My first clues were UTIs. Then I noticed some blood but no clots. That’s when I had CIS back in 2006.
In September of last year, I had some blood clots. It was shortly after having a cysto that looked all clear. Called my Uro and he brought me in the next day for another cysto. It also looked clear but he did an NMP and FISH test and those both showed the cancer had returned. The clots would come every couple of days or a week but when they looked in nothing looked out of the ordinary.
It can be strange. Now that you’ve had a tumor, any time you have clots appearing you should mention it to your uro.
Mike
Age 54
10/31/06 dx CIS (TisG3) non-invasive (at 47)
9/19/08 TURB/TUIP dx Invasive T2G3
10/8/08 RC neobladder(at 49)
2/15/13 T4G3N3M1 distant metastases(at 53)
9/2013 finished chemo -cancer free again
1/2014 ct scan results….distant mets
2/2014 ct result…spread to liver, kidneys, and lymph system
My opinions are my own and do not reflect the opinion of ABLCS or anyone else. I am not a doctor nor do I play one on TV.
Britt,
I passed blood clots just once and IMMEDIATELY called my family doc. He took a urine sample and treated me for an infection. After a week a urine test still showed microscopic blood so he sent me to a URO. Sometimes it’s stone, sometimes there are unexplained never diagnosed bleeding. For me it was a small tumor. The consensus was (I was taking heavy doses of aleve/not ovredoses for a little arthritis) the aleve helped cause the bleeding. That kind of drug can cause it anywhere in the body. URO ordred a CT scan-pathologist missed it (.5 CM) and said no tumors visisble. My URO looked at the film also in the 1/2 hour to dress & drive this office. He saw a shadow-he was going to scope me either way and found it!
DX 5/6/2008 TAG3 papillary tumor .5 CM in size. 2 TURBS followed by 6 instillations of BCG weekly with a second round of 6 after a 6 week wait.
Britt, some have some blood, some never have any (me, for example.) Some have it once..some often. My father had a very small amount ONCE. Luckily, he went to the doctor. In his case it was kidney cancer.
That is why you see the advice that if anyone EVER sees blood they get to a urologist.
Sara Anne
Diagnosis 2-08 Small papillary TCC; CIS
BCG; BCG maintenance
Vice-President, American Bladder Cancer Society
Forum Moderator
Thanks Pat. I was just curious as to why if it was caused be the cancer that it didnt happen more often.
Its a tricky little monster..sometimes its just microscopic that you can’t even see……sometimes it appears as very dark tea colored urine that you attribute to something you’ve eaten…….you may only have one incidence of passing blood clots or several………it takes on many forms. Its your bodys little warning light that should alert you to a problem but often goes ignored by patient and uro alike.
Pat
Sign In to reply