I now have a neobladder. the surgery went well but I had an ileus (intestinal shudown) that knocked me out royally for a week and kept me in the hospital that much longer as well. It finally cleared without additional surgery and I am now back at home. The biggest challenge for me so far has been getting my bowels to settle down. Still walking a bit hunched over but glad for lack of pain. Pretty much just tylenol a few times a day keeps me fine.
Got the pathology reports back and it appears that the biopsy had gotten all of the invasive part of the cancer in the bladder. there was additional CIS in the bladder, but ureters and urethra and prostate all clear. All 41 lymph nodes were clear!!!! So, no chemo.
Thanks again to everyone who gave me info on the neobladder.
Age 54
10/31/06 dx CIS (TisG3) non-invasive (at 47)
9/19/08 TURB/TUIP dx Invasive T2G3
10/8/08 RC neobladder(at 49)
2/15/13 T4G3N3M1 distant metastases(at 53)
9/2013 finished chemo -cancer free again
1/2014 ct scan results….distant mets
2/2014 ct result…spread to liver, kidneys, and lymph system
My opinions are my own and do not reflect the opinion of ABLCS or anyone else. I am not a doctor nor do I play one on TV.
So glad to hear you are home and on the road to full recovery! Harry can relate to your bout with ileus…he also had that problem AND an infection that kept him in the hospital 28 days! His surgery was 10/1/07, so we keep thinking … a year ago today … we were still at Stanford…ugh! I told him we should celebrate on 10/28 to mark the anniversay of his hospital release!!! Glad to hear no chemo is needed. Best wishes for a full recovery ahead. Don’t get too discouraged, it will take a while for your body to regroup and get back to normal…patience. (easier said than done!) Harry and Margot
Yes, it turned out that there was no kidney involvement. They also did biopsies on the ends of the ureters and end of the urethra while they were there. All that was clear.
Age 54
10/31/06 dx CIS (TisG3) non-invasive (at 47)
9/19/08 TURB/TUIP dx Invasive T2G3
10/8/08 RC neobladder(at 49)
2/15/13 T4G3N3M1 distant metastases(at 53)
9/2013 finished chemo -cancer free again
1/2014 ct scan results….distant mets
2/2014 ct result…spread to liver, kidneys, and lymph system
My opinions are my own and do not reflect the opinion of ABLCS or anyone else. I am not a doctor nor do I play one on TV.
Guest
October 23, 2008 at 5:43 pm
Mike……..way to go!! What great news and i’m so glad they took the 4l nodes….So i’m assuming the kidneys were not really affected as you thought?
Good work on being a knowledgable consumer!!!
Yeah…i remember that ileus…i had it also..unfortunately mine did not resolve and i had to have a second surgery…no fun at all…silly part of my small intestine got trapped under my ureter!!
And yes the bowels are very angry creatures with this surgery but they are forgiving eventually. You will regain strength a day at a time and you’ll no longer be Igor for long!! Congratulaions………Pat
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