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gross hematuria
2 years ago I had a large bladder stone removed twice as all of it wasn’t crushed or removed the first time. Recently, I noticed that after a round of golf, I have gross hematuria. I have also felt like I have something inside making my bladder sore. Sort of the same feeling as when I had a bladder stone. I probably also have BPH as since taking uroxatral my urinating at night has decrease to 1 or at the most 2 times.
I really don’t want an invasive test like a cystoscopy as the first line of defense since afterwards you are sore and its hard to urinate for the first time because of the soreness of the invasive test. Urodine etc. doesn’t really do the trick, yet I know I should rule out bladder cancer even though the bleeding occurs after either a round of golf or a fast run around the track or some physical athletic activity.
I know that its probably out of sequence but I want to try to get a CT scan first and cytology of the urine before any invasive test like a cystoscopy. I’m not sure if I can get the urologist to do these first for most urologists like to have you make multiple visits instead of getting noninvasive tests first. At least a CT scan would tell me if its a bladder stone and the urine cytology would pick up any sluffed of cancer cells.
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7 Replies
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You’r welcome Rebel.
Remember we are here if you need us.
Mark
Age 55
Diagnosed BC 12/20/2011 Ta No Mo 0a Non-Invasive At age 48
“Please don’t cry because it is over….. Smile because it happened!” {Dr. Seuss} :)
Thanks so very much for your sincere reply Mark. Perhaps, I can get a prescription for pain medication just so I can keep my bladder muscles open long enough to let the first urine stream out. The tingling is probably what the issue is here as it seems that I’m not sure how much its going to hurt so I naturally tighten up just when I’m about to release the urine. Anyway, again thanks for the thoughtful reply and I think you are such a courageous being to be going through this every 3 months.
I get a scoping done every 3 months, The urge to urinate is kind of strong for about the first 2-3 hours. Then it gets better as the day goes on. The next day you are fine.
As far as the first time you try to release urine after a cysto, there should be no real bad pain. Just a very small amount of tingling at best. If you have anything more than that get a hold of your Uro and find out what is wrong.
It’s really no big deal, and only takes a few minuets.
First off they usually do a CT scan, then a cysto. I even had an Ultra-sound once before the scoping.
Talk to your doctor and your Urologist about any questions or fears you may have . They should be able to answer all your questions and calm your fears.
Remember if you don’t fully understand something, ask them to clarify again. They are depending on you to ask questions. They can’t read your mind, or tell what you are feeling. Write down a list of concerns before you go in.
Most people only listen to their doctors. That’s so wrong. Doctors hate that. Be honest and open with them so they can make a good diagnosis with the info you give them.
Hope that helps.
Mark
Age 55
Diagnosed BC 12/20/2011 Ta No Mo 0a Non-Invasive At age 48
“Please don’t cry because it is over….. Smile because it happened!” {Dr. Seuss} :)
Thanks Mike. I think my issue is regarding that burning feeling when your ready to release the urine for the first time after the procedure. I seem to automatically tighten up my bladder muscles when I feel the burning, so the end result is that I’m not able to relax long enough to let the stream flow out the first time. Once I let it out, then I have no problem going again. It must have something to do with anticipating how much its going to burn as the urine is coming out.
The urodine (pyridium) seems effective only after you let the first urine stream out. The urine seems to have to flow through in order to get a benefit from the pyridium.
Oh heck no!!! You are in for a pleasant surprise. :)
Well…that is if you call any of this stuff pleasant.
The normal from procedure for the cystoscopy (in-office) is to put some lidocaine numbing gel in the penis. Then wait 10 minutes to let it do the job. Then they use the cystoscope. The part that ranges from “ouch” to “HOLY CRAP I LEVITATED OFF THE TABLE AND HIT MY FACE ON THE CEILING” is when the scope goes through the prostatic sphincter. Usually, after that it is just weird feeling.
Then they give you an antibiotic and send you on your way and there is no problem with urination or any problems. If you are concerned there might be, ask for some pyridium (phenazopyridine). It turns your urine bright orange but it is a bladder pain reliever. If you then have any problem, take as directed. You can even get them over the counter.
It is a good thing to be uptight about having things inserted in your penis. Probably even Darwinian. :D
Mike
Age 54
10/31/06 dx CIS (TisG3) non-invasive (at 47)
9/19/08 TURB/TUIP dx Invasive T2G3
10/8/08 RC neobladder(at 49)
2/15/13 T4G3N3M1 distant metastases(at 53)
9/2013 finished chemo -cancer free again
1/2014 ct scan results….distant mets
2/2014 ct result…spread to liver, kidneys, and lymph system
My opinions are my own and do not reflect the opinion of ABLCS or anyone else. I am not a doctor nor do I play one on TV.
Thanks for the sincere information. Actually, I haven’t had a cystoscopy before. The bladder stone removal and the 3 day catheter that followed made it so hard to release urine the first time and that is why I am so uptight about having any instrument inserted in my urethra (penis). I imagine that a cystoscopy makes you sore the same as the instruments for bladder stone removal.
Rebel,
Not sure what you are hoping we can do here. Sounds like you should simply call your own urologist, tell them you had a stone before, describe your symptoms and see if they can do things in the order you want (or at least explain why they can’t).
Cystoscopy, from my limited knowledge, is still one of the best things to do in order to have the doctor see for themselves in the case of gross hematuria. Not everything shows up on a CT scan.
For example, what if you had another stone (which shows up on CT) but that isn’t what is causing the bleeding. Maybe bladder cancer is causing the bleeding. Maybe not, but what if?
Cytology has false positives and false negatives so it is wise to look via cystoscopy. Maybe someone did a bad one on you before because it really shouldn’t cause problems beyond the discomfort during the procedure.
In any case, the best bet is calling your urolgist (or even other ones if your urologist doesn’t want to do it in the order of your preference and can’t convince you that it is a better approach).
Good luck! Hope it is just another stone!
Mike
Age 54
10/31/06 dx CIS (TisG3) non-invasive (at 47)
9/19/08 TURB/TUIP dx Invasive T2G3
10/8/08 RC neobladder(at 49)
2/15/13 T4G3N3M1 distant metastases(at 53)
9/2013 finished chemo -cancer free again
1/2014 ct scan results….distant mets
2/2014 ct result…spread to liver, kidneys, and lymph system
My opinions are my own and do not reflect the opinion of ABLCS or anyone else. I am not a doctor nor do I play one on TV.Sign In to reply.
