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How did a popularity contest become a part of cancer survivorship?
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BTW
When I wrote this I talked to Patricia to make sure she knew I was not saying there was anything right about having any cancer. She understood of course but what surprised me is she told me that she is not finding a lot of support at breast cancer sites who would have thought?
As for being a bladder cancer survivor I was once told that the moment you are diagnosed you become a survivor. Give yourself some time and you will understand that living with your cancer will make you proud to say you are a survivor someday.
Cynthia Kinsella
T2 g3 CIS 8/04
Clinical Trial
Chemotherapy & Radiation 10/04-12/04
Chemotherapy 3/05-5/05
BCG 9/05-1-06
RC w/umbilical Indiana pouch 5/06
Left Nephrectomy 1/09
President American Bladder Cancer Society
I think some things become popular because of the rich and famous that contribute to causes. These are also usually due to being a survivor. Not very many people call themselves bladder cancer survivors since it is a lifetime worry.
It sure was something new to me and the few people I have shared this with had never even heard of it.
Dx 10/5 Non Invasive Papillary
Pat–
In my book you are already high in my “most popular” book!Have you posted yet about your trip to MSK? Did I miss it?
Ann
Small TA Grade 1, May-06; recur (2 tiny), same, June-08; TURBTs both times. BCG begun July-08, dosage to 1/3rd May-10, completed treatment December-11. All clear since 2008.funny..i don’t feel more popular?
Pat
I really agree with your feelings Cynthia. There have been recent events in our area for cancer survivors and their loved ones, and I felt no desire at all to become involved, since all I read about in connection with the events was breast cancer. These were the only people mentioned, the only ones being interviewed, the only ones in the news. Do you think gender plays a role in the relative lack of visibility for bladder cancer? I’m going out on a limb here, but maybe it has something to do with the fact that more men are afflicted with BLC than women, and in general men are more reticent about talking about illness in general, and their own bodies in particular. Men are less apt to seek “group” support, and many want to keep things to themselves. (Excepting the many men here on the forum who are very open and very forthcoming.)
Ann
Small TA Grade 1, May-06; recur (2 tiny), same, June-08; TURBTs both times. BCG begun July-08, dosage to 1/3rd May-10, completed treatment December-11. All clear since 2008.Sign In to reply.
