• Suzi

    Member
    December 11, 2008 at 5:31 pm

    Ann,
    You right, I have these questions to my Uro, and he just answered that since it has been tow years the last TURB and all cysto came clear , he decided to move me to a yearly cysto. I am still not believing that but cause he is my Uro and I need to trust him and I love the idea that I am doing good I just happy and wish it’s safe to be on a yearly cysto. you know we all need some good news even if we have some skeptical feeling. just hoping it is right.
    Suzi


    Be strong and don’t give up.
    a warrior
  • nix

    Member
    December 10, 2008 at 11:57 pm

    Suzi, Congrats! That is ALWAYS good news for all of us to read!

    Ann,
    My schedule is the same as yours. I guess not everyone follows the same schedule. If I have three more clean cystos then I can move to 6 months for three years – that is fine with me!

    Nix


    Nancy S
    Ta CIS
    dx Ta 11/06
    dx Ta CIS 10/07
  • Moonerj

    Member
    December 10, 2008 at 8:06 pm

    Hi Ann

    The reason my URO moved me to 6 months cycos after 1 year free, is because my monthly BCG treatments have been working so well, no cancer cells in my urine or blood. I still have 2 monthly BCG treatments left.
    If everything is fine in April, he will then start me on Dr. Lamm’s recommended annual BCG maintenance schedule. I am wishful thinking, that I would start 1 year cycos next year. My URO insists on 6-month Cysos until 5 years tumor free. I am like you Superficial Stage 1.
    Sorry for the confusion.
    Jack


    TA Grade 1
    3 Turbts
    30 BCG Treatments
    Cancer Free since Nov 2007
  • pemquid

    Member
    December 10, 2008 at 6:32 pm

    From these posts, it looks as though there are people whose doctors are moving them to cystos every 6 months after one year of all clear 3-month check-ups. Or, am I misreading the posts? My doctor does cystos every 3 months for two years, before switching to every 6 months for the next 3 years, then annual after that (assuming all clear all that time). I thought this was the standard. I was unfortunate enough to have a recurrence at exactly the 2-year mark from the initial tumor (low grade, non-invasive), just when I was looking forward to going to check-ups every 6 months. So, as of June 2008 my 2-year clock started all over again, and I’m still on 3-month cystos. (Plus, the BCG protocol for about 3 years.)

    Ann


    Small TA Grade 1, May-06; recur (2 tiny), same, June-08; TURBTs both times. BCG begun July-08, dosage to 1/3rd May-10, completed treatment December-11. All clear since 2008.
  • Alan

    Member
    December 10, 2008 at 4:32 pm

    I luv great news. And, I eat broccoli at least once a week plus other anti-oxidants such as blueberries & pomergrante juice often. Can’t hurt!


    DX 5/6/2008 TAG3 papillary tumor .5 CM in size. 2 TURBS followed by 6 instillations of BCG weekly with a second round of 6 after a 6 week wait.
  • Lady Jane

    Member
    December 10, 2008 at 12:16 pm

    Terrific news Suzi. Celebrate for sure!


    Ta Grade 1
    6 TURBS
    15 BCG
    dx Jan 07
  • Moonerj

    Member
    December 9, 2008 at 9:31 pm

    That is great news Suzi!
    My wife feeds me that green vegetable ever day also.
    I was moved to 6 month cysos, because I have been 1 year free of those ugly tumors. Hopefully next year at this time I can be moved to yearly like you.
    It is always nice to read all the good news people share on this site.
    :)
    Jack


    TA Grade 1
    3 Turbts
    30 BCG Treatments
    Cancer Free since Nov 2007

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