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Having trouble making neobladder work??
My husband had a cystectomy with neobladder done on 2/1/2007. After 6 weeks in the hospital due to complications with a peferated innner incision and an ileus( intestines shut down) they took out the foley catheter and we have been home for 2 weeks now. He still has the supra pubic in . His regime is to try to void every 2-3 hours( no more) then empty the residual through th supra pubic. Bottom line is he just is not able to void through his penis unless he is having a bowel movement. So that gave us a little clue – – that he needs to try to use the same muscles. But he rarely has results. Although he rarely has leaking problems during the day. He has off and on leaking at night depending on how often he gets up. Dr did not give any how to’s. We have a follow up appt tomorrow. Can you give him any clues or tips on how to help himself use the bladder??
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3 Replies
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that sounds pretty unlucky jlake. my experience is similar to Zahary. great during the day but still unreliable at night. my stress and tiredness levels play a big part. the more tired I am the more leaky.
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We found out why he was having trouble voiding . Last Monday he had opt surgery to reduce the scar tissue at the opening of the urethra. It was almost completely obstructed. He now has a foley in and a suprapubic. We are 3.5 months post op.
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Your husband definitely should have had instructions when they removed the catheter.
Yes, urinating for him will be a very different experience. The muscles used are like having a bowel movement–he’ll soon get the hang of it, though.
He’s still pretty new to this, and it takes time. I wasn’t continent in the daytime for three months after my surgery, and nights are still not dry.
Write down any questions in advance for your doctor.
Best of luck to you both; I’m sure things will be back to semi-normal in due time.
“Standing on my Head”––my chemo journal
T3a Grade 4 N+M0
RC at USC/Norris June 23, 2006 by Dr. John SteinSign In to reply.