous Cell/Transitional Cell Carcinomas
    RC w/Studer Pouch 4/25/07
  • 's avatar

    Guest
    June 4, 2008 at 3:57 am

    Love to you and yours LEIGH, WISH WE ALL COULD MEET, HOW ABOUT VEGAS!!!!Ginger

  • clara's avatar

    clara

    Member
    May 30, 2008 at 1:44 pm

    Leigh,
    You are such a kind and thoughtful person.

    This site has been wonderful for me, I feel that it is the only place I can go that people really understand what we are going through.

    Clara


    Caretaker of husband, Bob.
    Stage IV
    Diagnosed Jan, 2007
  • bobmac2's avatar

    bobmac2

    Member
    May 29, 2008 at 9:00 pm

    Leigh, that was beautifully said. This site has taught us more than we ever thought we wanted to know about Bladder Cancer, and that mankind has NOT gone to hell in a handbasketand -that people the world over are kind and helpful.
    In appreciation of all our new friends- Lorrie

  • 's avatar

    Guest
    May 29, 2008 at 8:45 pm

    Leigh that is very well written and so sincere I wish you the best on this spinning ball we call eath as you say as I know you have been through quite a lot. I know it may be hard at times but from what you wrote you have extreme inner strength and kindness. Your Friend, Joe ;)

  • momof4's avatar

    momof4

    Member
    May 29, 2008 at 12:53 pm

    Leigh, you are a beautifully sincere man…and I Agree!!!!

    Here Here (Hear Hear???) :-)

    Karen


    Caregiver for my Wonderful Husband Angelo, who has Metastatic Bladder Cancer.

    Life isn’t about how to survive the storm, but how to dance in the rain.

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