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  • Hi sorry I have been a stranger

    Posted by lisaloo on July 8, 2008 at 7:16 pm

    Hi
    Just wanted to say hello really I seem to have been MIA for a while and have struggled to come to terms with my change in status.
    I have had some radiotherapy which seems to have been really effective at shrinking the pelvic tumours I had slightly less so the bowel tumour but I am going in for a slow low dose treatment over the weekend which my doctor hopes will get that under control.We have been on holiday and I feel ok in spite of my prognosis.I progressed during chemotherapy at the highest therapeutic dose so there seems little point in going back to that
    I am so sad to see that Zachary is having a rough time just now but hope the trial does its job and want to send Susan all my best wishes.Holly is fantastic and has been in touch by email and is such an amazing support.
    I am not very good at this really I feel a bit of a fraud because just now I feel ok.Its just hard to admit that there isnt going to be a good ending to this story
    Lots of Love to all Lisa x

    momof4 replied 16 years, 7 months ago 5 Members · 8 Replies
  • 8 Replies
  • momof4's avatar

    momof4

    Member
    July 9, 2008 at 3:14 pm

    Lisa….don’t feel guilty about feeling good right now…enjoy it and enjoy your children…I also have little ones (4 and 8) and I totally understand that any good day is a miracle…you are not a fraud…just trying to stay alive like the rest of us…wishing you many many good days….

    Karen


    Caregiver for my Wonderful Husband Angelo, who has Metastatic Bladder Cancer.

    Life isn’t about how to survive the storm, but how to dance in the rain.

  • leigh's avatar

    leigh

    Member
    July 9, 2008 at 9:20 am

    Dear Lisa,

    I am happy you have checked in with us again…and so pleased the radiotherapy is having a positive effect.

    Wishing you all the very best with your next treatment this weekend..

    Leigh


    Leigh, 39
    Dx July 2007
    TURBT July 2007
    RC/Neobladder ,Studer Pouch, September 2007
    Erasmus Centrum Rotterdam
    TNM Classification: pT4 N2 Mo
    4 cycles aduvant chemo Gemzar & Cisplatinum
  • Julieann's avatar

    Julieann

    Member
    July 9, 2008 at 12:58 am

    I’m going to try again.;) As I was saying, I can relate to what you said about sometimes feeling like a fraud. I feel that way often because I am not the patient and also at the moment, Mama is doing ok. I guess what we all have in common is wondering what is next. I find that I thrive from the info, support, and friendships here. Stick around!:)

  • Julieann's avatar

    Julieann

    Member
    July 9, 2008 at 12:37 am

    not sure what happened???????????????????

  • Julieann's avatar

    Julieann

    Member
    July 9, 2008 at 12:34 am

    Welcome back! I can relate to what you said about feeling like a fraud a bit. I often fe

  • 's avatar

    Guest
    July 8, 2008 at 11:59 pm

    Hi Lisa loo,

    Nice to hear from you again, you’ve been away to long, hope things get better for you everyday,,,Ginger

  • 's avatar

    Guest
    July 8, 2008 at 10:17 pm

    Hi Lisa,

    I am so glad the radiotherapy has been so beneficial for you – even to enjoy such a wonderful vacation with your family. I do want to add that you are a wonderful support for me, too. The past few months and changes in status for myself has been a bit hard to take. Most days I am not sure how anyone can help but having good friends makes all the difference. God Bless, and welcome back B) Holly

  • 's avatar

    Guest
    July 8, 2008 at 9:04 pm

    Nice to hear from you again Lisaloo I was wondering where you been. You are in my prayers and I hope things find some way of working out for you. Your Friend, Joe :)

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